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Chicagogirl's Recent CancerCompass Activity

  • Chicagogirl has created a new message board discussion

    my husband of 17 years passed away august 21, 2016 from Stage IV Glioblastoma multiforme.  And, I want to bless someone with the wedding dress that we married in.  for anyone looking to marry with this diagnosis or who has a partner with the diagnosis, please private message me and I will forward a photo.  it has been professionally preserved and boxed.  excellent condition.  size 4. I will b...

    March 19 at 3:56 PM view discussion
    • Chicagogirl has replied to a post on the message board

      i am heartbroken for you both.  my husband and I wanted to travel while he was feeling good....our brilliant (and i am not being sarcastic-truly brilliant) oncologist did not think it wise.  His family was againtst it.  so, we did not.  He was in relatively good health for 10 months.  not doing what WE wanted to do is such a regret of mine.  that we did not use our autonomy as a couple m...

      March 19 at 3:51 PM view post
      • Chicagogirl has replied to a post on the message board

        Donna,  thank you for sharing.  And know that your input is much appreciated.  My husband is entering the Avastin + CPT 11 every two week world.  I'm encouraged by your story and have shared it with him. Know that you are making a difference instilling hope where hope may seem lost. I pray that your good fortune continues.  And, I root for anyone that survives.  No need for guilt. &nbs...

        January 07, 2016 view post
        • Chicagogirl has replied to a post on the message board

          My husband was diagnosed with Stage iV glioblastoma/GBM June 22, 2015.  We have been going to Duke for 4 months in the hopes of qualifying for a trial.  They truly are doing amazing work there.  Dr. Friedman (mentioned earlier) is very responsive.  You can page him and he will return your call every time.  Not always patient on the phone; but, he is indeed a very busy man.  Have question...

          January 07, 2016 view post
          • Chicagogirl has replied to a post on the message board

            Just wish to reiterate what two others have suggested regarding the necessity of a Speech Therapy evaluation before attempting to swallow anything.  Water is potentially dangerous if the mechanisms are not intact or compensatory strategies are not employed.  A person can silently aspirate; there may be no cough response.  So, you may not know the liquid is going into the airway until he gets pneumonia....

            January 07, 2016 view post
            • Chicagogirl has replied to a post on the message board

              Just wish to reiterate what two others have suggested regarding the necessity of a Speech Therapy evaluation before attempting to swallow anything.  Water is potentially dangerous if the mechanisms are not intact or compensatory strategies are not employed.  A person can silently aspirate; there may be no cough response.  So, you may not know the liquid is going into the airway until he gets pneumonia....

              January 07, 2016 view post
              • Chicagogirl has replied to a post on the message board

                Emilynn, thank you. Yes, I have a cursory understanding of Optune. Do you know of anyone that has used it? Thank you

                November 13, 2015 view post
                • Chicagogirl has created a new message board discussion

                  To all that brave today and persevere . I am encouraged by your stories of survival and healing. We all know the eventuality; but, there are no guarantees for those without GBM either. Thank you!

                  November 11, 2015 view discussion
                  • Chicagogirl has replied to a post on the message board

                    Interested in responses regarding Ginger....

                    November 11, 2015 view post
                    • Chicagogirl has replied to a post on the message board

                      I love your motto....

                      November 11, 2015 view post
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                      About Chicagogirl

                      Caregiver
                      Brain Cancer
                      Alternative Treatments, Cancer Nutrition, Cancer Treatments

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