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Cindy217's Message Board Messages

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I am so sorry to hear about your daughter. My husband is 42 and has GBM as well. He was diagnosed in 9/05. The doctor explained to us they had to wait 3 weeks after surgery for radiation because the site had to heal. Radiation causes irration as well to the brain so they have to give time for the site to try and heal. We did however start Temodar 1 week after surgery for 5 days off for 2 weeks then started back when radiation started. I would recommend that you contact Dr. Friedman at Duke University. I am not sure where you live, but he is supposed to be one of the best.
My husband is 42 years old and was diagnosed 9/30/05. He had the same 90% removed and had the same treatment radiation and chemo. We flew to NCI in 12/05 and saw Dr. Howard Fine. He advised for my husband to remain on Temodar for 12 months on the 23 day 5 day cycle. We will be returning there on 3/01/06 for an MRI done at their facility and evaluation. Dr. Fine stated after a few cycles that he would recommend he change to another chemo CCNU or BCNU since the tumor will stop responding to Temodar.
My husband was diagnosed 10/01/05 GBM. He has never had a seizure but takes Keppra. His Dr. put him on it anyway to prevent him from having one. He told us after brain surgery he could drive after 30 days since he had no seizures. I believe he did say and I could be wrong that if he had previously had one then he could not drive until he was 6 months seizure free. I also think that maybe law but again I am not sure. I think it is for our state of GA, but every state may be different. One thing I read said possibly three months with a doctors note that you are on proper seizure medication. I would check with the Department of Motor Vehicles in your state.
Send me an email at --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---and we can chat.
My husband was diagnosed in 9/05. We are also in ATL and had a 90% debulk done. He is currently in 6.5 weeks of radiation and is having a radiation boost tomorrow which will be 1 each week for the next four weeks. We are headed to Duke after 12/19 MRI. Curious if they will place him on that trial?
Garland, We are in ATL and just diagnosed GBM IV. Would love to chat with you. Shoot me an email --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---
My husband was diagnosed with GBM IV on 10/01. He had a 4 hour brain surgery and 90% of tumor was removed. The tumor was cystic type and on the Parietal lobe the size of a lemon. He is 42 years old and has been in good health. He had been having dizzyness and pressure when standing. Our allergist ran an MRI with contract and found the tumor. We went to surgery expecting an abscess and I was given the terrible news of GBM Multiforme IV. He has already taken 5 days of temodar and in one week we are starting radiation and temador. The radiation we are going to use is on every 5th day they are going to to an Accelerated Radiotherapy using weekly Stereotactic Conformal Boots for Supratentorial GBM. I had some questions for to see what treatment has been used. I saw someone that had been to Houston for treatment. Has anyone been given this trial on radiation? Anyone that has been to Anderson in Houston what type of treatment were you given? Anything different from Radiation and Temador or in addition to this course? Thanks for any info in advance.
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About Cindy217

Caregiver
Brain Cancer

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