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Namatai's Recent CancerCompass Activity

  • Namatai has created a new message board discussion

    Am an Acc patient and has since spread to the Lungs.  am considering going for RFA and/or Keytruda.. Anyone who has had this treatment please help with your experience.

    November 26 at 2:45 PM view discussion
    • Namatai has replied to a post on the message board

      I was also diagnosed with Adenoid Cystic Carcinoma of the tongue in 2012 and had the tumor removed and had Radiation.  The cancer has now metasised to the longs and my oncologist says they cannot do anything because it does not responde to either chemo or radiation but that it grows very slowly so I just have to sit and wait. I have also started loosing weight and was wondering if there are any special diets for...

      December 13, 2016 view post
      • Namatai has replied to a post on the message board

        Thank you so much for such vital information.  I was diagnosed with Adenoid Cystic Carcinoma on the Tongue and and surgery partial glocectomy and have 6 weeks for radiation.  on 2nd February 2013 I went for a PET Scan and it showed that the cancer is still there.  The Oncologist said I should have another surgery.  Do you think Dr Gregory Weinstein  would be able to do this op and is it possi...

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        • Namatai has created a new message board discussion

          Hi, Am very worrried, I finished radiattion on 22nd August 2012 and my oncologist sent me for a post radiation pet scan 2nd of February 2013 and the PET Scan turned positive.  My Oncologist said I should go for a biopsy to confirm but my tongue is still sore and wondering whether the biopsy will make it worse.  He also said if the biopsy is positive I might have to go for an op.  I already had two ope...

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