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Lilalove's Recent CancerCompass Activity

  • Lilalove has replied to a post on the message board

    Going for follow up from tonsil biopsy this morning. Am still shocked they were unable to give me diagnosis then. The surgeon should have pathology results today. I keep checking the patient portal but it's not there. To say I am nervous and anxious is an understatement. I pray for courage. Thanks for listening

    November 20, 2017 view post
    • Lilalove has replied to a post on the message board

      I totally agree

      November 18, 2017 view post
      • Lilalove has replied to a post on the message board

        Thank you. Had the surgery Monday. They were unable to say what the tumor was..doc was shocked..as was I! They sent it to some special lab..they could not determine what it was! I meet with doc on Monday. I am doing ok. I take the pain meds when needed and just sleep. So worried

        November 16, 2017 view post
        • Lilalove has replied to a post on the message board

          Thank you

          November 13, 2017 view post
          • Lilalove has replied to a post on the message board

            Tomorrow is the day I have a direct Laryngtomy with biopsy....pet scan, scope etc all indicate tonsil cancer..will know type tomorrow..surgeon thinks either squamous cell or lymphoma....scared..shocked..bewildered etc etc. brenda

            November 12, 2017 view post
            • Lilalove has replied to a post on the message board

              Thank you. Makes me encouraged

              November 10, 2017 view post
              • Lilalove has replied to a post on the message board

                Susan. Thank you so much for the info! I am grateful that the pet scan picked this up! I am trying to remain optimistic. However, I am nervous, anxious and afraid. I will know more after the surgical biopsy next week. I am curious as to why you had to have all your teeth pulled? I have an elder,y mother in another state. Depending on treatment plans, I hope to go visit her before it all begins. Your story gives me en...

                November 06, 2017 view post
                • Lilalove has replied to a post on the message board

                  How did the pet scan go? Will you have a port and feeding tube plavd? My biopsy is the 13th.wete you in severe pain after the biopsy? Thanks brenda

                  November 04, 2017 view post
                  • Lilalove has replied to a post on the message board

                    Thank you for the information. It. Helps! I know one lymph node lights up,indicating cancer. I will know more after the surgical biopsy. Every bit of information I get helps me! How are you doing? How long ago was your treatment? Thank you for responding. Brenda

                    November 04, 2017 view post
                    • Lilalove has replied to a post on the message board

                      Thank you Susan. Are you having further treatment? I think one biopsy is completed, I will be more "sane". I was with the melanoma. I just feel very anxious right now. Brenda

                      November 03, 2017 view post
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