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CaregiverPete's Recent CancerCompass Activity

  • CaregiverPete has replied to a post on the message board

    Hi everyone  Pathology came back from brain mass as lung cancer.  My wife has to battle distant recurrence of breast and distant recurrence of lung cancer. She went in for surgery yesterday to have a Ommaya put into her cranium to help get chemotherapy treatment to her brain fluid, spinal fluid and her entire nervous system. Neurologist is also going to use immunotherapy in addition to chemotherapy. &nbs...

    Thursday at 9:49 AM view post
    • CaregiverPete has replied to a post on the message board

      Thanks Ray.  Your words are always good with me. I'd be nice to have an edit button once n awhile for simple word or spelling corrections.  Im with ya Ray. Thank you Thank you to all the caregiver ladies too.  Peppermint, Marge, Lisa, Carolyn, Gigi, Punky, ect...

      February 15 at 1:54 PM view post
      • CaregiverPete has replied to a post on the message board

        Peppermint  Sooooo happy for you on finding a support group.  Looking forward to hearing all about it. 

        February 13 at 2:34 PM view post
        • CaregiverPete has replied to a post on the message board

          Lisa. I just checked in and read your heart aching. I'm so sorry to hear this and all that is happening to you again. Your emotions don't ever get a break. I wish there was some immediate relief for you. You'll be in my thoughts today. ((Hugs)) Pete

          February 13 at 2:26 PM view post
          • CaregiverPete has replied to a post on the message board

            Hi esterest. Welcome  I very sorry about your mother's diagnosis.  I hope since your post that things are ok. We are all here to listen and to offer any ideas to help you get through this. All the caregivers here have been here for me and have helped me with no end in sight.  Please let us know how you are coping and how your mother is doing.  Be well esterest.  Pete.....

            February 10 at 5:00 PM view post
            • CaregiverPete has replied to a post on the message board

              Thank you everyone!!! My wife is all done. Shes talking,  smiling, chatting..... Surgery 100% successful! Doctors got ALL of the abnormal looking mass. 2 weeks for incisions to heal, then a few days of precision radiation treatment.  She ate a breakfast burrito (at 6pm) lol...,  and also some blueberry pancakes(at 610pm) lol...., drinking oj,  snacking on gram crackers,  voracious appetit...

              February 08 at 12:30 AM view post
              • CaregiverPete has replied to a post on the message board

                Thank you everyone. I just spoke to wife on the phone.....WOW.  The docs are working on her as we speak and I'm talking with her.... this is something else. Very emotional moment for me. She said that she loves me and she loves everyone for their support. She's almost done, no pain at all, she's been laughing and having lots of conversations, she's doing alot of memorization tests on a ipad and time is flying ...

                February 07 at 9:26 PM view post
                • CaregiverPete has replied to a post on the message board

                  My wife is in the operating room right now having her procedure.

                  February 07 at 6:57 PM view post
                  • CaregiverPete has replied to a post on the message board

                    Thank you all so much Ray Punky Peppermint Gigi Carolyn Marge Lisa You are all the greatest caregivers to me anyone could ever ask for.  Today,  my wife and I are at the neurological psychologist going through all of her cognitive skills and testing. She will be awake for the tumor removal procedure on Wed. Doctors will use all the results today and re-use them Wed as comparison.. Im just trying t...

                    February 02 at 3:09 PM view post
                    • CaregiverPete has replied to a post on the message board

                      Doctors found a tumor in my wife's brain this weekend. She had a seizure which prompted the brain MRI. It's operable.  Doctors are takibg it out next week Wed.  Please wish her well. 

                      January 30 at 8:52 AM view post
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                      About CaregiverPete

                      Caregiver
                      Breast Cancer, Lung Cancer - Non-Small Cell
                      After Treatment, Cancer Diagnosis, Emotional Support, Lifestyle

                      My name is pete. I've been married for 18 years. My wife and I have been together for 27 years. High school sweethearts.

                      I've been a caregiver husband since her IDC breast cancer diagnosis in Nov 2014. My wife had grade 3 tumor, triple negative breast cancer stage IIIA, 25 pos+ lymph nodes. Double mastectomy, 4 rounds of chemotherapy (Adriamycin and Cytoxan), radiation.

                      And.....1.5 months later....

                      In January 2015 she was diagnosed with
                      Non small cell lung cancer, EGFR mutation stage IIA lung cancer. Upper left lobe removed. 4 rounds of chemotherapy (Taxotere and Cisplatin). Radiation, 12 months of Tarceva.

                      Totally Cancer free NED since Nov 2016.

                      Left lung Pleural Effusion drained Aug 15, 2017. 1500cc

                      PET scan Aug 16 2017 showed spots on bones....:(
                      Distant recurrence of Breast Cancer on bones and sacrum

                      Aug 2017 Started XGEVA - injection for bone density treatment

                      Aug 2017 Started XELODA oral chemotherapy for distant recurrence breast cancer. 8 pills a day for 2 weeks then 7 days off, repeat for 4 cycles.

                      Nov 20th 2017 PET scan shows XELODA didn't work :( wife won't have to take final round of XELODA.

                      Nov 28th 2017 started new chemotherapy. Eribulin IV push. 3 rounds...2 weeks on 1 week off.

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