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CaregiverPete's Recent CancerCompass Activity

  • CaregiverPete has replied to a post on the message board

    Thank you everyone. Patty Lisa Lena Carolyn Ray Gigi Marge Punky Thank you.....  Misty..... I love you.....

    June 11 at 11:50 AM view post
    • CaregiverPete has replied to a post on the message board

      I can't believe my Misty is gone She's gone forever.  This could feel like a week or two but it's not..... she's never coming back.... not in two weeks or two thousand years.  Im all alone.  I'll never find someone like her ever. I have No children, no brothers,  no sisters.  After my parents are gone. Its just me and no one.  Im so tired. I can't breathe. Don't want to breathe. Tak...

      June 10 at 9:15 PM view post
      • CaregiverPete has replied to a post on the message board

        Saddness........ My wife Misty passed away / pronounced deceased  Monday June 4th at 950pm  I was next to her for her last breath. 

        June 05 at 5:54 AM view post
        • CaregiverPete has replied to a post on the message board

          Deep breaths..... Deep breaths..... Thank you Ray

          June 02 at 11:21 PM view post
          • CaregiverPete has replied to a post on the message board

            Thank you Carolyn. I will try to still write my poems.  Misty chose to go into hospice care today. She's done with the side effects of chemotherapy. She wants to get her body cleaned up and ready for her final breath.  My mom helped me get misty all new clean bedding for her hospital bed. It was just dropped off along with , shower caddy, toilet riser, komode, wheel chair, and o2 pump and tank.  I...

            June 02 at 9:02 PM view post
            • CaregiverPete has replied to a post on the message board

              Thank you for your words Ray.. Thank you so much 

              May 31 at 7:30 PM view post
              • CaregiverPete has replied to a post on the message board

                Thank you for your thoughts Pdewgn. I will try to be strong and write more of my feelings.  I appreciate your support and hope for you as well.

                May 31 at 5:04 PM view post
                • CaregiverPete has replied to a post on the message board

                  Thank you Marge. I need so much courage. Misty told me she's not scared, she's not sad, she wants to leave.  She has the courage to leave.

                  May 31 at 4:25 PM view post
                  • CaregiverPete has replied to a post on the message board

                    Thank you so much for your love Patty. I have a park lagoon i can visit that misty and I fed the ducks cracked corn when we were in our teens.  I'm breathing deep.

                    May 31 at 3:39 PM view post
                    • CaregiverPete has replied to a post on the message board

                      My sincerest thank you Ray, and to all my caregiver family for being by my side. 

                      May 31 at 2:52 PM view post
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                      About CaregiverPete

                      Caregiver
                      Breast Cancer, Lung Cancer - Non-Small Cell
                      After Treatment, Cancer Diagnosis, Emotional Support, Lifestyle

                      My name is pete. I've been married for 18 years. My wife and I have been together for 27 years. High school sweethearts.

                      I've been a caregiver husband since her IDC breast cancer diagnosis in Nov 2014. My wife had grade 3 tumor, triple negative breast cancer stage IIIA, 25 pos+ lymph nodes. Double mastectomy, 4 rounds of chemotherapy (Adriamycin and Cytoxan), radiation.

                      And.....1.5 months later....

                      In January 2015 she was diagnosed with
                      Non small cell lung cancer, EGFR mutation stage IIA lung cancer. Upper left lobe removed. 4 rounds of chemotherapy (Taxotere and Cisplatin). Radiation, 12 months of Tarceva.

                      Totally Cancer free NED since Nov 2016.

                      Left lung Pleural Effusion drained Aug 15, 2017. 1500cc

                      PET scan Aug 16 2017 showed spots on bones....:(
                      Distant recurrence of Breast Cancer on bones and sacrum

                      Aug 2017 Started XGEVA - injection for bone density treatment

                      Aug 2017 Started XELODA oral chemotherapy for distant recurrence breast cancer. 8 pills a day for 2 weeks then 7 days off, repeat for 4 cycles.

                      Nov 20th 2017 PET scan shows XELODA didn't work :( wife won't have to take final round of XELODA.

                      Nov 28th 2017 started new chemotherapy. Eribulin IV push. 3 rounds...2 weeks on 1 week off.

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