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Pottingarden's Recent CancerCompass Activity

  • Pottingarden has replied to a post on the message board

    Hi RE Opdivo, I am 70 years old- I Have stage 4 lung cancer and had chemo, radiation, SBRT, and then OPdivo. Opdivo quit working for me. I had big amounts of fluid build up in my Lung-Pleura area.I think it was due to the Opdivo the oncologist would not confirm that, that is ONLY my opinion, I am now one month on Tagrisso and NO buildup of fluid and I feel much better than any other time in the last two years, &nbs...

    January 21, 2016 view post
    • Pottingarden has created a new message board discussion

      I have stage 4 Lung Cancer. I have had chemo, radiation, SBRT,and the Cancer is in the left lung and Pleura.  I was on Opdivo for about 8 weeks, my markers went up, The oncologist noted that my left Lung was filling with fluid. I was drained 4 times. I went off Opdivo and am now one month on Tagrisso. It is a pill a day.  I have not felt this good in two years.  Do not give up hope- everyone reacts in ...

      January 21, 2016 view discussion
      • Pottingarden has replied to a post on the message board

        You must be a Genetic match for Tarceva- it is a "first line" biological drug-your doctor will know if you are a match. There is also a new (this month) new drug called Kycerva(not sure of the spelling I had cancer on the ribs outside of the Lung also but not in the lymph nodes.  SO-Number one-DO not BE "SCARED to death"  - it is life changing news for sure.  BE thrilled to live- do whatever you can to...

        June 13, 2015 view post
        • Pottingarden has created a new message board discussion

          I was diagnosed one year ago with stage 4 Lung and its over.  I got a second opinion , then a third opinion. I am 70 years old, smoked 25 years ago and had NSSLC, maybe a stage 3.  My treatment was the following:  I was 27 weeks on the drug Tarceva, had 4 sessions of chemotherapy at Mt. Sinai in NYC and just finished 30 rounds of daily radiation. My oncologist said yesterday he will see me in 5 weeks -...

          May 20, 2015 view discussion
          • Pottingarden has replied to a post on the message board

            Tarceva Rash,  My face was broken out at the beginning for 3 weeks, I was put on antibiotics. After three weeks it went away.Key for me was nothing with alcohol in it, Facial wash, use a baby wash, no moisturizers.  I am on Tarceva now for 4 months and my skin is fine.  My eyelashes are dry, my fingernails split. All a small price as my lung tumor has shrunk significantly. Hope this helps.

            October 22, 2014 view post
            • Pottingarden has replied to a post on the message board

              I have been on 150 mg of Tarceva for 50 days.  The beginning was the worst, I have always had (before) great facial skin- I threw out all my make up, (anything with alcohol in it is burning) I now take an antibiotic pill for my face at night.  It is MINOCYCLINE AT 100 mg. Big improvement.  I hesitate to wear make up as it can just get infected and dirty with the small white type postules that can appea...

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