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KB-Austin's Recent CancerCompass Activity

  • KB-Austin has replied to a post on the message board

    Good luck all on the scans!  I remember it well - my sister's husband had GBM and kept it at bay for over 5 years.  They did scans every month, held their breath, and breathed a sigh of relief (almost) every time.  You're right about learning to laugh, to love and live one day at a time.  Mike is fishing right now, with his buddies, in the Florida Keys - we've figured out that the 3rd week after c...

    May 17 at 3:36 PM view post
    • KB-Austin has replied to a post on the message board

      That is fantastic news!  Mike's tumor is (supposedly) not operable although we may get another opinion.  So glad to hear about your son.  Mike's son also has cancer - t-cell lymphoma - and just underwent stem cell transplant.  He came through it and also has the best attitude in the world.  Hopefully he will be cancer free as a result.  

      May 16 at 8:20 PM view post
      • KB-Austin has replied to a post on the message board

        Checking in to see how you are dong Keithge and Suz222.  Mike completed his radiation and chemo and is now doing just chemo even though he is MGMT unmethylated.  Mike is  Diffuse Astrocytoma, Stage 2, IDH Wildtype, MGMT Unmethylated, EFGR Amplified, PK53 Mutated.  There are so many things that they still don't know about these things but they are learning more and more each day.  Curious what...

        May 16 at 6:18 PM view post
        • KB-Austin has replied to a post on the message board

          I'm grateful to hear that your sister has been 13 years since her original diagnosis of grade 2 diffuse astrocytoma - and so very sorry to hear of the recurrance.  My sister's husband survived GBM for 5 years.  Temador didn't work for him, Optune didn't work for him, but Avastin did.  I think it comes down to individual chemistry & genetics.  Impossibly, my husband was recently diagnosed with ...

          April 05 at 6:19 PM view post
          • KB-Austin has replied to a post on the message board

            My husband has an IDH-wildtype glioma that is basically acting like a GBM.  Where are you getting these treatments approved?  Need to talk to my insurance company or just find out where to purchase some of these products.  I do believe everyone is different, and every "cocktail" needs to be custom made for the patient and their chemistry.   Thanks for the info.

            March 16 at 2:31 AM view post
            • KB-Austin has replied to a post on the message board

              Wishing you the best as well. I am doing lots of research while my husband is busy being positive and doing well with his treatments.  He enjoys every day and trusts that all will be well.  I wish I could be him, but do believe that blessings can be found in every situation ... you just need to look for them.  Since you seem curious here are a few articles I have uncovered. https://www.ncbi.nlm.nih.g...

              March 16 at 2:18 AM view post
              • KB-Austin has replied to a post on the message board

                My husband (56) was diagnosed with the same (diffuse astrocytoma stage 2 IDH wildtype) a few weeks ago after a seizure.  The tumor is also inoperable due to it's location.  He is now on week 4 of a 6 week targeted radiation and chemotherapy (Temodar) plan which he is tolerating pretty well.  I'm glad to hear the stories of others having many years before their tumors returned.  We are hopeful, but...

                March 12 at 12:51 PM view post
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                About KB-Austin

                Caregiver
                Brain Cancer
                Alternative Treatments, Cancer Diagnosis, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Radiation, Side Effects

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