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KDvull13's Recent CancerCompass Activity

  • KDvull13 has replied to a post on the message board

    I’m so sorry to hear you have to experience this twice in your life. My mom was diagnosed with grade 4 GBM May of 2017, she had her surgery on May 5th, the surgeon got ‘most of the tumors’ and her treatment was the same as you’re describing. I was her caregiver until my dad could take an early retirement, and after all her surgeries and treatments I wanted her to take it easy too, and she would not relax! I know exa...

    July 03 at 5:32 PM view post
    • KDvull13 has replied to a post on the message board

      Leslie- sorry it took me so long to reply. I’m happy to hear you’re doing well! That’s so great. I know it’s a rough road for patients and their families and my heart breaks for people who have to face this reality. My moms shingles are healing well, after she got the shingles, she got the stomach flu, so I have been helping her as much as I can. She’s just miserable. Her oncologist put her chemo on hold until the s...

      June 25 at 6:28 AM view post
      • KDvull13 has replied to a post on the message board

        I’m so sorry to hear that, you must be so miserable and discouraged :( from what I’ve read it’s a more rare side effect. Do you mind if I ask a couple questions? If you do, you don’t have to reply I understand. Is this your second round of temodar? My mom is on the 5 days on, 3 weeks off schedule, and it’s her second round.. she got shingles on Wednesday so it’s almost been a week I guess, and it was right after her ...

        June 12 at 5:33 AM view post
        • KDvull13 has created a new message board discussion

          Hi all, my mom (now 66 yrs old) was diagnosed with grade 4 glioblastoma on May 5th 2017, she has had 3 surgeries, 6 weeks of radiation and chemo, and she just started her second round of temodar, and after her first 5 days, she got shingles as a side effect. Heartbreaking. Has anyone out there experienced this, or their loved one? Were they able to finish the treatment? Any advice? I appreciate it Thanks!

          June 11 at 6:47 AM view discussion
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