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AkerAnouke's Message Board Messages

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Good morning all,

We began the CBD/THC Protocol on Thurs.  Aker pushed himself to see what his initial tolerance is for the oil.  He was able to ingest 3/4 of a gram in 18 hours, however he was barely functional and extremely uncoordinated.  

Friday he ingested 1/4 gram of the oil and used a 1:1 ratio Vap  in between doses to help raise his tolerance  and keep a continuous stream of medicaton entering his system. He is sleeping a lot but has minimal pain. The only pain pills he occasionally takes now is extra strength Tylenol.

His appetite is also improving.   He is still working his way back from the reaction to the slow release morphine.  Currently he is eating 2 to 3 small meals a day which is a huge improvement. We are still working our way back to the Alkaline diet.  And I hope to be 80% there by the end of the month.

In addition to the CBD/THC Protocol  he is also taking Herbal supplements created based on the alkaline herbal medicine book.  I purchased the herbs required to make the Foundation and Clarification supplements and incorporated them into his routine.

We keep pushing forward and are hoping that we see some improvement with the upcoming blood tests and scans.   

Peace and Strength to all.

Good morning all,

I am happy to report some positive news.  Aker began a herbal protocol along with beginning small doses of CBD.  His pain is significantly less and he is resting much better.  

With the reduced pain his appetite has increased dramatically.  He has gained 2 pounds (240) in the last 4 days.   

The CBD seems to make him a bit groggy, but the extra rest is helping him be more focused when he is awake.

Next week we will increase his CBD intake and add in equal part of THC.   In two weeks hevhas a lab appointment and a scan.  We are hoping to see some indication that at a minimum  growth has been arrested and are that indications of shrinking are present.   

Prayerfully and diligently pushing forward.

Peace and strength to all.

Hello everyone,

Its been a rough few days.  Aker has lost 3 more pounds.  He was 290 in January and is down to 238 yesterday.  It is hard to keep my poker face on and be positive all the time.

Work is suppose to be a disraction for me.  Bad hubby day on top of a bad work day resulted in uncontrolled crying in the shower for two hours.  As a side note.... tankless water heater is the way to go.  Two hours in the shower could have been very uncomfortable if the water was cold????

That's my pitty party for the day.  Point being caregivers are not super heros and need to know it is ok to be human.

Peace and strength to all.

On Mar 17, 2017 4:12 AM AkerAnouke wrote:

Hello All,

If you are here I assume that like us, you or someone you care about has been diagnosed with Cancer.  

Our journey is just starting but I was encouraged and inspired by Carly and Scott's story.  My hope is to make the journey a little easier by sharing information, successes,  and challenges that we experience along the way. 

I have read dozens of stories on multiple blogs and have learned a little something from every site.  Some information real and giving hope, others turned out to be people praying on people desparate to find answers.

I chose to document our story here because I was inspired by Carly and others.  

If you chose to follow our  or any story, I encourage you to research and validate the information in as may independent resources as possible.  Don't let your desperation to save yourself or your loved one take you down a wrong or dangerous path.

Our story:

My name is Anouke and my husband Aker was diagnosed with Colorectal-cancer on January 5, 2017.  By the time all the tests, biopsies, and scans were completed on February 23, 2017 he was staged as Stage IV.   During the appointments that led up to February 23rd no  one ever actually gave us the stage.  They rattled off acronyms, numbers, and technical terms.  They would never just say it. 

I made sure to get copies of all tests, images, results, and charted physician notes.  I poured over the notes looking up every word or phrase that I didn't understand.  Everytime we saw a Dr. PA, or Nurse I confirmed my understanding of what hapoened at the previous appointment.   

When we finally got to the Medical Oncologist I was able to ask "intelligent" questions.  I think I caught him off guard when he started quoting the guidelines for treating Aker's condition and I challenged him with alternatives (traditional and alternative/holistic).  I was shocked at how dismissive he became at that moment.  

 Our first step in the search to beat the Cancer has been to start with what is easy.  We changed our diet.  We are transitioning to Dr Sebi's Alkaline Diet.  It is a challenge to switch to a restrictive vegan diet.  There are challenges in learning how to eat for health, understanding the benefits of various types of food, affects of GMO or Hybrid foods,  food preparation, and adjusting finances to accommodate the new lifestyle.

