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ToddlerFather's Recent CancerCompass Activity

  • ToddlerFather has replied to a post on the message board

    What's the trial you were hoping to get into, Selumetinib ? At least for this one, which I'm playing close attention since my NRAS mutation looks to redifferentiate with it and getting iodine again, I noticed a number of different trials, with some focusing on one mutation/condition, some in others. What's your BRAF mutation, a non-V600E ?  Do you know your mutation burden in order to consider whether immunothe...

    Yesterday at 7:09 PM view post
    • ToddlerFather has replied to a post on the message board

      Frankly, what you are doing has very little correlation to whether you succeed or not in keeping the other half of the thyroid. The non-alternative treatment you could explore is TSH supression, by adding Levothyroxine to what your thyroid already makes, slowing all thyroidean activity. What was determined during biopsy of the lymph node and the half that was taken ? Was it invasive ? And the one component ...

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      • ToddlerFather has replied to a post on the message board

        The description of cutting off blood supply suggests antiangiogenics, which actually cut off blood vessel grow. As already mentioned, not all immunotherapies are made equal; is one of the metastastes accessible for surgical extraction ? Genetic sequencing of it could speed up the convergence to a medication with more chance of success. But if not doing it, trial and error of other medication is better than ...

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        • ToddlerFather has replied to a post on the message board

          My favorites were the keynote on genetic landscape, the keynote on systhemic therapy and the panel on systemic therapy. But even the others while not directly correlated to my condition were good too, but those I watched in backs and forths, while those 3 were almost "binge watching" for me. 

          January 13 at 1:58 AM view post
          • ToddlerFather has replied to a post on the message board

            It seems that your point is not about ex spouse, but about how that spouse became ex. 

            January 08 at 4:13 PM view post
            • ToddlerFather has replied to a post on the message board

              While I have a different primary cancer, the thought process of my onco went thru whether the tumors changed or not. He mentioned that in general they might change in response to chemo treatments, so it seems is usual to happen. You can relate to infections, where anti-biotics end up killing some but the remaining developed resistance. While you are it, it might be useful to consider some sort of NGS (Next Gener...

              January 08 at 4:11 PM view post
              • ToddlerFather has replied to a post on the message board

                TSH, Tg, anti-Tg Antibodies, T3, T4, Free T4. And while medical training usually comes with keeping a distance from patients to maitain's MD mental health, she probably needs to empathize more with your condition at this point. 

                January 08 at 1:45 PM view post
                • ToddlerFather has replied to a post on the message board

                  Sorry for you development, but RIF (Radiation Induced Fibrosis) is a possible side effect but still better than letting the tumor progress. But it's possible to manage it, thru a combination of physical terapy, orthotic (including but not limited to cervical collars), medication and even botox injections, with patient education a key ingredient in the rehabilitation process. Your description suggests that rebuil...

                  January 07 at 10:56 AM view post
                  • ToddlerFather has replied to a post on the message board

                    Oh, now I got a better picture of your issue, sorry for missing it initially. My weight is near 200 pounds, had a TT as well, and I'm taking 188 mg of Levothyroxine so I can achieve TSH supression; wasn't for that, I would need less.Besides TSH, is T3, T4 and Free T4 being measured in your blood work ? Considering you are not feeling well the hormone blood levels are likely off, but it could be assessed if TSH i...

                    January 06 at 4:44 PM view post
                    • ToddlerFather has replied to a post on the message board

                      When you ask whether NIFTP is truly benign, you are forcing a dichotomy that medical science is now avoiding because it doesn't help assessing the risk of having such scenario. I suggest seeing this video about it:https://www.youtube.com/watch?v=SshktjlTeYsIn summary, there is now a 4-stage risk classification where it was 3 before. NIFTP risk is higher than an adenoma but less than an invasive FVPTC like the one I h...

                      January 06 at 10:40 AM view post
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                      About ToddlerFather

                      Patient
                      Thyroid Cancer
                      After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

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