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OMB02's Recent CancerCompass Activity

  • OMB02 has replied to a post on the message board

    Just an update... I guess I'm one of the unlucky ones that it does not help. I did lose 9 pounds, though, without trying. Had three rounds of Xofigo. My ALP lowered with each round...with the most recent count being 105. After my third round, a bone scan showed that new bone mets had developed, so my Xofigo was stopped after three rounds. I was sure that it would put a halt on my bone mets, but I was wrong.

    October 07 at 1:38 AM view post
    • OMB02 has replied to a post on the message board

      Hey Charlie, Great to hear from ya! Have you ever been on Zytiga (abiraterone acetate) ? I was on it for 11 months with Lupron and my PSA started to rise so my MO dropped it for me and now I'm getting Radium 223 with the Lupron. Keep fighting!! Take Care, Monty

      August 23 at 11:20 PM view post
      • OMB02 has replied to a post on the message board

        Hello Gene, Do you know if would be normal for Radium 223 treatment to result in a lowering of one's PSA ? I was of the opinion, maybe mistaken, that Radium 223 would not be expected to lower one's PSA. Prior to my second treatment, something stopped my PSA from rising and lowered it also (slightly). I'm not sure whether to attribute it to the Radium or something else. Take Care, Monty

        August 01 at 6:04 PM view post
        • OMB02 has replied to a post on the message board

          Hello Shellie, That's great that you uncle's ALP was down to 400 from 1000! Hope it continues to drop. My Hgb was a little low (13.3) on June 29...when I received my first Radium 223 treatment. Have to really watch it as the Radium can cause it to be low, but today I was told it was all good. Hope your uncle's blood test is a good one. Take Care, Monty

          July 31 at 2:34 AM view post
          • OMB02 has replied to a post on the message board

            In January my PSA had started to climb each month. After 11 months of being on Zytiga, it was apparently losing its effectiveness and my MO dropped it for my in April. January my PSA was .8, Feb. was 1.3, Apr. was 3.6,...June was 19.9. Prior to my June lab I had tried IP6...taking 7 scoops in the morning and 7 in the evening in an attempt to slow the rise, but it did not seem to help. I had given up on the IP6 but ...

            July 30 at 10:18 PM view post
            • OMB02 has replied to a post on the message board

              With a 400 PSA I would find a very good Urologist and immediately go to him/her to be checked out.

              July 20 at 4:20 AM view post
              • OMB02 has replied to a post on the message board

                Thank you Gene for the good info about radium 223. Greatly appreciated! Take Care, Monty

                June 18 at 6:31 PM view post
                • OMB02 has replied to a post on the message board

                  Hello Shellie, I decided to reduce the dosage as it did not seem to helping with my PSA and ALP. Both my PSA and ALP were in the normal range (although rising) before I begain taking it. I took 14 scoops daily (7 in the morning and in the afternoon on an empty or nearly empty stomach) for two months...and my PSA and ALP continued to rise. Take Care, Monty

                  June 18 at 6:25 PM view post
                  • OMB02 has changed their profile photo
                    June 13 at 7:02 PM
                    • OMB02 has created a new message board discussion

                      Is there anyone who is getting or has gotten Xofigo (radium 223) willing to share their experience with it ?

                      June 13 at 6:41 PM view discussion
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                      About OMB02

                      Patient, Survivor
                      Prostate Cancer
                      Alternative Treatments, Cancer Nutrition, Cancer Treatments, Diet, Recipes, Support, Conventional Treatments, Hormone Therapy, Supplements

                      Diagnosed with stage 4 prostate cancer.

                      Conventional: Past was degarelix, Lupron, 4 rounds of chemo (docetaxel), Provenge, Zytiga (w Prednisone).

                      Current is Radium 223 and Lupron.

                      Complementary diet & nutrition:
                      No meat except wild salmon. Cannabis oil (not 90 day protocol), tumeric, ginger root, chili peppers with veggies, apricot seeds, IP6, zymactive, RM-10, Curamed, Genacol, 3 grams of Vit C and lysine daily plus more.

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