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NJM01's Recent CancerCompass Activity

  • NJM01 has replied to a post on the message board

    Hi torehb, Susan is right - if this is HPV / p16 + squamous cell carcinoma then it is both treatable and curable. There are obviously no guarantees and the treatment can be very, very tough but that particular cancer can be successfully treated. This time last year I finished chemo radiation for T3N2c HPV p16+ SCC and so far, so good. Do let us know a little bit more about the diagnosis and we’ll help if we can...

    October 08 at 6:48 AM view post
    • NJM01 has replied to a post on the message board

      Glad you’re eating soft foods and doing well Mbro - please let us know how you go with the biopsy results. In the interim, use the pain killers as needed. It is short-term use so as long as you’re sensible you shouldn’t have any issues.

      October 06 at 9:10 AM view post
      • NJM01 has replied to a post on the message board

        Good news - here’s hoping the second opinion confirms the first. When all of this is behind you, don’t forget the insights it brought you about what is important in life!

        September 14 at 3:08 AM view post
        • NJM01 has replied to a post on the message board

          Hi mate - your GP sounds sensible. Start with an MRI and see what develops from there. If none of your doctors are too concerned thus far it is a good sign. As to the tonsillectomy or laser treatment, be guided by your ENT after the MRI. I can well understand the desire to have the tonsil tissue biopsied for peace of mind but be guided by the experts and if you aren’t confident in their advice, get a second opinio...

          September 09 at 6:47 AM view post
          • NJM01 has replied to a post on the message board

            Yep - Sydney is a great place to live. We’re very lucky. Let me know how you go with the GP. A PET scan is what I had on diagnosis but there are different approaches and protocols and it may be that whatever you have is not serious. Irrespective of what comes next, take it from me that although it has become a cliche, it truly is the little things that matter. Houses, cars, career etc. are all part of our lives...

            September 07 at 7:16 AM view post
            • NJM01 has replied to a post on the message board

              Hi mbro, I’m based in Sydney, Australia so I’m not sure I can offer any practical assistance. The way our process works, I saw my GP, explained I wanted a second opinion and got a referral to my preferred doctor. There could be a variety of explanations for your throat symptoms so don’t panic just yet. I suggest you speak to your GP and seek guidance on how you can most quickly see an ENT who specialises in ...

              September 06 at 12:24 AM view post
              • NJM01 has replied to a post on the message board

                Hi mbro, I don’t presume to second guess your doctor but my experience was not dissimilar. I ended up in hospital with throat/jaw pain and when it settled with antibiotics, was told to com back several weeks later for further investigation that may entail removal of a mass in the tonsil area for biopsy purposes. I didn’t want to wait so I saw a consultant ENT who specialised in cancer. He took one look in my th...

                September 05 at 9:35 PM view post
                • NJM01 has replied to a post on the message board

                  Hi Susan, Thanks, as always, for your advice. It is a huge help to have you on this board. I think the issue I am wrestling with is that my throat feels different every day so I no longer know what the new (or more precisely, emerging) "normal" is. Not surprisingly, the closer I get to my quarterly check-ups, the more pronounced my throat symptoms become and the "mind monkeys" start chattering i...

                  September 05 at 5:07 AM view post
                  • NJM01 has replied to a post on the message board

                    Hi Mike, So glad you completed your treatment - here’s hoping for a complete response! I endorse what Johnny Q said, progress is measured in weeks and months rather than days. Allow about 6 months for the bulk of the fatigue to pass. I found gentle walks helped but anything more strenuous took 6 months or so. I’m 12 months out now and still have some residual fatigue. It doesn’t interfere with my life too...

                    September 03 at 8:49 PM view post
                    • NJM01 has replied to a post on the message board

                      Hi Steve, Great idea to start a new thread on this topic. I’m only 12 months out so I’m not a long-term survivor just yet but I do have some questions for those of you who are... Like many who go through heavy radiation, my taste and salivary function have both been diminished, although I can eat with liquid to wash food down so no complaints. I also have restricted neck mobility, reduced range of motion...

                      September 01 at 5:33 AM view post
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