Lesliegbm's Recent CancerCompass Activity

  • Lesliegbm has replied to a post on the message board

    When diagnosed with GBM essentially yes, it was termed maintenance but I recall being asked if I understood that I would be on Temodar for as long as I was able to with stand it. In my case- after 2 years of chemo and no reoccurrence my NO decided to give my body a break/ as she said we don’t want to destroy your marrow and continue to keep MRIs Qtrly-that was a little more than 2 hrs ago- I have remained deseaseprog...

    Thursday at 10:14 PM view post
    • Lesliegbm has replied to a post on the message board

      Hi Mack1994- thanks so much for taking time to reply I read your thread history and was so encouraged by your journey It just helps to find someone out there walking in your shoes- though our form of brain cancer is slightly different and your track started earlier and with younger sons. i was 55 when I had my first resection (it happened to be on our25thwedding anniversary) with 2 girls inHS FIVE years later and Ou...

      October 02 at 4:16 PM view post
      • Lesliegbm has created a new message board discussion

        anyone else On forum dealing with what seems to be inability to cope with heat post surgeries/treatments? in addition to no longer having the multi-task and decisive abilities to drive I am also finding that I am heat intolerant and prone to pass out get sick. anyone else? LeslieGBM dx2013–

        September 18 at 8:48 PM view discussion
        • Lesliegbm has created a new message board discussion

          Those of us with GBM likely watched the John McCain news from pa different perspective. it was newsworthy that he was discontinuing treatment -but I wondered if there may have been a reoccurrence and he was opting not to undergo another surgery. however, the near spontaneous announcement of his death was a surprise -at least to me. on behalf of my loved ones who wait out word with us of every MRI- I find it disheart...

          August 27 at 8:52 PM view discussion
          • Lesliegbm has replied to a post on the message board

            glory to God !! joy how Beautiful —our God is worthy and This display of FAITH makes him smile. I remember an earlier post you made and thought how fitting your name is Joy. rejoicing with you! I also am living with a terminal diagnosis but even if God doesn’t heal me I fully TRUST that He never takes His eyes off me and will see me and my family through this until I’m carried Home. Just saw thin faithit.com A diam...

            June 28 at 3:28 PM view post
            • Lesliegbm has replied to a post on the message board

              mack1994 oh my- I am not familiar w the PCV treatment for your form of brain cancer but it sounds like you had a severe shingles case. with My oncologist was trying to clear my body of a cold before I started on my next round of Temodar. his large dose of antibiotics backfired giving me a terrible case of Thrush(understand why babies cry when they get this) then shingles broke out on my nose heading toward my eye Cr...

              June 17 at 11:50 PM view post
              • Lesliegbm has replied to a post on the message board

                hi KDvull- Just checking on you and your Mom hope and pray that her shingles are a mild case and she is doing well. If I can answer any otherquestions or encourage you both I am very willing and able. Your reply to my errant Post was so very kind I’m sorry that I was meant to be an encouraging post that I was past that terrible time and WAS able to continue Temodarand have had no reoccurrence PTL. may your Moms st...

                June 17 at 10:44 PM view post
                • Lesliegbm has replied to a post on the message board

                  Thanks for suggesting- no I have not consulted Nuevo PT Apreciate the reply and great to hear your husband is doing well- it IS God’s grace and for many prayer warriors storming heaven to keep me here

                  June 12 at 5:43 PM view post
                  • Lesliegbm has replied to a post on the message board

                    be encouraged!It didn’t change the chemo effect I-am 5yr long term survivor no reoccurrence But it was at the time a bummer I had completed radiation but was on the Maintenance protocol when I got it. my posts have been difficult on my iPhone so I am was not the intended reply to you. I’ve been past this set back. For some time after 2yrs of chemo I am now just having MRI s every3 mon. would love to be able to share ...

                    June 12 at 5:32 PM view post
                    • Lesliegbm has replied to a post on the message board

                      I am

                      June 11 at 7:23 PM view post
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                      About Lesliegbm

                      Brain Cancer
                      Cancer Diagnosis, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Emotional Support

                      55yo xmktgMgrDx GbmStg4Jan2014Dx was preceded by ER visit May2013 woke with audible seizure and headache CT scan showed mass in right temporal lobe craniotomy followed- complete resection-path -adult ependenoma Stg2 no treatment recommend frq MRIs to watch 4chgs Piedmont BrainTumor Ctr Jan'14MRI showed new growth Surgery#2 @ Piedmont-Path Gbmstg4 Began Stupp protocol Radiation 30 treatments 5/wk
                      for6wks concurrently wTemolozide
                      In March2014 began maintenance of Temolozide330mg 5 days every 4 was with MRI every 2months Stopped Chemo July2016still have MRIs every 3mon Jan2018 had craney#3 for B.B. size tissue at outer edge of prior surgery bed. pathology showed no malignancy- scar tissue only Hit 5 yr survival milestone Lots of prayers for me
                      no reoccurance as of may2018. but had subdural bleed that required drainMay17- possibly caused by prior surgeries No traumatic injury this was an acute bleed that had consistency of motor oil.

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