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Dodgerblue's Recent CancerCompass Activity

  • Dodgerblue has replied to a post on the message board

    I was diagnosed at 38, tumor was 5x6 cm in RT. parietal lobe.  Got to retire after diagnosis, just enjoying life now. Dodger

    January 13 at 5:23 PM view post
    • Dodgerblue has replied to a post on the message board

      Welcome,   It sounds like your case was similiar to mine.  I'm assuming your going to undergo radiation and 6-12 month of Chemotherapy?  That is standard treatment anyway.  Your prognosis should be quite good, despite whatever statisitics you may come across.  I'm 4 years out since DX and have been recurrence free thus far.  Not sure why your contrast in MRI didn't light up...  As ...

      January 11 at 3:39 PM view post
      • Dodgerblue has replied to a post on the message board

        Long term survivorship statistics don't exist for brain cancer, never seen anything over 5 years, but these cases do exist.  I agree, statistics are basically useless as every case is different and no two people will have the same journey.  Best of luck, Dodger

        January 10 at 2:40 PM view post
        • Dodgerblue has replied to a post on the message board

          Your parents were married for 50 years, while you may still be dealing with their separation and circumstances surrounding it, I think they should be allowed to come and say goodbye. Dodger

          January 10 at 2:36 PM view post
          • Dodgerblue has replied to a post on the message board

            This is an interesting discussion that isn't often discussed here.  Balancing quality of life vs. partaking in any and all treatments that may prolong life.  The answer to this question is probably different for everyone,  but is definitely something that should be discussed and considered when on this journey. Dodger

            December 22 at 3:26 PM view post
            • Dodgerblue has replied to a post on the message board

              I would seek a 2nd and 3rd opinion from a couple top notch brain cancer centers.  Where did you get your initial diagnosis and treatment plan? dodger

              December 11 at 2:29 PM view post
              • Dodgerblue has replied to a post on the message board

                Yes, I took it concurrently daily dose during radiatiion and the monthly regimen for 6 months following.  The anti nausea meds are very effective, he should take it with antinausea before bed.  Most people tolerant it very well.  He may have a loss of appetite, but this chemo is much less harsh than traditional IV chemo used for other types of cancer.   Dodger

                December 11 at 2:26 PM view post
                • Dodgerblue has replied to a post on the message board

                  Try sending her a private message. dodger

                  December 01 at 3:36 PM view post
                  • Dodgerblue has replied to a post on the message board

                    Mine was roughly the size of a chicken egg. dodger

                    November 29 at 2:34 PM view post
                    • Dodgerblue has replied to a post on the message board

                      There are many long term surivivors of this disease!  20 years plus since diagnosis, without recurrence.  I would suggest she get her latest MRI revealing regrowth reviewed at some top notch brain surgery centers.  Duke, John Hopkins, etc.  Dodger

                      November 26 at 4:37 PM view post
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                      About Dodgerblue

                      Patient, Survivor
                      Brain Cancer
                      Clinical Trials and Research, Acupuncture, Alternative Treatments, Cancer Nutrition, Cancer Treatments, Diet, Massage Therapy, Naturopathic Medicine, Recipes, Supplements

                      I'm a 41 year old man, married, 3 sons, 21,16,15.
                      12/8/13- dx with brain tumor thought to be Grade 2 Astrocytoma.

                      1/8/14-Full resection of small chicken egg sized tumor from right parietal lobe @ John's Hopkins

                      1/23/14-Pathology results indicate Grade 3 astrocytoma. I'm negative for IDH1 protein, MGMT Unmethylated, and I do not have the 1p19p codeletion.

                      2/13/14-Imrt 5 field radiation 5 day/week and daily temador begin.

                      4/1/14-6 weeks of radiation and Temador finish.

                      4/24/14-first MRI in 105 days...ALL CLEAR!

                      4/28/14- first monthly cycle of Temador @ 320mg

                      6/1/14- half marathon 1:55:30

                      6/2/14- second monthly cycle of Temador @410 mg, which sucked!

                      6/24/14- Another clean MRI!

                      7/4/14- third monthly cycle of temador @400 mg, managed better this month than last.

                      8/2,3- PMC weekend! Rode hard for 145 miles before a violent tire blowout and crash, but no serious injuries to report. Raised over 7800$ for adult brain tumor research :)

                      8/8/14- finished 4th monthly cycle of Temador.

                      10/11/14-Hartford half marathon run in 1:50:37

                      10/12/14 - starting 6th and final cycle of Temador.

                      10/30/14 - another clear MRI, informed my original pathlogy report had false negative test for IDH1 muatation. I do have the mutation, which is a good thing.

                      11/5/15 - Another clear MRI, coming up on 2 years of survivorship!

                      3/16 MRI's continue to look good.

                      4/7/16 Start thru hike of appalachian trail!

                      7/12 After 1498 miles hiked, I've gotten what I needed from this adventure. I'm going home to heal up the body.

                      7/28/16-Clear MRI :)

                      11/8/16-Clear MRI

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