Loading...

Kcacompalley's Recent CancerCompass Activity

  • Kcacompalley has replied to a post on the message board

    I had partial vulvectomy and nodes from both groins removed on May 2017. Did great with surgery, then started radiation to get anything might be remaining the doctor said. 5 weeks of 5 days each and then the hell began, 2nd and 3rd degree burns to my otherwise healed great pelvic area. Burns continued to get worse 2 weeks after treatments ended! No one knew how to treat the wounds, nurses sent to my apartment said th...

    October 26 at 4:09 AM view post
    • Kcacompalley has replied to a post on the message board

      The one I found or found me is called Vulvar cancer awareness/fight like a girl. Hope that helps. I have just been typing in vulva cancer everywhere to see what comes up. Sometimes have to use gynecological, ovarian, vulva etc. karen

      August 11 at 3:01 PM view post
      • Kcacompalley has replied to a post on the message board

        Wow, 3 surgeries. Thank you for responding. Being alone in this is the hardest thing. My lymph nodes showed no spreading, so I am hoping for the radiation to keep recurrence to 0. I was told 3% chance after readiation. I am praying this is correct. My lymphocele was injected with Betadine yesterday to get it to heal. It has been 8 weeks with drainage every 2 weeks. It hurts way more than the surgical site as the ly...

        July 20 at 6:12 PM view post
        • Kcacompalley has replied to a post on the message board

          Worry takes the biggest toll of us! Keep following up as this is sneaky one. Hopefully you will improve with treatment and get back to some normalcy. Now back to land of living! So glad you went, relieves my mind too. :-) Thinking of you, Karen

          July 20 at 2:41 PM view post
          • Kcacompalley has replied to a post on the message board

            Yes, your symptoms are similar! Vulva cancer is very rare so not much information out there. Get checked now and find someone familiar with it! Sounds exactly like mine. Started with what I thought was ingrown hair, got very itchy, and I thought : cancer! Yup, I was right. My primary doc had never seen anything like it, sent me to gynecologist who took biopsy and sent me to gynecologist oncologist. It went fast f...

            July 17 at 11:58 PM view post
            • Kcacompalley has created a new message board discussion

              Had surgery, now starting Radiation. Soooo many questions and so little help. Surgeon does surgery then never hear from again even though have lymphoceles that need constant Intervention Ultrasound drainage. Vulva cancer is so humiliating and painful. Trying to find someone to talk with is difficult. Lay here trying not to cry and try to make myself get up and move. Anyone else out there with vulva cancer?

              July 17 at 10:03 PM view discussion
              • Kcacompalley has replied to a post on the message board

                Helen: Keep me informed, as I start my treatment. Maybe I will have tips for you. Had surgery and now radiation. No lymph involvement for me so I am blessed. Did have something strange on chest X-ray and CT that will be followed. It is tough but sooo worth it to get anonther day on this earth with my grandson. Karen

                July 17 at 9:58 PM view post
                • Kcacompalley has replied to a post on the message board

                  I had vulvar surgery in May 2017 and am now starting Radiation for it. Found a white spot on other side as doc only took off the left. She had said would do both, but didn't. I am hoping Radiation gets it all. Has been a rough road, but not as rough as some. Lots of good advice out here. Main thing is DONT DELAY. KAREN

                  July 17 at 2:09 PM view post
                  Loading...
                  Load more activity
                  Loading more activity

                  About Kcacompalley

                  Patient
                  Vulvar Cancer
                  Cancer Diagnosis, Cancer Treatments, Side Effects, Surgery

                  We care about your feedback. Let us know how we can improve your CancerCompass experience.