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Maria2007's Recent CancerCompass Activity

  • Maria2007 has created a new message board discussion

    Theusday 19 April at 8 am, our daughter passed away. The last night was terrible, because she could hardly breathe. She had a lot of fluid in her longs. Now when have to live without her. Whe loved her so much, she was only nine years old. She was always so brave during the treatment, even when she was blind, she was so positive. How can when live without her, when don't know. My wife and I feel so sick and empty.

    April 26 at 10:59 AM view discussion
    • Maria2007 has created a new message board discussion

      Last week our daughter Maria had a new MRI, and the result was very bad. The oncologist gives her only a few weeks to live, and there will be no treatment anymore.  4 years ago we adopted her from Bulgaria when she was 5 years old, and it was love at first sight. She is such a sweet and beautiful girl, and now we are loosing her,we can't cope with that.                 &n...

      March 10 at 9:47 AM view discussion
      • Maria2007 has created a new message board discussion

        Last week our daughter Maria had a new MRI, and the result was very bad. The oncologist gives her only a few weeks to live, and there will be no treatment anymore.  4 years ago we adopted her from Bulgaria when she was 5 years old, and it was love at first sight. She is such a sweet and beautiful girl, and now we are loosing her,we can't cope with that.                 &n...

        March 10 at 9:46 AM view discussion
        • Maria2007 has replied to a post on the message board

          I have another question about RSO. Do you use the oil in combination with the temodar, or are you only using the oil ? Our oncologist said that she thinks the temodar isn't working for our daughter, but she don't know for sure. We are in a dilemma, about continuing with the temodar or not. Also while she get very sick from it ( nausea and doesn't eat much).

          February 13 at 9:33 AM view post
          • Maria2007 has replied to a post on the message board

            Thanks for your answer, I hope this works for our daughter en your husband. I wish you both all the best, and never give up hope !

            February 12 at 8:24 PM view post
            • Maria2007 has replied to a post on the message board

              At this moment our daughter is taking cannabisoil, it's indica oil witch is mixed with olive oil. We are thinking about giving her the RSO  oil ( Rick Simpson), but are a little afraid how she reacts on this. She is only nine years old, and we don't know what the affect will be.But we also think it's the last option we have. What kind of oil are the most people using on this forum?

              February 12 at 5:41 PM view post
              • Maria2007 has replied to a post on the message board

                We just bought cannabisoil for our nine year old daughter, who has AA3 since June 2016. She got a new tumor, and she had last month again radiation. The doctor had said that she thinks that the temodar isn't working. We are desperate , because she don't whant to loose her. A lot of  parents in the Netherland where we live, give this oil to there children. It contains THC and CBD, and the side effects are a goo...

                January 29 at 11:45 AM view post
                • Maria2007 has replied to a post on the message board

                  Thank you both, for your reply's. Our daughter is 9 years old with an anaplastic astrycotoma grade 3. We think we are not participating with this trail, because she is at the moment very week. She lost the last few weeks 2 kilo, and now she gets food through her nose ( don't know the word in English). There are some good results with cannabisoil , wich I read on a German brain tumor forum. We are thinking about try...

                  January 06 at 8:17 PM view post
                  • Maria2007 has changed their profile photo
                    January 04 at 6:21 PM
                    • Maria2007 has created a new message board discussion

                      Our daughter was operated last June , she has an anaplastic astrycotoma grade 3. They where able to remove 95% of the tumor, and she got 6 week of radiation and started temodar. Now she has a new tumor in her fourth ventrikel, and the oncologist thinks the temodar is not working. There is now a clinical trail with the new medicine called Afatinib. There's a change that she can try this new medicine. Does anyone h...

                      January 04 at 6:15 PM view discussion
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