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Dlynn1210's Recent CancerCompass Activity

  • Dlynn1210 has replied to a post on the message board

    I am going to ask my doctor about Gabapentin. At least it gives me something that might help. It is becoming more pronounced - the tingling feeling is happening all through the day and stronger. At least there is a pretty chance it is related to the radiation. Thank you for the heads up - what Cancer Compass is all about! Diana

    Yesterday at 1:26 AM view post
    • Dlynn1210 has replied to a post on the message board

      I just saw you had esophageal cancer - and I generally point out there is a difference in the area being radiated between those with your type of cancer and mine (tonsil cancer). I know of others who had esophageal cancer and a GI doctor was able to help them. I never advise anyone who had a different type of cancer because all types of head and neck cancers are a little different and can respond differently to tre...

      Friday at 8:49 PM view post
      • Dlynn1210 has replied to a post on the message board

        The results definitely depend on a doctor’s expertise in certain procedures no matter what speciality they are practicing. Even though they may do rigid dilations I have never heard of a GI doctor attempting one. I was told the one who did the balloon on me was a very good GI doctor but he did not even suggest doing a rigid dilation. In fact when I asked him after the fact, he simply said “I don’t do them.” T...

        Friday at 8:42 PM view post
        • Dlynn1210 has replied to a post on the message board

          I posted privately to John but some good information to repeat - I am almost 11 years out now. I read back over my response and I wasn’t very clear. Speech Pathologists have our Masters Degree in Communication Science and Disorders (a 6 year program) rather than a Bachelors (4 years) for Speech Therapy. Even when Deb and I graduated we had never been trained in VitalStim - it was an extra course that Deb took aft...

          Friday at 5:19 PM view post
          • Dlynn1210 has replied to a post on the message board

            Hi John - I’ve been around so long and forget that not everyone is aware that I was a Speech Pathologist when I was diagnosed. I knew about the exercises but I also knew about VitalStim Therapy which was actually what got me back to eating after being on a feeding tube for a year. Not every Speech Pathologist is qualified to treat a patient with it though. I was truly blessed to have a friend and former classm...

            Friday at 2:21 PM view post
            • Dlynn1210 has replied to a post on the message board

              It is getting worse as it used to be sporatic coming for short period every few days and then to every day for short periods now it is with me almost constantly.   It seems to be worse at night and ifI lay on my right side, the tingling eases up some.  I need to look up what someone had called it but it appeared to be nerve damage which makes sense.   I am going look into it a little more as it is wit...

              July 11 at 9:28 PM view post
              • Dlynn1210 has replied to a post on the message board

                I am 11 years out (diagnosed with tonsil cancer in 2007) and the one thing I have found to work miracles for my swallowing issues are Rigid Esophageal Dilations.  As I get older, they are required a little more often but they are on an outpatient basis with almost immediate results. I had three dilations post treatment in the years post treatment but I was unaware that there are two types.  Then I moved to...

                July 11 at 8:08 PM view post
                • Dlynn1210 has replied to a post on the message board

                  I was on a feeding tube for a year post treatment for tonsil cancer. What enabled me to get back to swallowing food was Vita Stim Treatments from a Speech Pathologist - one who was trained in Vita Stim. Masters Degree Programs in Communication Science and Disorders (Speech Pathology) include extensive anatomy studies. I was blessed to have a former classmate, a Speech Pathologist in a local hospital, work with me....

                  April 29 at 7:16 PM view post
                  • Dlynn1210 has replied to a post on the message board

                    Hi Steve I know how easy it is to say don’t worry and I also know how tough it is to wait for an appointment. Waiting from Wednesday to Monday seemed more like a month to me. Then waiting for six weeks before beginning treatment after my diagnosis was beyond stressful. The one positive I can offer is if it were the ‘worst case scenario’ possible, tonsil cancer is an extremely slow growing cance...

                    April 24 at 11:18 PM view post
                    • Dlynn1210 has replied to a post on the message board

                      Julian You are such an inspiration for those living with GBM. Mary had her last MRI on Saturday and I am taking her to see her local oncologist this afternoon. As usual, she is anxiously awaiting the results and for the first time I am a little concerned as I have seen what appears to be a couple of steps backward the last few weeks - a more disheveled appearance and memory loss. She commented that if there ar...

                      April 13 at 3:18 PM view post
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                      About Dlynn1210

                      Patient
                      Head and Neck Cancer, Tonsils Cancer

                      I am married and the mother of five grown children and 14 grandchildren. I was diagnosed in 2007 with SCC of the left tonsil and have been a member of CC since shortly after beginning treatment. I underwent Cisplatin chemo and TOMO radiation at CTCA in Zion, IL and received my last clean scan in Sept 2016. I found a wonderful support system on CC who really understood what I was going through and come back often to offer words of encouragement to those who are now traveling where I have been. I thank God daily for guiding me to CTCA and for guiding me to Cancer Compass. I had a tremendous support system with family and friends but there are not enough words to describe how I feel about my CC family other than to say I would not have made it through as well as I did without you.

                      UPDATE - I am now
                      9 years cancer free. No more scans just annual checkups with blood work completed!!!

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