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Misty53's Recent CancerCompass Activity

  • Misty53 has replied to a post on the message board

    My daughter has no codeletions with her stage 3 anaplastic oligodendroglioma, she was given 2/3 years, her 4.5 year scan has just come back stable. My daughter works full time, looks after her large home and is completely independent, looks after her darling over active puppy and takes no meds at all (but has pain meds if needed) Asked neurologist when her last scan came back clear how long she has left, was told s...

    July 21 at 1:40 AM view post
    • Misty53 has created a new message board discussion

      I hope I havent mislead anyone, my daughter was anaplastic non codeleted oligodendroglioma stage 2.5 when first diagnosed, and given 2/3 years. Her cancer quickly became stage 3. Diagnosis was December 2012, two debulking surgeries followed, her last scan was stable. My daughter asked how long she had left, she was told she had exceeded expectations, and they dont know how long she has to live. My daughter had rad...

      July 12 at 7:21 PM view discussion
      • Misty53 has replied to a post on the message board

        It is 4.5 years since my daughter was diagnosed with non codeleted anaplastic oligodendroglioma, every-one thought that she would pass away after 2/3 years but Justine is still working, looking after her house and her little dog, people dont believe that she is terminally ill unless they see her without make-up or her hair done, of-course there are bad days, these are days when she will just stay home and rest and sp...

        July 03 at 4:34 PM view post
        • Misty53 has created a new message board discussion

          "And here I go again!" 4.5 years now, results of latest scan due Thursday! So frightened for my daughter, I live in a costant state of fear. I know I am not the only person in this state, my heart truly goes out to others who are going through what I am going through as a mother, and what my brave daughter is going through. Prayers for all those suffering with cancer of any type, and prayers too for those who l...

          July 03 at 4:17 PM view discussion
          • Misty53 has replied to a post on the message board

            I have just looked up displasia in relation to barrett's esophagus, from my understanding of what I read, with dysplasia is pre cancerous but without dysplasia it is not cancerous. Dysplasia means that there are changes in the esophagus, but without dysplasia means there has been no change. No dysplasia means no change which means that it is not pre cancer, should you develop dysplasia it would then be pre cancer. ...

            March 27 at 1:11 PM view post
            • Misty53 has replied to a post on the message board

              I cannot tell you a lot, but from what I have researched only a very small percentage of people with Barrett's actually have it go on to become cancer. Should you have very early esophageal cancer, from what I have read, is highly curable, with this type of cancer catching it early is the difference between a favourable prognosis and a poor one. I have severe erosive esophagitis and I am hoping if it has progressed, ...

              March 26 at 7:11 AM view post
              • Misty53 has created a new message board discussion

                My daughters scan was clear, thankyou to all of the people who have replied to previous posts. Now stable after 4 years, her cancer is stage 3 non codeleted anaplastic oligodendroglioma. I do have a question! Do patients still get the symptoms of their cancer when told their cancer is stable? My daughter is quite ill now! Thankyou in advance for any replies! Surgeon said my daughter had 3 to 5 years, possibly 7 years...

                January 01 at 3:26 PM view discussion
                • Misty53 has replied to a post on the message board

                  My daughter will be 4 years on from original prognosis in late November 2012, I am very nervous still, but her last scan in early June 2016 was clear, her next scan is in December! Like so many other people suffering with this dreadful illness I find her truly inspirational. My daughter still works full time, looks after her home and puppy, walks and excercises at home every day. Although she does have some head...

                  September 08 at 10:29 AM view post
                  • Misty53 has replied to a post on the message board

                    Thankyou for your reply, I'm glad to hear your mom's blood test are now normal, it is so very hard to know what to try, I really appreciate your feedback! God Bless!

                    September 08 at 10:16 AM view post
                    • Misty53 has replied to a post on the message board

                      Thankyou so much for you reply, I appreciate  your kindness, I admit that I am very frightened for my daughter. My daughter was told that only one lot of radiation would be allowed due to the size and extent of her tumor, she has had two debulking surgeries, her next scan is in April I think, and I am praying it will be clear again. My daughter was told  more debulking surgery would be the o...

                      January 08, 2016 view post
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                      About Misty53

                      Caregiver
                      Brain Cancer, Esophageal Cancer, Kidney Cancer
                      Acupuncture, After Treatment, Alternative Treatments, Cancer Diagnosis, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support, Genetics, Lifestyle, Massage Therapy, Naturopathic Medicine, Prevention Tips, Radiation, Recipes, Side Effects, Spiritual Support, Supplements, Surgery

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