I am fairly healthy for a 50 year old woman so it is not required for my diet to be as restricted as Aker's, however, to support him I eat what he eats, nothing more or less.

In the first two weeks I saw improvements in both of our energy, skin and eye clarity.  We both started resting better and I found that I have increased focus. 

We are working with a herbalist to find the right herbal supplements to help strengthen and heal his body.

Our next step/phase will be to begin a CBD-THC  Oil Protocol.  Research that I have done suggest oral and suppository administration of the oils are more effective than oral administration alone.  Carly mentions the benefits of diversifying administration methods helping Scott's healing process as well.

We have an appointment with a new medical Oncologist next week and we are hoping he will work with us to try alternative treatments.

Strength and peace to all.

Good morning all,

Aker's pain has increased significantly since the sigmoid (anal ultrasound) and the last biopsy.   He was percribed slow release morphine, which turns out he is allergic to. As a result, his aversion to taking medicine has been magnified immensely and he wont even takeva Tylenol.

This has been a bit of a set back as subconsciously he relates the issues he had with  the morphine to the change in diet.  In order to get him to eat I have had to revert his diet back to what he has been eating for 58 years.

We were excited about being able to start the CBD-TCH OIL Protocals sooner rather than later, but we keep running into roadblocks.   

We are pushing forward.  Just have to take a new approach.

Strength and peace to all.

Hello All,

If you are here I assume that like us, you or someone you care about has been diagnosed with Cancer.  

Our journey is just starting but I was encouraged and inspired by Carly and Scott's story.  My hope is to make the journey a little easier by sharing information, successes,  and challenges that we experience along the way. 

I have read dozens of stories on multiple blogs and have learned a little something from every site.  Some information real and giving hope, others turned out to be people praying on people desparate to find answers.

I chose to document our story here because I was inspired by Carly and others.  

If you chose to follow our  or any story, I encourage you to research and validate the information in as may independent resources as possible.  Don't let your desperation to save yourself or your loved one take you down a wrong or dangerous path.

Our story:

My name is Anouke and my husband Aker was diagnosed with Colorectal-cancer on January 5, 2017.  By the time all the tests, biopsies, and scans were completed on February 23, 2017 he was staged as Stage IV.   During the appointments that led up to February 23rd no  one ever actually gave us the stage.  They rattled off acronyms, numbers, and technical terms.  They would never just say it. 

I made sure to get copies of all tests, images, results, and charted physician notes.  I poured over the notes looking up every word or phrase that I didn't understand.  Everytime we saw a Dr. PA, or Nurse I confirmed my understanding of what hapoened at the previous appointment.   

When we finally got to the Medical Oncologist I was able to ask "intelligent" questions.  I think I caught him off guard when he started quoting the guidelines for treating Aker's condition and I challenged him with alternatives (traditional and alternative/holistic).  I was shocked at how dismissive he became at that moment.  

 Our first step in the search to beat the Cancer has been to start with what is easy.  We changed our diet.  We are transitioning to Dr Sebi's Alkaline Diet.  It is a challenge to switch to a restrictive vegan diet.  There are challenges in learning how to eat for health, understanding the benefits of various types of food, affects of GMO or Hybrid foods,  food preparation, and adjusting finances to accommodate the new lifestyle.

I am fairly healthy for a 50 year old woman so it is not required for my diet to be as restricted as Aker's, however, to support him I eat what he eats, nothing more or less.

In the first two weeks I saw improvements in both of our energy, skin and eye clarity.  We both started resting better and I found that I have increased focus. 

We are working with a herbalist to find the right herbal supplements to help strengthen and heal his body.

Our next step/phase will be to begin a CBD-THC  Oil Protocol.  Research that I have done suggest oral and suppository administration of the oils are more effective than oral administration alone.  Carly mentions the benefits of diversifying administration methods helping Scott's healing process as well.

We have an appointment with a new medical Oncologist next week and we are hoping he will work with us to try alternative treatments.

Strength and peace to all.

On Feb 28, 2017 6:12 AM cscottandcarly wrote:

I’d like to apologize for not posting for so long.  Having sat down to write this post a dozen times, I have felt at a serious loss.  I have tried to figure out how to tell you all the news-- Scott is really, really actually, for sure beating Stage IV Colon! His Oncologist agrees, and has made it clear that it is the treatments that Scott has chosen to use!

