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Georgenone's Recent CancerCompass Activity

  • Georgenone has replied to a post on the message board

    Never underestimte what omeprazole can or will do. I took it for about 8 years. Had all kinds of GI issues. Doctors blamed issues on what I ate and lack of water and opoids. I tried to argue that this was not dietary or dehydration. I was slowly loosing weight. My labs started to show I was anemic then in need of folic acid and I ended up with metformin for diabetes. List of issues and supplements was growing. Every...

    December 11, 2018 view post
    • Georgenone has replied to a post on the message board

      I understand the urgent desire for an oncologist. Part of this is panic and fear created by cancer. At this point you are not certain what you may be in need of.  The biopsy is very important to determine what type of oncologist you need. After biopsy, if cancer is found, you may be refered to a surgical oncologist for surgery and or a medical oncologist for chemo. 11-29 is a somewhat of a long wait when cancer...

      October 17, 2018 view post
      • Georgenone has replied to a post on the message board

        I agree with this but I also disagree. I had radiation in 98 and thought it was a brutal treatment. In 07 I had radiation and chemo. It was simple and easy. The worst thing radiation did was put a mild sunburn on my neck. Chemo provided an itchy rash for a while but all in all I could not believe how easy it was. Radiation twice does have long term effects that show up years later. Neck dissections, laryengectomy a...

        August 11, 2018 view post
        • Georgenone has replied to a post on the message board

          I had radiation but it was before esophageal cancer. All I could get for esophageal cancer was cisplatin with 5FU. Upset stomach & stomach aches for about 3 months after the chemo. I had a feeding tube put in because esophageal dilations were useless. The feeding tube was a source of pain and irritation for about 6 months. Over the last couple of months all stomach issues are gone.

          August 11, 2018 view post
          • Georgenone has created a new message board discussion

            I have been on levothyroxine for years. I was told my thyroid does not function well after radiation. I have never questioned this. Thyroid issues after radiation seem to be quite common. Doctors and I have had many disagreements over the years.  Many times I've been told I do not understand the issue or do not correctly recall what was said. Ok, with cancer sometimes people do have difficulty comprehending the...

            August 09, 2018 view discussion
            • Georgenone has replied to a post on the message board

              I have the same issues with BP. Started several years after surgery and treatment. 68/44 is common after I'm up about 6 hours. High numbers above 200 were common for about a year but now my day starts at 160 to 165 and suddenly drops. When your BP is suddenly cut in half it has a tendency to put you on the floor without warning. My doctors have mostly ignored these issues. They checked blood flow through the neck and...

              August 09, 2018 view post
              • Georgenone has replied to a post on the message board

                Yes , radiation is truely remarkable. It's a great treatment but it's also horrible. 1998 I had radiation for cancer in thr larynx. I experienced severe burning of the neck but for the next 10 years the only issue was dry mouth. 2007 I had  a laryngectomy and glossectomy with a forearm freeflap for repair. More radiation. Somewhere in this mix my dry mouth was cured with what is now an abundance of saliva. Rad...

                June 22, 2018 view post
                • Georgenone has replied to a post on the message board

                  14 rads and 2 rounds of chemo is a drop in the bucket ! If doctors believe this is all you need do not pass it up. Everyone's cancer is different. What you ask is a simple matter of choices.  I had base of tongue cancer and waited 3 months to start chemo and radiation. That was 10 years ago and I have never regreted that choice. In my case it was not really a choice, it was what I asked for. I had a lot more s...

                  June 22, 2018 view post
                  • Georgenone has commented on a news story

                    It is not all bull or nonsence, Chucksan, You had good insurance ! Much of or part of the problem Is places like Mayo Clinic in Minnesota That will not accept Medicare and Medicade patients from othe states. The segement of people left out tend to be black and elderly because the are the base of Medicare and Medicade patients. When I had to switch from a Cigna plan to Medicare I quickly learned how many doctors wil...

                    September 28, 2017 view news story
                    • Georgenone has replied to a post on the message board

                      Normal 0 Susan, I have read many of your posts and they appear informative and tastefully written. Thank you. Yes arteries were removed. After previous surgery I healed with no major issues but I also had 3 months between surgery and radiation. At that time I told the doctor I wanted healing time prior to radiation. Prior to radiation for first cancer doctors made healing after radiation sound v...

                      September 28, 2017 view post
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                      About Georgenone

                      Patient
                      Laryngeal Cancer
                      After Treatment, Alternative Treatments, Cancer Treatments, Chemotherapy, Emotional Support, Radiation, Recipes, Side Effects

                      In 1996 they said it was a sinus problem. 2 years later I got rather rude and told them I did not have a sinus problem. By the end of the day they had sent in a king kong sized orderly to tell me they found cancer. Radiation turned my neck into a crispy critter but for the next 9 years life was grand. Aug 2007 new issues. In Nov 2007 doctor said base of tongue tumor. Recommended surgery for base of tongue and said a laryngectomy was necessary before I could take a second course of radiation treatments and neck dissections. Went to primary doctor and asked for referral to get a second opinion on treatment. He flatly said no it would not happen. Strange thing was I had no pain or problem associated with the tongue. Surgery did not end as anticipated. Laryngectomy, glossectomy, partial soft palletectomy, left and right neck dissections. In the end they gave me a line of crap about what I needed. I feel like they butchered my neck and didn't even get the problem I was there for. All the pain and problems prior to surgery were still there. In Mar 2008 they labeled it recurrnet cancer. 6 weeks of IMRT. 6 months of carbo and erbitux. They tell me how great I'm doing. My view is a little different: Life's a bitch! But I'm still alive.
                      More cancer! 9/2017 total pharyngectomy, neck dissection and part of esophagus removed. Radiation not possible I've had the lifetime limit. Only 4 rounds of chemo and I quit. The side effects were too severe. Chemo has made life miserable at best.

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