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Sandy_s_8's Message Board Messages

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I also had never joined a message board in my 40 years, and found this site helpful .It's nice to know there is someone else out there who knows what we are going through with this awful disease.I'm glad to hear your dad did so well with the surgery, and good luck to him with the radiation and temador. My dad finished his radiation 2 weeks ago, and will be restarting his temador within the next 2 weeks, his white blood count dropped too low the middle of Jan., so he ended up stopping the temador. Hopefully everything will go better this time around. There are alot of good times and alot of bad times, we try and cherish the good and work through the bad, but it's not easy. It really has helped me to talk about it and share my feelings and listen to other peoples thoughts, ideas and experiences. Stay strong, as hard as it is, and you can contact me anytime. Good Luck and God Bless you and your dad and family. Sandy
Erica, No reason to apologize for rambling as I certainly rambled on to you. Thanks again for listening (reading) and also for responding. I know what you are saying about your stepmom, my mom spends every waking hour taking care of my dad. She is totally consumed with getting him better but yet the reality as you say is he may never get better. He has really good days and really bad days, just like we do. I hope as you say it gets better for us, as it's only been 2 months since he was diagnosed. On his 65th birthday no less. I think part of what is so hard for me is that my children, ages 15,12 and 6 are so very close to him and my youngest especially is grandpas boy, they don't understand what is really happening. My oldest is very understanding when my dad goes through the confusing stages, very patient with him and good to overlook the repeating of questions and explain things yet again. I do also worry for my mom as my dad is and has been her life for 45 years, she doesn't even drive a car. I have no idea what will become of her, I only live a few miles from them and I will help her in anyway possible but it's not the same. Talk about rambling, I did it again! Good luck and God Bless you and your family. I will put you in my prayers. Thanks Sandy
Erica, Sorry to hear about your dad, atleast surgery was an option for us.This is the toughest battle I have fought in my life so far.We've got wonderful family and friends but it still seems like we are alone in this fight.Everyones life goes back to normal (whats normal?) after they have visited and we still wake up every morning with this awful disease. Sometimes it is too hard for me to spend alot of time with him as he is not the same person anymore and I don't want to remember him the way he is today as opposed to the man I grew up with. I know in my head that I should be thankful that I still have him here and I should cherish these moments, but my heart still breaks to see him like this. I want to remember him as the invincible man he was in my eyes before all this.He does have his good days and we thank God for them, but the radiation has been hard for him, his hair has all fallen out on the sides of his head, which really bothers him. We tell him he's still cute to us. And the temodar has caused sores in his mouth and left him with little appetite. I know I should be Thankful that he's still with us and really enjoy the good times, but one does lose sight of the positive things, and yes we have had some positive things through all this.OK, enough from me, sometimes it feels so good to vent, especially with someone who knows the emotional roller coaster of this disease. Thank You and God Bless. Sandy
Hi Patty, Thank You for your response. We have found the same thing, my dads dr. doesn't want him to try anything while on the temodar. But his radiologist said supplements won't affect his treatments, but to follow the oncologists orders.I've heard so many people say supplements were the winning factor in their personal battle, but of course we don't want to do anything that will interfer with his current care. I think a person just grasps at straws, you hear good things about this and good things about that and you would do anything to save that precious life.Thank You Again and I'll put you in my prayers. God Bless! Sandy
My father was diagnosed with a glioblastoma in early Nov. Had surgery to remove as much of the tumor as possible, just finishing his first week of radiation and temador. Just wondering if anyone out there has any experience with the natural supplements that can be used with the radiation and temador? There are some promising survivor stories on this site and some heartbreaking stories as well. I had never even heard of this until my father was diagnosed, and I've done as much research as I possibly can but am always looking for more.It is such an awful disease and people don't really understand what you are going through. Any info anyone can share with me will be greatly appreciated. God Bless Us All that are affected by this in one way or another. Sandy
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About Sandy_s_8

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