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ToddlerFather's Recent CancerCompass Activity

  • ToddlerFather has replied to a post on the message board

    The test can be done with the tumor nodule that was removed in the surgery and was the basis for your diagnosis. 

    Thursday at 11:37 AM view post
    • ToddlerFather has replied to a post on the message board

      If you had a single US and then FNA, it seems too fast to decide to operate. I would prefer some more evidence, like nodule growth, to be there before making such a call. 

      Wednesday at 10:49 PM view post
      • ToddlerFather has replied to a post on the message board

        T3b - The cancer is larger than 4 cm and has grown into the strap muscles around the thyroid (T3b).N1b - It has spread to certain lymph nodes in the neck such as cervical or jugular nodes (N1b). It has not spread to distant sites (M0). Combined with low iodine uptake, I strongly recommend doing a genetic testing (Foundation One or similar) of your tumor. You are in a long race between the development of it...

        Wednesday at 10:47 PM view post
        • ToddlerFather has replied to a post on the message board

          I had half of mine taken away in one surgery, and went back to surgery after a week to take the other half, based on the lab results.  While taking it altogether has some advantages, like monitoring recurrence thru blood tests, it's very unlikely that the surgeon would also take lymph nodes during the first surgery without having compelling evidence of cancer. So even taking it in full in 1st surgery, you might...

          September 17 at 1:51 AM view post
          • ToddlerFather has replied to a post on the message board

            If you can only get one specialist, that would be a Head & Neck surgeon. You need one anyways for the surgery, and most of them are capable enough to handle the clinical aspects of it.  If you can get both a surgeon and an endocrinologist, it would be better; I see little value though in adding an oncologist at this point. 

            September 15 at 2:56 AM view post
            • ToddlerFather has replied to a post on the message board

              Worrying is only required if you are doubt of following medical procedure... if you are, you don't need to be worried before any conclusion is reached. 

              September 11 at 11:57 PM view post
              • ToddlerFather has replied to a post on the message board

                Leslie, The US can't rule out cancer at this point, but it can't say otherwise either.  Besides having or not having cancer, note that Thyroid Cancer is not a common cause of death even for those having it... there are non-cancerous diseases having more morbidity than ThyCa. 

                September 11 at 11:55 PM view post
                • ToddlerFather has replied to a post on the message board

                  On the calcium blood test, it could indicate parathyroids were affected by thryoid surgery. Dosing Phosphorus and PTH in your blood is probably interesting to have a better assessment of their function (or lack thereof). 

                  September 02 at 6:25 AM view post
                  • ToddlerFather has replied to a post on the message board

                    Been there, done that with 2 surgeries.  On what you mentioned: - The fatigue suggests lack of hormone. This might be part of the strategy to make remaining cells the more iodine-avid as possible, but should go away as soon as you find the right hormone dosage for you. - For the 2 weeks of low iodine, it would be better if someone in your state already researched what's usually available in markets that y...

                    September 02 at 6:20 AM view post
                    • ToddlerFather has replied to a post on the message board

                      Even before surgery, start Levothyroxin now, now, now. You don't have to live hypothyroidism since the last century.  Does the ultrasound show throat pressure from the thyroid ? Can the nodules really explain breathing and swallowing issues ? 

                      August 07 at 4:29 AM view post
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                      About ToddlerFather

                      Patient
                      Thyroid Cancer
                      After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

                      I was diagnosed with Thyroid Cancer in 2012, had 2 hemithyroidectomies and was hopeful that I would make a full recovery. After radioactive iodine there was still traces of Thyroglobulin with no findings in PET/CT, until end of 2016, when I was diagnosed with lung metastases. Genomics testing indicate NRAS mutation, and let's see what can be done to fight this formidable foo.

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