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Dodgerblue's Recent CancerCompass Activity

  • Dodgerblue has replied to a post on the message board

    The chances of a low grade glioma growing enough in a 3 month period to cause symptoms are low, but not impossible. If you have a tumor it's growing, but if low grade, probably at a very slow rate.  I had no symptoms until my tumor was the size of a chicken egg and then one day my entire left side was a bit off.  Symptoms will very greatly depending on location of tumor. Dodger

    October 10 at 12:36 PM view post
    • Dodgerblue has replied to a post on the message board

      If your tumor has returned and to it's original size, the cells are certainly not inactive.  I would look into getting another resection if possible and find out if disease has progressed to higher grade. If your doctor is unsupportive or uncooperative, find another.  Best of luck, dodger

      October 09 at 1:27 PM view post
      • Dodgerblue has replied to a post on the message board

        I would have serious doubts about this treatment being effective for GBM, but depending on cost it sounds like there isn't much downside. Best of luck, Dodger

        September 27 at 2:21 PM view post
        • Dodgerblue has replied to a post on the message board

          Depending on tumor location, personality changes can certainly occur.  Processing this DX can be difficult, lashing out may be an unhealthy result of trying to get a grasp on this new reality. Dodger

          September 27 at 2:16 PM view post
          • Dodgerblue has replied to a post on the message board

            In my opinion, surgeons are the one's to travel for.  I'd simply ask Tabor or his oncology team the recommended radiation treatment and then find out if Albany can provide that treatment.  Radiation is 5 days a week for 6 weeks, usually in combonation with a daily oral chemo.  Staying local would be ideal if albany can provide recommended treatment.   Best of luck, dodger

            August 25 at 1:48 PM view post
            • Dodgerblue has replied to a post on the message board

              Radiation treatment caused inflammation, which can make smyptoms worse during and in the weeks following radiation.  It should improve as time goes on. Dodger

              August 02 at 9:00 PM view post
              • Dodgerblue has replied to a post on the message board

                Thank you for sharing Glue.  While, your posts may not inspire hope.  It's a very real look at what these tumors can do to people and their devastating effects.  It has surely served to remind me of how lucky I am presently.  It sounds like you and you wife are doing all you can for him.  Best of luck, Dodger

                July 31 at 1:18 PM view post
                • Dodgerblue has replied to a post on the message board

                  Having or not having certain biomarkers, doesn't mean chemo will or won't work.  There are no fixed rules.  It only indicates that may have a better chance of being effective.  Olig's are very slow growing, enjoy life and get your scheduled MRI's.  There is no reason you can't live to a ripe old age. Dodger

                  July 25 at 2:04 PM view post
                  • Dodgerblue has replied to a post on the message board

                      As far as support groups, they are definitely out there!  We have two different ones run out of little ct., so you should be able to find one close I'd think.  The one I attend is open to survivors and caregivers, the two groups generally split up for the meeting though.  I'd suggest both your parents go and even you a your siblings, at least once.  It's nice to meet others going through th...

                    July 25 at 1:58 PM view post
                    • Dodgerblue has replied to a post on the message board

                      First off, he should seek a 2nd and possibly a 3rd opinion from a major brain tumor center.  Where are you guys living?   dodger

                      July 20 at 9:24 PM view post
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                      About Dodgerblue

                      Patient, Survivor
                      Brain Cancer
                      Clinical Trials and Research, Acupuncture, Alternative Treatments, Cancer Nutrition, Cancer Treatments, Diet, Massage Therapy, Naturopathic Medicine, Recipes, Supplements

                      I'm a 41 year old man, married, 3 sons, 21,16,15.
                      12/8/13- dx with brain tumor thought to be Grade 2 Astrocytoma.

                      1/8/14-Full resection of small chicken egg sized tumor from right parietal lobe @ John's Hopkins

                      1/23/14-Pathology results indicate Grade 3 astrocytoma. I'm negative for IDH1 protein, MGMT Unmethylated, and I do not have the 1p19p codeletion.

                      2/13/14-Imrt 5 field radiation 5 day/week and daily temador begin.

                      4/1/14-6 weeks of radiation and Temador finish.

                      4/24/14-first MRI in 105 days...ALL CLEAR!

                      4/28/14- first monthly cycle of Temador @ 320mg

                      6/1/14- half marathon 1:55:30

                      6/2/14- second monthly cycle of Temador @410 mg, which sucked!

                      6/24/14- Another clean MRI!

                      7/4/14- third monthly cycle of temador @400 mg, managed better this month than last.

                      8/2,3- PMC weekend! Rode hard for 145 miles before a violent tire blowout and crash, but no serious injuries to report. Raised over 7800$ for adult brain tumor research :)

                      8/8/14- finished 4th monthly cycle of Temador.

                      10/11/14-Hartford half marathon run in 1:50:37

                      10/12/14 - starting 6th and final cycle of Temador.

                      10/30/14 - another clear MRI, informed my original pathlogy report had false negative test for IDH1 muatation. I do have the mutation, which is a good thing.

                      11/5/15 - Another clear MRI, coming up on 2 years of survivorship!

                      3/16 MRI's continue to look good.

                      4/7/16 Start thru hike of appalachian trail!

                      7/12 After 1498 miles hiked, I've gotten what I needed from this adventure. I'm going home to heal up the body.

                      7/28/16-Clear MRI :)

                      11/8/16-Clear MRI

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