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Misty53's Recent CancerCompass Activity

  • Misty53 has replied to a post on the message board

    My youngest daughter had upper polar bilateral wilms tumors. Just under 2 years of age at diagnosis, her surgeon did not believe he could save her, he thought as it was so advanced it would have spread through her entire body. To cut a long story short, after intensive chemo to reduce the size of the tumors, surgery was undertaken. There was 1/3 of a kidney left one side and a 1/4 the other side. After the surgery m...

    January 16 at 1:53 PM view post
    • Misty53 has replied to a post on the message board

      My daughter was diagnosed with stage 2/3 anaplastic non codeleted oligodendroglioma, it was very advanced, given 2/3 years to live. My daughter has just had her most recent mri at 5 years, their was no change, she is stage 3 now and has been since her first craniotomy. Her initial treatment was immediate surgery then six weeks of radiation therapy. Her cancer was large and very deep, we were met with a lot of negati...

      January 13 at 1:53 PM view post
      • Misty53 has replied to a post on the message board

        My daughter was given 2/3 years. Her cancer was very large and non codeleted. Without surgery when first diagnosed she was expected to die very quickly. Five years on her neurologist said that she has beaten all of their expectations, and that some people with non codeleted anaplastic oligodendrogliomas get 5/7 years. This has obviously frightened her family, my daughter remains strong and determined, and we all pra...

        January 13 at 1:18 PM view post
        • Misty53 has replied to a post on the message board

          My daughter has stage 3 anaplastic oligodendroglioma (non codeleted), she was diagnosed just before her 38th birthday, this month she had her 6 monthly mri at the Royal Adelaide (RAH) in South Australia, it has been 5 years since diagnosis at the end of late November. My daughter has had two cranitomies, we were frightened, average life expectancy is 2/3 years, her 5 year scan had no can...

          December 24 at 1:07 AM view post
          • Misty53 has replied to a post on the message board

            My daughter has no codeletions with her stage 3 anaplastic oligodendroglioma, she was given 2/3 years, her 4.5 year scan has just come back stable. My daughter works full time, looks after her large home and is completely independent, looks after her darling over active puppy and takes no meds at all (but has pain meds if needed) Asked neurologist when her last scan came back clear how long she has left, was told s...

            July 21 at 1:40 AM view post
            • Misty53 has created a new message board discussion

              I hope I havent mislead anyone, my daughter was anaplastic non codeleted oligodendroglioma stage 2.5 when first diagnosed, and given 2/3 years. Her cancer quickly became stage 3. Diagnosis was December 2012, two debulking surgeries followed, her last scan was stable. My daughter asked how long she had left, she was told she had exceeded expectations, and they dont know how long she has to live. My daughter had rad...

              July 12 at 7:21 PM view discussion
              • Misty53 has replied to a post on the message board

                It is 4.5 years since my daughter was diagnosed with non codeleted anaplastic oligodendroglioma, every-one thought that she would pass away after 2/3 years but Justine is still working, looking after her house and her little dog, people dont believe that she is terminally ill unless they see her without make-up or her hair done, of-course there are bad days, these are days when she will just stay home and rest and sp...

                July 03 at 4:34 PM view post
                • Misty53 has created a new message board discussion

                  "And here I go again!" 4.5 years now, results of latest scan due Thursday! So frightened for my daughter, I live in a costant state of fear. I know I am not the only person in this state, my heart truly goes out to others who are going through what I am going through as a mother, and what my brave daughter is going through. Prayers for all those suffering with cancer of any type, and prayers too for those who l...

                  July 03 at 4:17 PM view discussion
                  • Misty53 has replied to a post on the message board

                    I have just looked up displasia in relation to barrett's esophagus, from my understanding of what I read, with dysplasia is pre cancerous but without dysplasia it is not cancerous. Dysplasia means that there are changes in the esophagus, but without dysplasia means there has been no change. No dysplasia means no change which means that it is not pre cancer, should you develop dysplasia it would then be pre cancer. ...

                    March 27, 2017 view post
                    • Misty53 has replied to a post on the message board

                      I cannot tell you a lot, but from what I have researched only a very small percentage of people with Barrett's actually have it go on to become cancer. Should you have very early esophageal cancer, from what I have read, is highly curable, with this type of cancer catching it early is the difference between a favourable prognosis and a poor one. I have severe erosive esophagitis and I am hoping if it has progressed, ...

                      March 26, 2017 view post
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                      About Misty53

                      Caregiver
                      Brain Cancer, Esophageal Cancer, Kidney Cancer
                      Acupuncture, After Treatment, Alternative Treatments, Cancer Diagnosis, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support, Genetics, Lifestyle, Massage Therapy, Naturopathic Medicine, Prevention Tips, Radiation, Recipes, Side Effects, Spiritual Support, Supplements, Surgery

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