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Chris3455's Recent CancerCompass Activity

  • Chris3455 has replied to a post on the message board

    Hi, I know this is several years later... I hope your Dad is doing well. I was hoping you could answer my question and tell me how they were able to remove the stents from your Dad’s Esophageal ? Thank you, Marcia

    October 03 at 10:35 PM view post
    • Chris3455 has created a new message board discussion

      Hi All, My husband was diagnosed with EC stage IV. With Mets to his liver and lymph nodes. He was doing so well with Keytruda and a feeding tube. Then this year our doctor suggested radiation for quality of life and maybe end tube feeding. My 6’2 husband was doing well keeping at 180lbs and getting good calorie intake. Then we did the radiation. It was horrible. After 21 of 28 treatments we had to quit because of 2...

      September 13 at 12:11 AM view discussion
      • Chris3455 has replied to a post on the message board

        That’s really great! But Chris is stage IV and no one will operate on him. They say it’s too dangerous.

        June 22 at 1:41 AM view post
        • Chris3455 has replied to a post on the message board

          Hi Karen, It’s very late right now. For at least me and Chris. ?? But I will surely get ahold of you to talk about other options. We are so frustrated and the doctors seem to think this is all normal. Doesn’t seem normal to us! Thank you for responding. Marcia

          June 22 at 1:36 AM view post
          • Chris3455 has created a new message board discussion

            Hi All, My husband is supposed to have 27 radiation treatments to his esophagus.  They have only suggested this recently. He has had 11 treatments so far. But, the radiation has caused him to have such severe nausea that he has had to skip at least 5 treatments. Has anyone had this response? I mean every hour he has been sick.  Also, he is in his 3rd year of this disease and has been on Keytruda for the l...

            June 20 at 4:24 PM view discussion
            • Chris3455 has replied to a post on the message board

              Hi, I was told by our radiologist that you should not have cryotherapy while you are having radiation treatments and maybe chemo, because essentially the cryotherapy is adding oxogyn to your system which not only feeds your good blood cells but also the bad cancer cells.  He feels that after treatment it could help a lot.  But he absolutely does not think it should be done while your on radiation.  Yo...

              May 20 at 6:32 PM view post
              • Chris3455 has replied to a post on the message board

                Hi John, Holy cow! I have a had a pill stuck sideways in my throat and that is awful.  I can't imagine it happening and feeling like you can't breathe. That sounds so scary! You have given me so much good information.  I am really happy to have met you. :) Chris's tumor is in his lower esophagus and growing tube between his stomach and esophagus. I couldn't tell you how large it is., but until about two w...

                May 09 at 7:17 PM view post
                • Chris3455 has replied to a post on the message board

                  Hi John, I guess i didn't read the whole message!  You've had 14 dilations!?! Did they tell you why so many?  Does your esophagus just keep closing back up?   I am going to ask our radiologist and see what he says.  I will pass that along to you. Thank you, Marcia

                  May 09 at 5:33 PM view post
                  • Chris3455 has replied to a post on the message board

                    Hi Susan,  I hope you got my last message.  I don't think i sent it directly to you.  Just go to the feed and you will see my response. Have a great day! Marcia

                    May 09 at 5:30 PM view post
                    • Chris3455 has replied to a post on the message board

                      Hi Susan, Thank you so much for replying I am so happy to hear your dilations worked.  Sucked it happened because of your radiation.  Our main goal is to get Chris to start eating again. He has not eaten a solid meal in almost 2 years. The feeding tube hurts as bad or more than the treatment he is getting. I am so hopeful that the radiation will shrink his tumor so he can eat. And will definitely ask him a...

                      May 09 at 5:01 PM view post
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