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RenForDav's Recent CancerCompass Activity

  • RenForDav has created a new message board discussion

    It's been about 9 mos. since diagnosis for cholangiocarcinoma - bile duct cancer. It has a 33% survival rate after 1yr and 10% after 5 years. My fiancé has already had a very serious surgery, chemo treatment and is undergoing radiation therapy right now. It was actually his oncologist who reminded us during our last visit on how fast-moving this cancer is. I think we're both scared now. I don't know how to pre...

    March 18, 2018 view discussion
    • RenForDav has replied to a post on the message board

      I can't believe it's been only one month. A network is starting to form. We have a facebook page, but even understanding what to post and how much to post has been a challenge ... AND he went through the surgery they were planning to remove the tumor. It was a 10-hour surgery in which they entirely restructured his biliary system. That was 6 days ago. He is recovering, but he is drifiting in and out of consciousness,...

      August 24, 2017 view post
      • RenForDav has replied to a post on the message board

        Thanks all. It's now been 2 weeks since the diagnosis. One Liver surgery expected to take place next week plus 6mos. of 5 days on, one week off. I know some people here want me to name it for them. Please understand I don't want to. More than just wanting to be private, it feels like I'm giving it power if I name it. We hosted a dinner with our friends on Sunday, trying to setup a "caring network" A friend of his ...

        August 08, 2017 view post
        • RenForDav has replied to a post on the message board

          Fine. Here: I don't feel like sharing that with you right now. I just got the diagnosis a few days ago and part of the reason I am asking people's advice on how to deal with this is because I have had SO MANY people get me to explain his condition, where it is, what the doctors are trying to do about it, etc. Several times per day, everyday since this came up. I REALLY don't feel like justifying myself and what type ...

          July 25, 2017 view post
          • RenForDav has created a new message board discussion

            My boyfriend was just diagnosed. Now a lot of our friends are asking for me to update them regularly, texting me directly to get updates throughout the day. One friend in particular texts me sometimes every day not only for updates, but also to give her directions to his room (in a hospital no less), tell her what she should bring, when she should leave her home, when she should text him... bascially to make her dec...

            July 25, 2017 view discussion
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