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Miles22's Recent CancerCompass Activity

  • Miles22 has replied to a post on the message board

    Has anyone found any new immunotherapies for gliosarcoma patients (glioblastoma)?? I am still following same naturopathic list of supplements, ketogenic diet, but stopped novucare after a year as it effects what you can do by wearing it (sweat and heat doesn't work with it). I believe we are close to a cure, I truly believe if we keep on fighting to live well, no one will have to ever hear about the months we have t...

    September 15 at 2:07 AM view post
    • Miles22 has commented on a news story

      Life is all and everything we have. I am a stageIV gliosarcoma patient given 2-3 months to live 2 and a half years ago and living through the negative consequences of chemo and radiation I stepped away from it all to simply live my life better. Life is beautiful and I face the adversity with a simple mindset of enjoy today and believe in tomorrow. I have no answers but will say belief and positivity is powerful in f...

      April 26 at 7:12 PM view news story
      • Miles22 has replied to a post on the message board

        Another thing I completely understand about your friend is the unwillingness to read much about glioblastoma/ gliosarcoma. Not knowing what I had I started going online and reading about it. The expectations are so bleak that I stopped reading about it myself. I came on this sight to find paths of those that were beating the odds. See if others were doing things I didn't know about that they believe have a very posi...

        March 06 at 4:29 PM view post
        • Miles22 has replied to a post on the message board

          I will say your empathy and willingness to help a person you care for is the kindness that has truly inspired me as I am in a situation of stage IV gliosarcoma and over 2 years ago was told that I let it progress far too long and would hopefully after resection only get another 2 to 3 months of life. I will say I have no medical knowledge so I didn't know the steps to take to start down the best path to extend my lif...

          March 06 at 4:18 PM view post
          • Miles22 has replied to a post on the message board

            Is he living in the US? If so they will probably put him on daily oral chemo and advise him into a 5-6 week radiation path. I did both as I was diagnosed with stage IV gliosarcoma over 2 years ago. The path that you will hear from many I have in similiar situations is the value of excercise, diet (I personally went ketogenic diet day after resection to eliminate the growth due to sugar and carbs), and naturopathic su...

            February 01 at 9:02 PM view post
            • Miles22 has replied to a post on the message board

              Congrats on the clear MRI. Keep showing up every 2 or 3 months for MRI to prove you are on the right path and that excitement that you're up to win the fight. I take no meds but believe in ketogenic diet to rid sugars, regular excerise, optune device and the naturopathic supplements: omega 3, tumeric, boswella serratta (sp?), ginger, melatonin, green drink, and mushrooms with marketing names of lions mane and turkey ...

              January 31 at 8:53 PM view post
              • Miles22 has replied to a post on the message board

                That is awesome that you are wearing and keeping the cancer at bay from growing. Agree that it is a huge benefit and not to overwhelming but I do "unplug" myself alot to be more active than prescribed. Believe the best path is excercise, diet and optune device all working in coordination. Onto 3rd year away from diagnosis and resection and still feeling great. Hope your MRI results were great and give you time not ...

                January 25 at 2:50 PM view post
                • Miles22 has replied to a post on the message board

                  49 yr old male 2 years out of stage IV gliosarcoma resection. Was told wrong gene for many opportunities for immunotherapies so found a doctor that would prescribe me the Optune Device. The device changes the freedom I loved to be able to excercise, sweat, be out in the sun anytime I felt like doing those things. I think the device works very well but I have not been as strict keeping to the prescribed 18 hours daily...

                  January 23 at 3:27 PM view post
                  • Miles22 has replied to a post on the message board

                    Trabs The 2 things you are saying about yourself are the only way I believe in beating cancer. Optomistic approach to win the battle and continuing to live a healthy life with great diet changes and consistent excercise. I am a stage IV gliosarcoma survivor who went down all the paths recommended after resection with 6 weeks of radiation and temodar followed with the 5 days high dosages of temodar and 23 days off. ...

                    January 21 at 2:11 PM view post
                    • Miles22 has replied to a post on the message board

                      Erob72, I am another PNW brain cancer patient. I was sent to OHSU in Portland two years ago and had surgery to remove as much of the stage IV gliosarcoma tumor as possible. Was told by my neurosurgeon that surgery went well but expectation of life should still be only 2-3 months and he would not release me to go back and work with my college baseball team. Those were the hardest as I had to hurry to setup all things...

                      January 11 at 4:19 PM view post
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                      About Miles22

                      Patient, Survivor
                      Brain Cancer
                      Naturopathic Medicine, Prevention Tips, Supplements

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