This whole public info is so frightening--it has been more terrifying than I thought it would be to possibly have some hand in effecting other's choices when it comes to this deadly disease. My goal was to just put the info out and find out what others have learned.  But now, though, Scott is nearly two years into this, and I have seen and heard of too many dying of this, and dying quickly- my husband and I cannot sit by and passively throw out this info.

It is saving his life. He wouldn’t be alive without it, and we totally believe that now.

After watching Scott seem to be slipping way, even though the liver was getting cleaner every day, we knew he needed something more.  Of course, we did what the Oncologist said and tried another chemo and radiation, but unfortunately, the growths kept invading his body, literally they grew everywhere from pelvic region to his neck, and this metastasis was continuing to grow, from fall of 2015 all through nearly the first year after his diagnosis. So needless-to-say, we knew he needed more than the Cannabis Oil to fight the rest of his cancer. The cancer was terribly painful, and with the total encasement of his aorta, it was getting seriously life-threatening, and we luckily came across believebig.org "" target="_blank" rel="nofollow">http://believebig.org " target="_blank" rel="nofollow">believebig.org which is where we found a Denver Mistletoe doctor.

The additional of Mistletoe Extract to the THC/CBD/Coconut Oils in various method, changed everything. In March 2016, Scott had a football-sized adenocarcinoma, and quickly spreading up his entire interior cavity, and then up into his chest, all around his heart and all the arteries, and then a new mass came on his clavicle. Then the delivery came. The Mistletoe Extract arrived onApril 1, 2016, hoping for palliative relief for his unbearable suffering, Scott started on Mistletoe Extract Subcutaneous Injections and within two weeks, that mass was almost gone, and one scan later in May 2016, massive regression.

 Now after his most recent scan month, there is still continued dramatic regression. Everywhere-now 6 months after chemo was halted for ineffectiveness and three months after radiation ended with little effect (besides leaving Scott at 112lbs and 6”1’ and sicker than ever), Scott has a 15mm x 17mm lymph node in his chest and a 4.2cm x 2.6cm in his pelvic region.  

 I am so very excited about the mistletoe and the oils as a combo treatment. I am certain that he will beat this, and he is, too. He is healthy, and really only showing positive effects from all of this treatment. It’s unreal. 

 I feel safe to say, now that it has been nearly a year and several scans later, Scott is completely free of cancer in any organ, and he is now down to a very manageable position with his cancer-likely lymph growth, and now Scott knows how to control growth and is not so scared of cancer.  That is priceless.

 I love you all, and I have lots more to say, but I better get this update posted.

 By the way…we went to Caregivers for Life, and they sold all of our oil, so we had to scramble to find another source. This is the first time with them, but we would have been devastated if we hadn’t found another dispensary.  

Hi Scott and Carly,

Your story is so encouraging and has given me hope.  

My husband was diagnosed with colorectal-cancer onJanuary 5, 2017.  On February 23, 2017. They staged his cancer at Stage IV.  

I have been frantically looking for alternative treatmens as he does not want to follow the  r ecommended traditional Chemo, Chemo-Radiation, Chemo treatment plan.   

What we have done so far:

We initially started with the Dr. Sebi Alkaline Diet which has helped him feel better and are we are in the process of adding in the appropriate herbal supplements. The goal and purpose of changing his diet is to remove as many toxins as possible.

https://wakeup-world.com/2015/08/28/dr-sebi-the-man-who-cure

https://naturalselfbyriasweetraw.wordpress.com/be-healthy/dr

 Our next step is to start the CBD-THC protocol.  And based on your experience and other recommendations, and research, we are planning to use the oral and suppository administration.

I would like to thank you for telling your story.  I pray for sustained and improved health for Scott.

You expressed the weight you feel in publicly sharing your story and having an impact on the decisions people make.  Please don't ever let the weight you feel over shadow the hope you provide for others.   We have never met you, but WE love you for the courage you have shown and the light you have shared in the dark tunnel of cancer that we find ourselves.

I will comit to show my appreciation by documenting our journey as well.  

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About AkerAnouke

Caregiver
Colon Cancer, Rectal Cancer
Alternative Treatments, Cancer Diagnosis, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Clinical Trials and Research, Diagnostic Imaging, Diet, Emotional Support, Genetics, Lifestyle, Massage Therapy, Naturopathic Medicine, Prevention Tips, Recipes, Side Effects, Supplements

Helping my husband fight Stage IV Colorectal-cancer.

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