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Csimowitz's Recent CancerCompass Activity

  • Csimowitz has replied to a post on the message board

    My husband passed from CNS lymphoma 2 years and 4 months after diagnosis at age 60. Heartbreaking. We treated it with two separate 5 month rounds of a 3-4 day regimen in the hospital of rituxin, methotrexate etc. He then had a serious response to the chemo and it could not be continued. The Dr. recommended whole brain radiation: we both said no. Quality of life was too important, it was the most selfless decision I h...

    July 10, 2017 view post
    • Csimowitz has replied to a post on the message board

      I commend you on putting your Dad's quality of life issue at the forefront. I lost my husband in 2015 to this awful disease. You will get through it, because you have no option. You will find the strength that is unbelievable, the low dose of steroids will help shrink the tumor. Use the services provided by hospice, especially for your coping issues and later grief. Just be there for him, cherish every day, kiss him ...

      July 10, 2017 view post
      • Csimowitz has replied to a post on the message board

        I have been through this: no one really knows the answer to "how long." What I can tell you is that I never regretted the decision, my husband and I were a strong believer of quality of life. I recently read a colum by a Rabbi in the newspaper, when medicine can cure then you choose your options. When you reach the point that it is only prolonging life, then it is with G-d. Try to enjoy every moment, cherish your tim...

        January 13, 2017 view post
        • Csimowitz has replied to a post on the message board

          I am sorry to hear of your Dad's condition. My husband was diagnosed with primary CNS in late 2012. We dealt with a large teaching hospital in the northeast. Methotrexate with rituxin is standard treatment for this awful disease. I think you should look for a more competent Dr. I do not like what I am reading. Clinical trials are not really the issue, reasonable care is. I wish you luck and faith on your journey ahea...

          March 03, 2016 view post
          • Csimowitz has replied to a post on the message board

            Hi. It has been quite a while since I have written on this site. You are correct about 58 being so young. I lost my mom when she was 58, I had aa two year old and an infant at the time. I lost Peter when he was just 60. This January will be a year. I still cry in the mornings or now, when I think of all the pain we have been through. My best times are during the day when I am teaching. My students are my salvation, a...

            December 19, 2015 view post
            • Csimowitz has replied to a post on the message board

              Dear Ann, I wish I had the words to comfort you. I lost my best friend/ soul mate/ husband last January and my heart breaks for you. There is no east answer as grief is a process. My guess is that your children will be your saving grace: mine is that I  teach middle school. In addition, I have three adult children (only one lives really close) and some awesome friends. I would definitely join a support group, it...

              December 19, 2015 view post
              • Csimowitz has replied to a post on the message board

                Thank you to all of you for your words and most of all your understanding. I too teach- it will help fill the void of emptiness, loneliness, but most of all when I am with my students I am distracted. I actually don't know how I am going to do this: go to work daily. Every day I am thankful when 630 pm has arrived: I have made it through another day. I did it! At that point I can eat dinner and watch tv. If I go to s...

                August 26, 2015 view post
                • Csimowitz has created a new message board discussion

                  I list my husband seven months ago. He passed from a two plus year battle with a brain tumor. I can not believe it is seven months: it feels like yesterday and other times the pain feels like an eternity. How can anyone survive something so utterly painful. I am trying so hard, I reach out to friends, I force myself to do things, I attend a support group, I speak with a hospice counselor- the reality is I want this p...

                  August 23, 2015 view discussion
                  • Csimowitz has replied to a post on the message board

                    I am no expert in grief- it has been the worst six months of my life. I agree with your friends, I would wait at least a year before making any changes. I joined a support group at a local hospital. It runs one evening a week and the social worker from a local hospice is excellent. I lost peter to an inoperable brain tumor. We fought for two years four months. The caregiver aspect us adding to my grief. Free time doe...

                    August 06, 2015 view post
                    • Csimowitz has replied to a post on the message board

                      Hi Jennifer: just wondering how you are holding up? I am so very sorry for your loss. Forty four is so young, I can not imagine. Peter was also diagnosed Oct 2012 - he passed late January. It's really not getting any easier. I attend a support group through hospice at a local hospital. The social worker gave me some positive insight into the intense grief I am feeling. I definitely take one day at a time. My children...

                      August 06, 2015 view post
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