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Dodgerblue's Recent CancerCompass Activity

  • Dodgerblue has replied to a post on the message board

    It was the suggestion of my nuero oncologist, Dr. Wen out of Dana Farber in Boston.  Very well known and respected in field.  He explained standard treatment is 6 or 12 months, however, he said there is no statistisical evidence staying on longer than 6 months is beneficial. Your doctor's approach seems antiquated.  No, I didn't want to be taking a poison any longer than nessasary.  As far as life...

    Thursday at 4:19 PM view post
    • Dodgerblue has replied to a post on the message board

      click on link in post above yours, should bring you right to it. dodger

      April 17 at 6:08 PM view post
      • Dodgerblue has replied to a post on the message board

        I also had AA3 brain tumor.  Surgery, 6 weeks radiation/concurrent daily chemo, followed by 6 months of monthly chemo regimen.  This is standard treatment plan for most everyone.  I've been off all treatment for 2 years and remain recurrence free.  Any more questions let me know. Dodger

        April 15 at 3:29 PM view post
        • Dodgerblue has replied to a post on the message board

          Duke is absolutely top notch!  Whether Dr. Friedman's bed side manner is lacking is a moot point.  They are leading the way in treating this disease.  I'd would definitely look into it. Dodger

          April 12 at 2:11 PM view post
          • Dodgerblue has replied to a post on the message board

            Duke is absolutely top notch!  Whether Dr. Friedman's bed side manner is lacking is a moot point.  They are leading the way in treating this disease.  I'd would definitely look into it. Dodger

            April 12 at 2:10 PM view post
            • Dodgerblue has replied to a post on the message board

              I'm just curious, where is her pain?   Dodger

              April 10 at 1:38 PM view post
              • Dodgerblue has replied to a post on the message board

                From what I could find, 4-6 weeks without food before death.   Dodger 

                April 09 at 12:55 PM view post
                • Dodgerblue has replied to a post on the message board

                    I'm not exactly sure what you mean by "aggressive", but any phyical abuse or threats of violence should be taken very seriously and not tolerated!  If law enforcement needs to be involved, so be it.  Best of luck, Dodger

                  March 24 at 1:33 PM view post
                  • Dodgerblue has replied to a post on the message board

                      I know a 9 year gbm survivor who has chosen to stay on Temador for the last 9 years!  I know several suvivor's who have stayed on for years in fact.  A safety blanket of sorts I guess.  For me, I couldn't wait to stop taking poison, which it essentially is, although certainly has it's purposes.  I've been off all treatment for 3 years and remain recurrence free.  I also have no visible...

                    March 22 at 6:15 PM view post
                    • Dodgerblue has replied to a post on the message board

                      I'm terribly sorry to hear your story!  This is a very unpredictable disease.  A AA3 dx with IDH1 and resection, indicates a better prognosis, but clearly every case is very different.  I'm so sorry.  Stay strong for each other and her. Dodger

                      March 10 at 5:17 PM view post
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                      About Dodgerblue

                      Patient, Survivor
                      Brain Cancer
                      Clinical Trials and Research, Acupuncture, Alternative Treatments, Cancer Nutrition, Cancer Treatments, Diet, Massage Therapy, Naturopathic Medicine, Recipes, Supplements

                      I'm a 41 year old man, married, 3 sons, 20,16,14.
                      12/8/13- dx with brain tumor thought to be Grade 2 Astrocytoma.

                      1/8/14-Full resection of small chicken egg sized tumor from right parietal lobe @ John's Hopkins

                      1/23/14-Pathology results indicate Grade 3 astrocytoma. I'm negative for IDH1 protein, MGMT Unmethylated, and I do not have the 1p19p codeletion.

                      2/13/14-Imrt 5 field radiation 5 day/week and daily temador begin.

                      4/1/14-6 weeks of radiation and Temador finish.

                      4/24/14-first MRI in 105 days...ALL CLEAR!

                      4/28/14- first monthly cycle of Temador @ 320mg

                      6/1/14- half marathon 1:55:30

                      6/2/14- second monthly cycle of Temador @410 mg, which sucked!

                      6/24/14- Another clean MRI!

                      7/4/14- third monthly cycle of temador @400 mg, managed better this month than last.

                      8/2,3- PMC weekend! Rode hard for 145 miles before a violent tire blowout and crash, but no serious injuries to report. Raised over 7800$ for adult brain tumor research :)

                      8/8/14- finished 4th monthly cycle of Temador.

                      10/11/14-Hartford half marathon run in 1:50:37

                      10/12/14 - starting 6th and final cycle of Temador.

                      10/30/14 - another clear MRI, informed my original pathlogy report had false negative test for IDH1 muatation. I do have the mutation, which is a good thing.

                      11/5/15 - Another clear MRI, coming up on 2 years of survivorship!

                      3/16 MRI's continue to look good.

                      4/7/16 Start thru hike of appalachian trail!

                      7/12 After 1498 miles hiked, I've gotten what I needed from this adventure. I'm going home to heal up the body.

                      7/28/16-Clear MRI :)

                      11/8/16-Clear MRI

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