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MDyogi's Recent CancerCompass Activity

  • MDyogi has replied to a post on the message board

    My husband's having a dilation for the first time in two weeks.  What should we expect?  Do they hurt and are they dangerous at all?  I'm rather confident about his doctor being good at this but it does seem like a great unknown. 

    August 01 at 9:43 AM view post
    • MDyogi has replied to a post on the message board

      Diana, what is VitalStim?  No one has mentioned that to us in the five years we have been chasing these demons. 

      July 24 at 8:11 PM view post
      • MDyogi has replied to a post on the message board

        Diana, yes indeed. The Gabapentin does seem to help a little.  Has anyone found anything else that helps at all with the tingling? 

        July 24 at 8:08 PM view post
        • MDyogi has replied to a post on the message board

          Diana, thanks for that information.  My husband's cancer was in both tonsils, but more in the left so that's where most of the radiation was focused - and that's where the tingling is--he says it's like ants running up and down his head and neck, under his skin, which I just can't imagine how bad that must feel.  It seems to be getting worse - we can power through the muscle cramps and they myokymia he deve...

          July 11 at 8:22 PM view post
          • MDyogi has replied to a post on the message board

            thank you for this.  I'm desperate to try to find something that will help my husband be more comfortable.  I'm going to read up on ALA.

            July 11 at 5:30 PM view post
            • MDyogi has replied to a post on the message board

              Has anyone tried medical marijuana for some of the swallowing issues?  My husband is 5 years out and is really starting to get bad swallowing, numbness in his arm, and tingling running up and down his head issues.  MM seems to help tremendously with the swallowing - within seconds his voice is good and his muscles relax.  Nothing seems to help the numbness and tingling.  Our radiologist says its n...

              July 11 at 5:07 PM view post
              • MDyogi has replied to a post on the message board

                you bet I will.  It will take some time before we can figure out if it's helping or not, but I'll update.

                January 18, 2017 view post
                • MDyogi has replied to a post on the message board

                  Jeff, my husband's getting the tingling down his neck and chin as well, not always in conjunction with cramps.  It's been a real trial.  He's getting needled next week, to see if acupuncture will help at all. I'm keeping my fingers crossed, but it will be weeks (at least) before we know if there's any good to be done... 

                  January 16, 2017 view post
                  • MDyogi has replied to a post on the message board

                    thank you for this!  I think we would try anything.  have you heard of anyone getting any relief from acupuncture?

                    January 16, 2017 view post
                    • MDyogi has created a new message board discussion

                      My husband received chemo/radiation ending in 2012.  We seemed to do great, except for an un-diagnosed thyroid issue that left him exhausted and weak.  Once diagnosed, he seemed to do very well.  Fast forward almost five years and he has been suffering from cramps in his neck that have gotten so progressively worse and so progressively frequent that he sometimes can't swallow.  His voice is a...

                      January 10, 2017 view discussion
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