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Samuelly's Recent CancerCompass Activity

  • Samuelly has replied to a post on the message board

    Permanent colostomy is not so bad.  Watch a u tube video from a fellow out of New Zealand (I think) onirrigation.  When I was told I would be left with a permanent colostomy, I researched and found this method.  It is way better than having to wear bags and dealing with all the accessories and skin issues all the time. You might want to ask questions to your doctor and stoma nurse after you watch it to...

    June 02 at 12:29 AM view post
    • Samuelly has replied to a post on the message board

      That sucks so much!  Hugs to you both!

      April 08 at 3:01 AM view post
      • Samuelly has replied to a post on the message board

        No.  Been thru colorectal cancer and now leukemia.  They are not forcing you to do anything.  Take the treatment or not it's your choice what happens to each person is person specific.  They tell you about  all these side effects that you MIGHT have...I had a bit of nausea ...no biggie...Can miracles happen?...who knows...the beauty is...it is your choice ?  You might get 20 replies here...

        April 07 at 3:40 AM view post
        • Samuelly has replied to a post on the message board

          I am soooo against this "screening" method!  Every year my Dr. wants a mammogram and every year I refuse and  we settle on an ultrasound. This year, due to leukemia, I now have a swollen lymph node in my armpit...she wasnt sure that it was in the armpit and therefore not sure it was leukemia related and again asked me to get a mammogram with an ultrasound if they deemed it needed.  I scheduled it but w...

          April 07 at 3:21 AM view post
          • Samuelly has replied to a post on the message board

            No all the rectum was removed...I had an abdominoperitoneal resection which left me with the permanent colostomy.  If you have a permanent colostomy I would say this means everything is removed below the stoma.  Everyone goes to the bathroom but those with a colostomy have the excrement come out thru the stoma placed on their tummy rather than thru the butt.  Irrigation is a way to expell more on a sch...

            February 11 at 2:06 AM view post
            • Samuelly has replied to a post on the message board

              Hi StillDancing I had my cancer in 2010.  I have been irrigating since dec 2010.  My nurse wouldnt let me irrigate till 6 mo after surgery.  As long as your stoma is located in the descending or sigmoid colon and u were regular before your cancer, and u have good use of your hands tgen you should have no problem irrigating.  It is really freeing and wonderful!  I have absolutely no skin issu...

              February 10 at 2:29 AM view post
              • StillDancing

                StillDancing Hi Samuelly;) I had my big surgery March 23. I'm just now starting to feel better...a touch! My Doctor put me on a patch with Fetanyl 75MCG that lasts 72 hours. I'm on my first one now. I'm not dancing at the moment, but can move my bottom a little. When could you sit, move around without pain or just start to feel normal? Thanks, kristine

                April 27 at 5:14 AM
            • Samuelly has replied to a post on the message board

              Hi, So sorry your family is going through this.  I had a very different experience so cant really speak about your case.  I never had any bathroom issues...only pain issues.  Can certainly relate to taking baths to soothe the pain.  About 2 weeks after chemo/radiation, I felt great and was off all pain meds.  Hopefully your husband will begin to feel better soon.  Once he has the surger...

              November 12, 2016 view post
              • Samuelly has replied to a post on the message board

                Seriously?  Please don't take this response as gospel!  I also have a colostomy (5 yrs).  I rarely wear a bag because I irrigate every 2 days.  EVERYONE is different!  I eat onions all the time...I eat everything!  There is a couple of foods I notice make me gassier than usual but I dont cut them out because of a bit of gas!  Steak and peppers(red,green,yellow etc).  Alcohol is...

                October 25, 2016 view post
                • Samuelly has replied to a post on the message board

                  Hi, I was diagnosed over 1 1/2 years ago.  At that time  I found out my brother was diagnosed about 10 years ago with CLL as well.  When he asked what he should be doing, he was told to keep himself in good shape so that when and if it comes time for treatment, they will have a good specimen to work with.  He was is not horrible shape then but it did spur him to take better care of himself.  ...

                  October 21, 2016 view post
                  • Samuelly has replied to a post on the message board

                    Hi, I also have a perm colostomy.  Its been 6 years and also for low rectal cancer.   Sometimes i get a sore on the side of my stoma and get some pain but I've never had persistent pain.  Doesn't seem normal to me.  What are your drs thinking it could be?  Wishing you relief from your pain! :-)

                    August 14, 2016 view post
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                    About Samuelly

                    Survivor
                    Rectal Cancer

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