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BruceSt's Recent CancerCompass Activity

  • BruceSt has replied to a post on the message board

    The brain truly is an amazing organ. What modern medicine can do is also miraculous so many times. It’s great to hear the meds are helping your husband Lesley. Dodger you are so right that each case is unique just as each is a person and a family. There is So much to consider. If the decisions are prayfully and thoughtfully made I believe each family and patient can make it the best it possibly can. GBM is a h...

    January 05 at 12:05 AM view post
    • BruceSt has replied to a post on the message board

      Radiation was 30 days post resection (11/15). Cognitive decline really stated showing itself around 8/17 and really pronounced the last month. So, where we landed today was to stop Optune and take a break from Avastin and see what happens. You are right about earlier than 2 years, I’ve read it usually starts as early as 6 months. Like most things it’s dependent on a lot of things. Thanks for your reply.

      December 21 at 11:09 PM view post
      • BruceSt has created a new message board discussion

        So, 26 months post diagnosis my 79 year old mother receives the results of her latest scan. “Tumor stable / all clear no change from the scan 8 weeks ago” .... However, cognitive function is rapidly declining as is strength due to the effects of radiation/temodar and she’s been on Avastin since August 2017. Headed to Duke tomorrow hoping to hear options that offer hope. It’s sad to beat back this incurable demon jus...

        December 21 at 1:00 AM view discussion
        • BruceSt has replied to a post on the message board

          My mother is seeing Dr Margaret Johnson at Duke and we’ve been VERY pleased with them. I wish you all the best.

          December 21 at 12:38 AM view post
          • BruceSt has replied to a post on the message board

            Debbie, my mother has been on it for 18 months. Pretty consistently she's managing 65% usage. It's a challenge but has definately extended life. Her GBM caused a hemoragic stroke so her mobility is limited therefore optune has been easier to deal with. We have to change the arrays daily to keep the skin under control. Prayers  going out to you Bruce

            August 12 at 2:50 AM view post
            • BruceSt has replied to a post on the message board

              He just started? We had to get to the point of daily changes too, 4-6 hours off a day. We couldnt take the alcohol long, surprised by that step of the protocol. Get a scrip for 2.5% cortisone, go ahead and start seeing a dermatologist. ..stick with it, it (optune) works GOD bless & best wishes Bruce

              July 07 at 5:03 AM view post
              • BruceSt has replied to a post on the message board

                Hey Linda  Long time!  Good to hear from you although I'm sorry your mom's slowing down. My mother uses a walker some but she's got a lot of left side weakness that was caused by the stroke which was caused by the GBM.  She is still doing optune and we seem to have found a routine there. She currently is in session 9 of maintenance temodar. Just got back from another great visit/MRI at Duke at the e...

                October 06, 2016 view post
                • BruceSt has replied to a post on the message board

                  Hi Xanie I was in a similar situation as you 11 months ago. The tumor caused a massive stroke for my now 78 year old mother. Her tumor was completely resected, she got through the 6 weeks and initial 42 days of temodar and has since completed 8 of the 12 maintenence courses of temodar. She's also been using optune since 30 days post radiation. She gets mri's every 8 weeks and we see a doctor at Duke to serve as a 2n...

                  September 23, 2016 view post
                  • BruceSt has replied to a post on the message board

                    Do not wait for him to mention it. you should suggest it. It was not available in the areas that we live and it was prescribed from a doctor in a neighboring state now it is available here since we've inform the doctors in this area. It is approved and it doeshave positive results 

                    July 13, 2016 view post
                    • BruceSt has replied to a post on the message board

                      Have you tried optune?

                      July 13, 2016 view post
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                      About BruceSt

                      Caregiver
                      Brain Cancer

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