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KrisInk's CancerCompass Friends

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About KrisInk

Caregiver
Brain Cancer
Alternative Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support, Insurance, Lifestyle, Massage Therapy, Naturopathic Medicine, Recipes, Side Effects, Supplements

My dad was diagnosed with GBM following a craniotomy 5/28/10. He passed 10/31/11.

He initially underwent 6 wks radiation + low-dose Temodar. Took higher dose Temodar thereafter, but MGMT gene was activated and he was over the age of 70 (and the temodar alone was not effective). He entered into a clinical trial for Temodar+XL-765, but failed 12/2010 - due to significant tumor re-growth and swelling. He changed his diet dramatically, added various supplements, maintained exercise regimen, etc. My dad was treating at Cape Cod Hospital (not a good experience!) and Dana Farber Cancer Institute in Boston, MA. On 05/11/2011, my dad was told the tumor was growing significantly again - Avastin seemed to have failed. Tumor spreading to occipital lobe and brain stem, and the doctors estimated that he had 8-12 weeks left. He continued with Avastin for 3 more treatments, until 7/6/2011. We watched him deteriorate before our eyes. In Sept 2011, he began to tell us that he thought each day would be his last. Due to recurrent falls and inability to get out of bed without assist, he was moved to an in-patient hospice facility 10/07/2011. He passed away 10/30/2011 at 11:11 AM, 11 years to the day that my brother passed. Our grief is beyond words...we know we did all we could, that he did all he could, that GBM desperately needs to be cured. Love and miss you, Dad...

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