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Dodgerblue's Recent CancerCompass Activity

  • Dodgerblue has replied to a post on the message board

    Radiation treatment caused inflammation, which can make smyptoms worse during and in the weeks following radiation.  It should improve as time goes on. Dodger

    August 02 at 9:00 PM view post
    • Dodgerblue has replied to a post on the message board

      Thank you for sharing Glue.  While, your posts may not inspire hope.  It's a very real look at what these tumors can do to people and their devastating effects.  It has surely served to remind me of how lucky I am presently.  It sounds like you and you wife are doing all you can for him.  Best of luck, Dodger

      July 31 at 1:18 PM view post
      • Dodgerblue has replied to a post on the message board

        Having or not having certain biomarkers, doesn't mean chemo will or won't work.  There are no fixed rules.  It only indicates that may have a better chance of being effective.  Olig's are very slow growing, enjoy life and get your scheduled MRI's.  There is no reason you can't live to a ripe old age. Dodger

        July 25 at 2:04 PM view post
        • Dodgerblue has replied to a post on the message board

            As far as support groups, they are definitely out there!  We have two different ones run out of little ct., so you should be able to find one close I'd think.  The one I attend is open to survivors and caregivers, the two groups generally split up for the meeting though.  I'd suggest both your parents go and even you a your siblings, at least once.  It's nice to meet others going through th...

          July 25 at 1:58 PM view post
          • Dodgerblue has replied to a post on the message board

            First off, he should seek a 2nd and possibly a 3rd opinion from a major brain tumor center.  Where are you guys living?   dodger

            July 20 at 9:24 PM view post
            • Dodgerblue has replied to a post on the message board

                While radiation and chemo will making him very tired, it is a painless process, at least it was for me.  Anti-nausau meds used correctly will eliminate nausau as well. dodger

              July 17 at 1:52 PM view post
              • Dodgerblue has replied to a post on the message board

                I would not recommend staying on chemo indefinitely.  I also don't think it's a hoax.  My NO Dr. Wen of Dana-Farber told me there is no evidentce that doing the maintence chemo for more than 6 is beneficial.  I would strongly recommend doing the 6 month though.  Were his surgeons able to remove all visible tumor?  If so, radiation and chemo are designed to kill or put remaining cancer cells i...

                July 13 at 3:39 PM view post
                • Dodgerblue has replied to a post on the message board

                    It sounds like steriods would be the better option vs. Opiads.  While steriods do have side effects, the risks of addiction with strong opiads pale in comparison. Dodger

                  July 03 at 2:00 PM view post
                  • Dodgerblue has replied to a post on the message board

                    There is absolutely no doubt that Marijuana is effective in helping with treatment side effects!  There is evidence, mind you in petrie dishes, that in concentrated forms it may actually have a treatment benefit with brain cancer.  This is being studied, not nearly enough though.  Many survivor's have added this concentrate to their "collective" treatment approach.   Dodger

                    June 28 at 5:17 PM view post
                    • Dodgerblue has replied to a post on the message board

                      Hi Andrew,    It sounds like you have already overcome a lot!  For your age, your should be able to withstand radiation and Chemo quite well.  Radiation shouldn't age your brain 10 years.  Whole brain radiation may have this effect, but if they are focusing radiation on tumor cavity and margins it shouldn't.  Your will be tired and your short term memory will be lousy during radiation, ...

                      June 26 at 1:03 PM view post
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                      About Dodgerblue

                      Patient, Survivor
                      Brain Cancer
                      Clinical Trials and Research, Acupuncture, Alternative Treatments, Cancer Nutrition, Cancer Treatments, Diet, Massage Therapy, Naturopathic Medicine, Recipes, Supplements

                      I'm a 41 year old man, married, 3 sons, 21,16,15.
                      12/8/13- dx with brain tumor thought to be Grade 2 Astrocytoma.

                      1/8/14-Full resection of small chicken egg sized tumor from right parietal lobe @ John's Hopkins

                      1/23/14-Pathology results indicate Grade 3 astrocytoma. I'm negative for IDH1 protein, MGMT Unmethylated, and I do not have the 1p19p codeletion.

                      2/13/14-Imrt 5 field radiation 5 day/week and daily temador begin.

                      4/1/14-6 weeks of radiation and Temador finish.

                      4/24/14-first MRI in 105 days...ALL CLEAR!

                      4/28/14- first monthly cycle of Temador @ 320mg

                      6/1/14- half marathon 1:55:30

                      6/2/14- second monthly cycle of Temador @410 mg, which sucked!

                      6/24/14- Another clean MRI!

                      7/4/14- third monthly cycle of temador @400 mg, managed better this month than last.

                      8/2,3- PMC weekend! Rode hard for 145 miles before a violent tire blowout and crash, but no serious injuries to report. Raised over 7800$ for adult brain tumor research :)

                      8/8/14- finished 4th monthly cycle of Temador.

                      10/11/14-Hartford half marathon run in 1:50:37

                      10/12/14 - starting 6th and final cycle of Temador.

                      10/30/14 - another clear MRI, informed my original pathlogy report had false negative test for IDH1 muatation. I do have the mutation, which is a good thing.

                      11/5/15 - Another clear MRI, coming up on 2 years of survivorship!

                      3/16 MRI's continue to look good.

                      4/7/16 Start thru hike of appalachian trail!

                      7/12 After 1498 miles hiked, I've gotten what I needed from this adventure. I'm going home to heal up the body.

                      7/28/16-Clear MRI :)

                      11/8/16-Clear MRI

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