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ToddlerFather's Recent CancerCompass Activity

  • ToddlerFather has replied to a post on the message board

    Note that a decision to stop taking a med causing too much side effects is different from a decision to not even start taking it, which seems to be case if I understood correctly.  I do support a decision to stop taking meds that clearly is generating more harm than good, but I don't support a decision to not even try. 

    June 10 at 3:21 AM view post
    • ToddlerFather has replied to a post on the message board

      While my primary cancer is Thyroid instead of Colon, I believe my case is similar to your wife's, since my mets are also on the lungs. My larger one is about the same as hers, and I brought my CT to a pneumologist; we did counting and volume calculation of the mets, and ended up with mostly the same numbers as the radiologist. What we noticed in the exercise was that this nodule size is close to the pixel resolu...

      June 10 at 3:15 AM view post
      • ToddlerFather has replied to a post on the message board

        Yes, I was also on a low iodine diet, but it was not a radical one. I had specific foods I should not eat like greener leafs, seafood and a few others, based on a study they did with locally available foods.  One of the tests was exactly an iodine urine test to verify the target goal was achieved... but I just had to lower the iodine a bit, not to be in complete withdrawal. Just enough that when combined with T...

        June 07 at 1:48 AM view post
        • ToddlerFather has replied to a post on the message board

          In my experience,  my routine was like this: - First urine and blood tests 11 days before - Interrupting hormone replacement 5 days before - Thyrogen first injection 4 days before - Thyrogen second injection 3 days before - More blood tests, PET-CT and iodine intake 2 days before - More blood tests, WBS, nuclear MD consultation 1st step only requires a lab, 2nd step you do it by yourself, but the later 4 ...

          June 05 at 3:47 PM view post
          • ToddlerFather has replied to a post on the message board

            Both Prednisone and Megace are steroids, with Prednisone being a very commonly prescribed corticosteroid for a myriad of conditions due to anti-inflamatory effects. I'm not familiar with Megace, but it could be a source of feeling weak that you should explore with the MD.As for not taking dronabinol, not taking pain drugs allow him to better pinpoint pain sources that could indicate new lesions. If it's not needed, d...

            June 02 at 4:12 AM view post
            • ToddlerFather has replied to a post on the message board

              BRAF, notably BRAF V600E, is the most common mutation in thyroid cancers, so if only for that information, you would be still in the overall prognosis for Thyroid Cancer, which is good.  Is it papillary differentiated, poorly differentiated or anaplastic ? Which lesions are known so far, either ones that were removed or are still there ? 

              June 02 at 3:27 AM view post
              • ToddlerFather has replied to a post on the message board

                A Thyroid panel blood test including T3, T4 and Free T4 would be helpful in confirming hypothyroidism. While Vitamin D deficiency sounds unrelated, it would be good to also assess parathyroids with PTH, P and Ca blood levels. Some nodules could have compromised the nearby parathyroids.   

                May 27 at 1:05 PM view post
                • ToddlerFather has replied to a post on the message board

                  Note that TGAB is higher than supposed to (less than 4 IU/mL) ], so the Tg level might not be telling the whole story, as Tg is being attacked by antibodies (although a very low amount of them). 

                  May 27 at 2:11 AM view post
                  • ToddlerFather has replied to a post on the message board

                    hypoechoic - something that reflects less sound than it was supposed toisoechoic - something that reflects sound as it was expected to Why do you say it explains how you have been feeling ? While those nodules are not good signs, do you feel symptoms of hypothyroidism ? 

                    May 27 at 2:06 AM view post
                    • ToddlerFather has replied to a post on the message board

                      Her issues could be from her mind, perhaps ? I've got pretty depressed when I got my stage 4 diagnosis, and still need medications to that now. 

                      May 17 at 2:35 PM view post
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                      About ToddlerFather

                      Patient
                      Thyroid Cancer
                      After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

                      I was diagnosed with Thyroid Cancer in 2012, had 2 hemithyroidectomies and was hopeful that I would make a full recovery. After radioactive iodine there was still traces of Thyroglobulin with no findings in PET/CT, until end of 2016, when I was diagnosed with lung metastases. Genomics testing indicate NRAS mutation, and let's see what can be done to fight this formidable foo.

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