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Lesliegbm's Recent CancerCompass Activity

  • Lesliegbm has replied to a post on the message board

    mack1994 oh my- I am not familiar w the PCV treatment for your form of brain cancer but it sounds like you had a severe shingles case. with My oncologist was trying to clear my body of a cold before I started on my next round of Temodar. his large dose of antibiotics backfired giving me a terrible case of Thrush(understand why babies cry when they get this) then shingles broke out on my nose heading toward my eye Cr...

    June 17 at 11:50 PM view post
    • Lesliegbm has replied to a post on the message board

      hi KDvull- Just checking on you and your Mom hope and pray that her shingles are a mild case and she is doing well. If I can answer any otherquestions or encourage you both I am very willing and able. Your reply to my errant Post was so very kind I’m sorry that I was meant to be an encouraging post that I was past that terrible time and WAS able to continue Temodarand have had no reoccurrence PTL. may your Moms st...

      June 17 at 10:44 PM view post
      • Lesliegbm has replied to a post on the message board

        Thanks for suggesting- no I have not consulted Nuevo PT Apreciate the reply and great to hear your husband is doing well- it IS God’s grace and for many prayer warriors storming heaven to keep me here

        June 12 at 5:43 PM view post
        • Lesliegbm has replied to a post on the message board

          be encouraged!It didn’t change the chemo effect I-am 5yr long term survivor no reoccurrence But it was at the time a bummer I had completed radiation but was on the Maintenance protocol when I got it. my posts have been difficult on my iPhone so I am was not the intended reply to you. I’ve been past this set back. For some time after 2yrs of chemo I am now just having MRI s every3 mon. would love to be able to share ...

          June 12 at 5:32 PM view post
          • Lesliegbm has replied to a post on the message board

            I am

            June 11 at 7:23 PM view post
            • Lesliegbm has replied to a post on the message board

              hello Tiffcat I also am a LTS at 5 yrs post op and recently had similar symptoms of left foot drag and some droop in my smile. Husband called my NO and we went to get a CT scan as suggested My most recent MRI was clear. cT showed a large sub dural bleed. no explanation since I had not suffered any head trauma The neurosurgeon said the blood vessels connected with the dura covering of the brain are quite fragile part...

              May 28 at 5:01 PM view post
              • Lesliegbm has created a new message board discussion

                I was diagnosed May2013 with gBM have had no reoccurrence after standard treatment of Temador and radiation(GammaKnife). Five years out and thankful to have had many praying for me and a wonderful husband caring for me. I recently had a slight drooping my face and was dragging my foot Care team at Piedmont Brain Tumor suggested a CT and my Do was a large brain bleed - It’s in process of draining through a tube to rel...

                May 20 at 4:02 PM view discussion
                • Lesliegbm has replied to a post on the message board

                  There’s some great advice here esp Agree w Jon I was on Temodar for2 yrs blood work was never a problem but after 2yrs and no reoccurrence myNO suggested we give my body a break and continue with MRI’s. my eeg showed very significant slowdown of my brain rhythm- and neuropsychologist confirmed my decision to stop driving and exit the work force. My decision making and multi-task abilities are significantly impaired-...

                  April 10 at 7:48 PM view post
                  • Lesliegbm has replied to a post on the message board

                    hi Vanessa- your husband has everything going for him- as one wise soul advised accept the diagnosis but not the prognosis we are all individuals not statistics I went to the ER in2013 after an auditory seizure- our ceiling fan sounded like a helicopter they did a CT and found a right temporal mass- a good place for a tumor so they said easy to get to-Low grade ependymoma- no treatment just mRIs to track changes.In ...

                    April 03 at 6:18 PM view post
                    • Lesliegbm has replied to a post on the message board

                      Is there a survivors support group I could connect with? I'm so thankful to be alive but my life is very different No more career-can't drive due to brain damage and other things I just have to live with Its good to be alive but it would be nice to connect w others who are living in this new world thx! leslieGA dxGBM2013

                      June 26 at 5:27 PM view post
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                      About Lesliegbm

                      Patient
                      Brain Cancer
                      Cancer Diagnosis, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Emotional Support

                      55yo xmktgMgrDx GbmStg4Jan2014Dx was preceded by ER visit May2013 woke with audible seizure and headache CT scan showed mass in right temporal lobe craniotomy followed- complete resection-path -adult ependenoma Stg2 no treatment recommend frq MRIs to watch 4chgs Piedmont BrainTumor Ctr Jan'14MRI showed new growth Surgery#2 @ Piedmont-Path Gbmstg4 Began Stupp protocol Radiation 30 treatments 5/wk
                      for6wks concurrently wTemolozide
                      In March2014 began maintenance of Temolozide330mg 5 days every 4 was with MRI every 2months Stopped Chemo July2016still have MRIs every 3mon Jan2018 had craney#3 for B.B. size tissue at outer edge of prior surgery bed. pathology showed no malignancy- scar tissue only Hit 5 yr survival milestone Lots of prayers for me
                      no reoccurance as of may2018. but had subdural bleed that required drainMay17- possibly caused by prior surgeries No traumatic injury this was an acute bleed that had consistency of motor oil.

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