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Margo48's Recent CancerCompass Activity

  • Margo48 has replied to a post on the message board

    What is the name of the cream that you use for hand and feet? I have not yet needed to use any special cream. I began with Cabozantinib at the end of March, but i stopped twice now for about 2 weeks, because of mouth ulcers. Do you have problems with mouth ulcers and take anyrhing special for the mouth ulcers? For a couple of weeks I can handle the mouth ulcers with kenalog, but i need ro stop for about 2 weeks, aft...

    September 15 at 2:16 AM view post
    • Margo48 has replied to a post on the message board

      I do not know who started this thread, but i was diagnosed with ET in 2006 and l took hydroxyurea until i was diagnosed with kidney cancer ((RCC stage IV) in 2011. I never had any problems with ET and did lead a normal live whilst using hydroxyurea. Best wishes, Margo

      August 13 at 9:34 AM view post
      • Margo48 has replied to a post on the message board

        Dear Catherine, I am thinking of you today and pray that your day may be peaceful. I am sure too that you will enjoy looking after Sophia now and in years to come, like your husband would like. Your husband will live in your heart forever, never to be forgotten. Look after yourself. ??????

        June 01 at 4:32 AM view post
        • Margo48 has replied to a post on the message board

          Dear 'loveurself', how sad your news is, but this is what you wanted for him. Peacefully leaving this world, in your arms. Your pain is still raw. His passing just happened. I admire you and your husband. I could not just wait for death to come, but then again, I do not know what will happen when it is my turn and how I will react. Please, be kind to yourself. It takes time to adjust to a life without your love. No d...

          May 28 at 1:21 AM view post
          • Margo48 has replied to a post on the message board

            Hi 'loveyourself' , I am thinking of you and wonder if your husband has found the peace that you want for him. I am in Western Australia and my thoughts are with you and your family. Wishing you well. Kind regards, Margo

            May 19 at 11:20 PM view post
            • Margo48 has replied to a post on the message board

              Being against radiation and chemo limits your options to treat the tumours. However, I used over the last 2 years Opdivo or Nivolumab which is an immunotherapy drug that is infused on a fortnightly basis. Would you agree to trying that treatment? Discuss it with your oncologist, what else does he suggests? I was diagnosed with RCC stage IV in 2011 and with the help of radiation, chemo and immunotherapy I am still al...

              May 18 at 9:41 AM view post
              • Margo48 has created a new message board discussion

                Has anyone had any experience with the new cancer drug, Cabozantinib. Would like to hear asap. Cheerio,Margo

                April 16 at 2:55 PM view discussion
                • Margo48 has created a new message board discussion

                  Has anyone found some new remedies to fight mouth ulcers . I am on new chemo therapy and had hoped that I would be spared the dreaded mouth ulcers, but no, they have come back. Any working advice greatly appreciated. Cheerio, Margo

                  April 16 at 2:26 PM view discussion
                  • Margo48 has created a new message board discussion

                    Hi, has anyone any experience with Cabozantinib for treatment of well-advanced and metastasised Renal Cell Carcinoma. I was diagnosed in 2011 and after the different treatments available, like Sutent, Pazopanib, Axitinib, removalof affected kidney, the radiation treatments, Cyberknife, Nivolumab( immuno-therapy), and personalised cancer vaccine trial (all keeping the cancer under control for a certain time until prog...

                    April 05 at 3:06 PM view discussion
                    • Margo48 has replied to a post on the message board

                      Sorry, Minnie, the automatic word finder changed the word Hydrea in last sentence.

                      March 15 at 5:50 PM view post
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                      About Margo48

                      Patient
                      Kidney Cancer, Renal Cell Cancer
                      Cancer Nutrition, Cancer Treatments, Clinical Trials and Research, Diet, Radiation, Side Effects

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