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Dansingrhyme12's Message Board Messages

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RE: Feeding Tube Pain

by Dansingrhyme12 - February 15 at 11:13 PM

Hi.  I have to agree with you.  Every doctor or nurse I talk to is skirting the issue and not addressing my pain.  It would at least give me peace of mind if I had an ex-ray taken.  Thank you for your feedback.

RE: Feeding Tube Pain

by Dansingrhyme12 - February 12 at 12:54 PM

Thank you for all your help.  I promise to keep you posted.

RE: Feeding Tube Pain

by Dansingrhyme12 - February 12 at 2:01 AM

I've only been in treatment for a week and a half now.  I've had my feeding tube in for a week.

I have cancer of the supraglottis (larynx.)  I am still able to eat, speak and I take good care of my throat.  i'll let you know how things work out tomorrow.

I don't know about the whistle idea.  All I can picture with that is more pain.

RE: Feeding Tube Pain

by Dansingrhyme12 - February 12 at 12:49 AM

Yikes!  The thought of anyone tugging on this scares me to death!  The soreness and pain around the site is just too much to bear right now.

Thank you so much for the info on the Gatorade shake.  I'm definirtely going to look into it, David.

RE: Feeding Tube Pain

by Dansingrhyme12 - February 12 at 12:36 AM

David, I had mine tugged at too.  Man, that hurt!

I just feel like it's too tight.  Tomorrow, when I go in for treatment, I'll have them take a look at it and see what they can do.

Thanks again!

RE: Feeding Tube Pain

by Dansingrhyme12 - February 12 at 12:30 AM

You had the same issue, David?  So you know how painful it is.

I did see the nurse trying to adjust the washer when I told her that the tube was too tight.  It moved such a little bit that I hardly even noticed the difference.

I do make sure that I turn it, clean the are and put a fresh bandage on it each day.

Thank you so much for you input, David.

RE: Feeding Tube Pain

by Dansingrhyme12 - February 07 at 11:52 PM

Thank you for responding.  I can completely relate to the pain your husband was experiencing.  I have been able to get some pain medication.  It wasn't much help becuase I was still having spasms.  Because of the pain, I was also having terrible constipation.  Each day, my body is trying to adjust to this new "invasion of space."
I felt so happy today when a nurse took a look at it today and said that it looked so tight against my skin.  I felt like finally someone understood me.  She did the best she could to free up a little space between the tube and my skin.  It feels a little better, but this will definitely take some time.

Feeding Tube Pain

by Dansingrhyme12 - February 06 at 10:50 PM

I've been diagnosed with Stage 4A, cancer of the supraglottis (upper epiglottis.)  I had my feeding tube "installed" four days ago and I've never had so much pain.  

My doctors have checked the site and have told me that it's because I'm thin and layers were cut into.  For some reason, I'm not satisfied with that answer.

Has anyone else had this issue?  If so, I'd like to hear from you and maybe hear what your physician had to say.  Thanks.

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About Dansingrhyme12

Patient
Esophageal Cancer
After Treatment, Cancer Nutrition, Cancer Treatments, Chemotherapy, Diet, Emotional Support, Radiation, Spiritual Support, Supplements

I'm 49 years old and was diagnosed with cancer of the supraglottis (part of the epiglottis) in October of this year (2018.)

I've been diagnosed as stage 4a. I can beat this disease and so can anyone who has it. Cancer's only as powerful as you allow it to be.

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