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I-am-hurting's Recent CancerCompass Activity

  • I-am-hurting has replied to a post on the message board

    Thanks to all for the information and good advice. :) I appreciate it.

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    • I-am-hurting has replied to a post on the message board

      Hey Ducks-in-Row, that's what my Dad is taking.

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      • I-am-hurting has replied to a post on the message board

        Thanks everyone! He loves to travel, so it's good to know flying is something that can probably happen. I am worried about seizures. He is taking a heavy dose of meds to prevent that, but you never know. If he knows the risks/possible scenarios and still wants to press on with a trip, then he should . : )

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        • I-am-hurting has created a new message board discussion

          I have a question for you wonderful folks. Can a person with glioblastoma take a trip in an airplane safely? My father has an inoperable tumor, and he is talking about wanting to take a very long -more than 4 hour- flight.  I have plenty of other reservations with this idea, but I am extra concerned about the safety of flying under these circumstances.

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          • I-am-hurting has replied to a post on the message board

            Yes, jon4156, wholeheartedly agree. It was me and my Brother that were sitting in the hospital when the first tumor was removed, when the doctor said it was cancer, when he had a seizure, etc... NOT his friends. And you know what? We were totally alone. Now, I am not purposely bitter. I swear, I can't help that part. I am sure his friends are also careful where to step, and happy to help when Dad asks. They probably...

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            • I-am-hurting has replied to a post on the message board

              Thanks Ducks-n-Row, I needed to hear that. I know it seems contradictory, but I feel like he is hiding- then I wonder if I am not really being there for him like a good child should. It's more like walking on a tightrope coated in eggshells, I guess.

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              • I-am-hurting has replied to a post on the message board

                I have one Brother, and you are like us- we can tell when the other has been flattened. We do have permission to talk to doctors, and I believe it's getting to the point where if we have to keep being afraid to ask- we will have to just go find out. We just don't want to be disrespectful of his dignity, but safety and reason count as well.  

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                • I-am-hurting has replied to a post on the message board

                  Shoot, I wrote a longer response, and lost it. Thank you for the kind hearted response, and helpful advice. I certainly feel like I am on a nauseating carousel ride, I am at a loss of what to do sometimes. I am sorry anyone feels this way or has to go through the same situation, but sometimes the experience of others is the only thing that can be a guide.

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                  • I-am-hurting has created a new message board discussion

                    My Dad was diagnosed with glioblastoma almost a year ago. He had a seizure in August that was bad, but he has been doing work and going on since then- though we were told the cancer had spread in spite of radiation and chemo right after that seizure. He has since kept his doctor visits private- he takes friends rather than his kids. He reveals nothing to his family about the MRI's (He's getting them monthly). His tem...

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