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Majolica's Recent CancerCompass Activity

  • Majolica has created a new message board discussion

    Hello,    I have had mgus for almost 12 years.  Besides getting my labs done every 6 months at hematologist.  I also entered the mgus clinical trail at dana Faber cancer institute.  They are doing a study on mgus to find out who progresses and who does not progress to myeloma.  They send you a kit that you take to your 6 month visits and have them draw 3 extra viles of blood that is flo...

    September 13 at 4:46 PM view discussion
    • Majolica has replied to a post on the message board

      Hello,    Here are list of blood tests that test for myeloma.  A link to Beacon Myeloma as well.  Hope this helps. https://www.themmrf.org/multiple-myeloma/diagnosis/myeloma-diagnostic-testing/ http://www.myelomabeacon.com/forum/

      September 12 at 1:22 PM view post
      • Majolica has replied to a post on the message board

        Hello,    I have not posted in a few years now.  I have had mgus and acquired von willebrand for 12 years this January. I get my blood work done every 6 months. The only changes in my blood work over the 12 years is that I now have 2 m-spikes and now have immunopareis..low immunglobulins.  Some neuropathy, bone pain from time to time and fatigue. Don't let any doctors tell you mgus does not hav...

        September 11 at 2:29 PM view post
        • Majolica has replied to a post on the message board

          I have had mgus for almost 10 years.  YES! There are symptoms!  Many of which you all decibed.  Exercise is the best way to combat muscle & bone pain. 

          September 24, 2015 view post
          • Majolica has replied to a post on the message board

            Hello,   I have had mgus for almost 10 years now.  Here are the best sites to get your infor on your labs, as well any questions answered.  Good Luck to you. http://www.myelomabeacon.com/resources/ https://myeloma.org/Main.action Hope this helps!

            September 24, 2015 view post
            • Majolica has replied to a post on the message board

              Hi Steve,   Sorry to hear that you have to start treatments.  I would check out Myeloma Beacon or IMF Myeloma.  There is plenty of info on ASCT there.  I wish you the very best. http://www.myelomabeacon.com/ https://myeloma.org/Main.action

              June 11, 2015 view post
              • Majolica has created a new message board discussion

                Hello,   Can anyone try and describe what a enlarged spleen feels like.  I have have discomfort there off and on for a while.  My last labs where not that good and was suppose to return to repeat them again.  I have confused doctors for years.  I have monoclonal gammopathy and AVWS.  I have been having blasts in my blood smears with elevated wbc/ monocytes, etc.

                January 07, 2015 view discussion
                • Majolica has replied to a post on the message board

                   Sorry...I mean never got to read my report online.  Seems odd they only provided me details on some of my tests.

                  August 21, 2014 view post
                  • Majolica has replied to a post on the message board

                    Hi snowbells,   I have acquired the bleeding conditions from my monclonal gammopathy 8 years ago..  TREATMENTS! Good question.  I have yet to have one doctor understand my very rare complicated bleeding disorders.  I think they think I will just go into leukemia with treatments...my guess only!  Its like talking to a brick wall with these doctors.  What bothered me is my NEW abnormal pl...

                    August 21, 2014 view post
                    • Majolica has replied to a post on the message board

                      Hello again,   My CBC platelets are fine 314.  I did notice they are going up slowly.  It was the plt function EPI and plt function ADP that was elevated/abnormal.  My von willebrand and factor 8 levels are real low.  I am still wondering if they where looking for ET.  No one has ever gave me answers to any of my problems.  Do you people with ET have bone pain?

                      August 19, 2014 view post
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                      About Majolica

                      Multiple Myeloma

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