I'm a 41 year old man, married, 3 sons, 20,16,14.
12/8/13- dx with brain tumor thought to be Grade 2 Astrocytoma.
1/8/14-Full resection of small chicken egg sized tumor from right parietal lobe @ John's Hopkins
1/23/14-Pathology results indicate Grade 3 astrocytoma. I'm negative for IDH1 protein, MGMT Unmethylated, and I do not have the 1p19p codeletion.
2/13/14-Imrt 5 field radiation 5 day/week and daily temador begin.
4/1/14-6 weeks of radiation and Temador finish.
4/24/14-first MRI in 105 days...ALL CLEAR!
4/28/14- first monthly cycle of Temador @ 320mg
6/1/14- half marathon 1:55:30
6/2/14- second monthly cycle of Temador @410 mg, which sucked!
6/24/14- Another clean MRI!
7/4/14- third monthly cycle of temador @400 mg, managed better this month than last.
8/2,3- PMC weekend! Rode hard for 145 miles before a violent tire blowout and crash, but no serious injuries to report. Raised over 7800$ for adult brain tumor research :)
8/8/14- finished 4th monthly cycle of Temador.
10/11/14-Hartford half marathon run in 1:50:37
10/12/14 - starting 6th and final cycle of Temador.
10/30/14 - another clear MRI, informed my original pathlogy report had false negative test for IDH1 muatation. I do have the mutation, which is a good thing.
11/5/15 - Another clear MRI, coming up on 2 years of survivorship!
3/16 MRI's continue to look good.
4/7/16 Start thru hike of appalachian trail!
7/12 After 1498 miles hiked, I've gotten what I needed from this adventure. I'm going home to heal up the body.
7/28/16-Clear MRI :)