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SMMile's Message Board Messages

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RE: Urachal Cancer Survivor

by SMMile - February 20 at 4:58 AM

Thank you very much for your valuable and heartfelt message.

RE: Urachal Cancer Survivor

by SMMile - January 04 at 9:41 PM

Fight like hell !

RE: Urachal Cancer Survivor

by SMMile - January 03 at 8:24 PM

Thank you for your inspiration and all of the other advice and information. I am a patient of Dr. Seifker at MD Anderson, and I am scheduled for a consult with one of their best surgeons for a possible lymphectomy of the deep groin lymph nodes. Just curious, what stage were you when you had your surgery years ago. I was IIIb.

RE: Urachal Cancer Survivor

by SMMile - December 24 at 1:03 AM

Lasted @ 7 months on Opdivo portion, then toxicity too much. Groin lymph nodes still stable, may have surgery, lymphectomy. Find another clinical trial, 1st phase, if it gets worse.

RE: Urachal Cancer Survivor

by SMMile - April 06, 2019

I stared Yervoy/Opdivo in Nov 2018, currently doing Opdivo alone. I am anxious for some shrinkage of the tumor. I get another CT scan in a few weeks. I believe I will stay on the Opdivo as long as I remain progression free. As far as what's next, I don't know. But these drugs only work for 10-20 per cent, my "stable" condition is a positive result. I have the best doctor, team and hospital in the world...Seifker/Lydia/MD Anderson. But mother nature is bigger than all of us...

RE: Urachal Cancer Survivor

by SMMile - March 19, 2019

In response, I am in 2nd stage of a clinical trial, initial Yervoy/Opdivo 4 cycles (21 days); now entering Opdivo IV only portion. Stable disease (which is same as with prior chemo as far as I can tell but as time is not  my friend vis-a-vis cancer metastasis, then I'm grateful for "stable".) So, I am a candidtate for what's next. These drugs work but they don't work for everyone.

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Bladder Cancer

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