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Sdurnell's Recent CancerCompass Activity

  • Sdurnell has replied to a post on the message board

    I think most recurrences of HPV+ H&N cancer happen within the first two years, and are related to the original cancer.  My radiation oncologist told me that recurrences after 5 years are usually new cancers and likely due to the same thing that caused the first one, but he was talking about tobacco use. I think your best chance to ward off another cancer is to do all you can to strengthen your immune system...

    11 hours ago view post
    • Sdurnell has replied to a post on the message board

      Younpa, Having reduced saliva can be a huge problem for your teeth if you don't follow a rigorous program of oral hygiene meticulously.  Your dentist will make you flexible trays from molds of your teeth, and you will use these nightly to coat your teeth with fluoride, along with extra brushing and flossing.  I have heard here that some people have had their teeth break off at the gum line--you will want t...

      Thursday at 9:13 AM view post
      • Sdurnell has created a new message board discussion

        Here is an article from the NYT about immunology and some ideas about the best ways to use it.  The drug used was Opdivo, one that has been approved for H&N cancer but doesn't work for everyone. https://www.nytimes.com/2018/02/19/health/ovarian-cancer-immunotherapy.html?mabReward=ART_CBD1&recid=10nbgFwmBGE0ZXkeQ1nMMh1ZKcy&recp=2&moduleDetail=recommendations-2&action=click&contentCollecti...

        February 20 at 4:34 AM view discussion
        • Sdurnell has replied to a post on the message board

          I don't think this kind of pain this far out is very unusual, but would make sure all his doctors know about it.  The recovery from this treatment is quite slow and gradual.  He is only 3 months out, and is likely also experiencing other symptoms. Sorry for not seeing this sooner.  I usually only visit the head and neck section of this site, which is much more active.  If you need more answers yo...

          February 18 at 11:58 PM view post
          • Sdurnell has replied to a post on the message board

            Not to be morbid, but dying of head and neck cancer is not easy or pretty.  I read about U.S. Grant's struggles with in operable throat cancer and he ultimately died of starvation, and was in pain, although they mitigated is as much as they could back then.   Palliative care is much, much better these days. Susan

            February 18 at 11:54 PM view post
            • Sdurnell has replied to a post on the message board

              It could be a swollen lymph node, so it's a good idea to get it looked at.  There are all kinds of reasons for enlarged lymph nodes, and cancer is one of the rarer ones, so it's likely that you do dndot have cancer.  Your primary care doctor will likely know what s/he is looking at, or if not, whom to see to diagnose it.   Best of luck to you. Susan

              February 12 at 6:27 AM view post
              • Sdurnell has replied to a post on the message board

                I don't think I was clear enough--I did not have this surgery, but would had I to do it all over again and it was offered. Susan

                February 12 at 6:24 AM view post
                • Sdurnell has replied to a post on the message board

                  Susan, Here are some studies attesting to the efficacy of this procedure: https://www.ncbi.nlm.nih.gov/pubmed/20629074 https://www.ncbi.nlm.nih.gov/pubmed/27171786 https://www.sciencedirect.com/science/article/pii/S1079210405011297 And if you google the procedure and look at images, you can get an idea of where the glands are and where they might be moved to.  I'm not clear whether they are moved back after...

                  February 12 at 6:23 AM view post
                  • Sdurnell has replied to a post on the message board

                    Erin, Your husband's treatment will be harder than mine or some others because of his tonsillectomy.  It's rougher than if we only have it for the lymph nodes.  (I had my tonsils out before I was three, and still have a few memories of it.)  So the fact that he was not completely recovered before radiation started might be making him feel effects early. I am also a proponent of the feeding tube, as t...

                    February 12 at 6:09 AM view post
                    • Sdurnell has replied to a post on the message board

                      It used to be that nearly all head and neck cancer was related to tobacco, but with the increase in folks affected with HPV that has changed.  The HPV makes it more likely for treatment to work in most cases, so I'm hoping it does in yours as well. All the best. Susan

                      February 04 at 1:27 AM view post
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                      About Sdurnell

                      Patient
                      Head and Neck Cancer, Squamous Cell Cancer, Throat Cancer
                      Cancer Nutrition, Radiation

                      I have squamous cell cancer. A neck dissection showed one node positive (<3 cm.) and encapsulated. No primary has been found. I have no risk factors for this condition. Day after tomorrow I go in to have all my teeth pulled (my teeth are OK, but gums not so great). I will need five weeks of radiation, starting as soon as my mouth heals, and have been told not to lose any weight, even though I'm about 15 # overweight. Everyone is hoping I can avoid a feeding tube, but I'm not confident I can eat enough, especially without any teeth. I'd really like advice and support for this.

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