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NJM01's Recent CancerCompass Activity

  • NJM01 has replied to a post on the message board

    Hi Candicek - I had HPV tonsil cancer and was also offered either radiation and chemo or radiation and immunotherapy. I ultimately decided for the traditional route of chemo and radiation simply because the established protocol - as hard as it is - has a long, proven track record of success. Some studies have suggested radiation alone may be adequate but I wanted to hit the cancer as hard as possible the first time a...

    July 15 at 5:49 AM view post
    • NJM01 has replied to a post on the message board

      Hey Stitch - sorry for the late reply. How did the ENT appointment go?

      July 14 at 4:48 AM view post
      • NJM01 has created a new message board discussion

        Hi all, Prior to my diagnosis and treatment, the pairing of wine and food was something I took great delight in. Carefully ageing predominantly red wines was as much a hobby as any of the other interests I had. I now find myself having gone 12 months (8 of which are post-treatment) without a drink. I don’t miss or crave alcohol particularly but occasionally - birthdays, Christmas, special occasions etc. - I ...

        June 23 at 2:50 AM view discussion
        • NJM01 has replied to a post on the message board

          A belated comment but I had two different PEGs, one with a balloon and one without. The PEG with the balloon was easily and painlessly removed. The PEG with the balloon was both unpleasant and a bit painful to remove. In either case however, it’s over fairly quickly. Hope your husband’s went well in any event! N

          June 16 at 8:42 AM view post
          • NJM01 has replied to a post on the message board

            Hi Essen - I hope they find whatever is causing you to have symptoms but it is very relieving to know that it doesn’t seem to be cancer! Best of luck, N

            June 16 at 8:37 AM view post
            • NJM01 has replied to a post on the message board

              Hi Jen - I went through several diagnoses (and seemingly successful courses of antibiotics) before it was determined I had late stage tonsil cancer. However, my symptoms were different to those you describe. If I were you, I’d get a second opinion and then make a decision. Whatever you do, I’d respectfully suggest that you don’t simply ignore this. Even if the odds are that what you have isn’t cancer, your symptoms s...

              June 16 at 8:34 AM view post
              • NJM01 has replied to a post on the message board

                Hi Essen - I don’t have much to add to Susan’s comments (I’m also terrified of needles but the tonsil biopsy was surprisingly OK). Just wanted to see if you had any further updates on your diagnosis? N

                May 14 at 1:19 PM view post
                • NJM01 has replied to a post on the message board

                  Hi Bkwrm - I’m about 8 months out from chemoradiation but I was fortunate enough to avoid surgery. My throat feels “different” all the time and no two consecutive days are the same. I also get throat/neck/jaw pain intermittently and have limitations from a range of motion perspective. I am not an expert but from other survivors I have spoken to, these symptoms are not uncommon. Good luck on your journey back to healt...

                  May 14 at 1:15 PM view post
                  • NJM01 has replied to a post on the message board

                    Hi Cardoza, I’m now about 8 months from treatment and I have some ongoing shoulder and neck restriction. It isn’t having a major impact on my life but it is noticeable when I’m driving etc. I’m about to resume yoga and start tai chi so hopefully those will assist. N

                    May 05 at 10:05 AM view post
                    • NJM01 has replied to a post on the message board

                      Just wanted to wish you guys a great trip and offer my congratulations on the clear scan! This illness is hard in so many ways but it certainly does help put life back into perspective and emphasise the things that matter most. All the best!

                      May 01 at 12:27 PM view post
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