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Sdurnell's Recent CancerCompass Activity

  • Sdurnell has replied to a post on the message board

    Bill, My ENT declared me cured at 2 years NED, but my radiation oncologist made me wait 5.  They both used that other C word, though, and released me from their care. Susan

    Friday at 8:01 AM view post
    • Sdurnell has replied to a post on the message board

      I had surgery first.  My fine-needle aspiration biopsy was not clear as to what type of cancer it was.  So I had surgery, a modified radical neck dissection, because of one enlarged lymph node.  20+ lymph nodes were removed, and pathology showed that it was the only cancerous one, and that it was encapsulated. I might not have had radiation, but they could never find my primary cancer.  So I had ...

      Friday at 7:58 AM view post
      • Sdurnell has replied to a post on the message board

        Mikee, Yes, I still have it (not sure why).  It's triamcinolone 1%. Susan

        Friday at 7:43 AM view post
        • Sdurnell has replied to a post on the message board

          I recommend using a mix of baking soda and salt in lukewarm water to gargle and rinse.  Unlike using meds, he can do this as often as he wants to.  This can help thin the mucus and help him spit it out.  Ginger ale also was ahelp for me, but less and less so as my throat slowly closed up. Some folks use meds such as Mucinex, but the one time I tried it I was violently ill.  No idea whether it act...

          Thursday at 10:38 PM view post
          • Sdurnell has replied to a post on the message board

            Check with the person who is in charge of his feeding tube.  It's may be OK, but he needs to be getting most of his nutrition from something more balanced.  I'd see how he does with whatever they recommend him using first. Susan

            July 18 at 7:54 AM view post
            • Sdurnell has replied to a post on the message board

              I wouldn't worry too much if I were you.  There is no reported link between tonsil stones and tonsil cancer.  But it's good that you are getting it checked out.  The ENT may want to take your tonsils out if you have too much trouble with them.  It is not a fun recovery, but it's nothing compared to treatment for tonsil cancer.  You're young and can tolerate whatever treatment the ENT recommen...

              July 18 at 7:52 AM view post
              • Sdurnell has replied to a post on the message board

                My radiation oncologist gave me emu oil, which was helpful at first, but later I needed something more.  My neck resembled spoiled hamburger--purple and so sore!  So I got a prescription for a steroid cream that worked pretty well.  By a couple of weeks after radiation ended it was feeling pretty normal, and a couple of weeks after that it looked OK too. Susan

                July 18 at 7:47 AM view post
                • Sdurnell has replied to a post on the message board

                  You can do gentle massages and stretches to help the neck.  He is very recently out of treatment, so expect things to improve with time as well.  There are also massage therapists who are trained to help cancer patients.  And he might also try heat, or cold, or alternating between the two. Best of luck to you both! Susan

                  July 18 at 7:41 AM view post
                  • Sdurnell has replied to a post on the message board

                    This is great, Mark!  Congratulations! And thank you for posting it here.  You are giving hope to others who post here and others who merely "lurk," but read all the messages.   Susan, 7+ years out and counting

                    July 18 at 7:35 AM view post
                    • Sdurnell has replied to a post on the message board

                      I call my scar my bullet hole.

                      July 18 at 7:32 AM view post
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                      About Sdurnell

                      Patient
                      Head and Neck Cancer, Squamous Cell Cancer, Throat Cancer
                      Cancer Nutrition, Radiation

                      I have squamous cell cancer. A neck dissection showed one node positive (<3 cm.) and encapsulated. No primary has been found. I have no risk factors for this condition. Day after tomorrow I go in to have all my teeth pulled (my teeth are OK, but gums not so great). I will need five weeks of radiation, starting as soon as my mouth heals, and have been told not to lose any weight, even though I'm about 15 # overweight. Everyone is hoping I can avoid a feeding tube, but I'm not confident I can eat enough, especially without any teeth. I'd really like advice and support for this.

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