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Wickedinns's Recent CancerCompass Activity

  • Wickedinns has replied to a post on the message board

    Yes Carly it is weird but that is the way the rumble.... our first oncologist was brutal and everything was her way or no way... she even looked at me and to,d me she is the one they send the ones to who aren’t going to make it....well that was in summer of 2016...he is still here and fighting. Our new oncologist is only for the clinical trial hubby is on...he is so much more positive and does not discuss time lines ...

    October 08 at 12:41 PM view post
    • Wickedinns has replied to a post on the message board

      You are amazing Carly...don’t ever give up hope ! I don’t use this site very often...I prefer smart patient...much more user friendly but I try and keep up with you... My hubby is almost finished two years of keytruda but it attacked his liver and now we wait to see the next step. He has been on high dose THC/ CBD cannabis since six months after dx... I am a believer in health and positive mind as well as natural...

      October 01 at 9:01 PM view post
      • Wickedinns has replied to a post on the message board

        I am storing all this info for future reference!!! My hubby is coming to an end of a clinical trial...actually had to stop just short of it as it attacked his liver... a doctor I know in Germany put me in touch with her oncologist daughter in England and she suggested mistletoe... all this info is great !!! Prayers for Scott...you have worked so hard and been a wonderful advocate and strong supporter !!! Keep the fai...

        September 25 at 1:27 AM view post
        • Wickedinns has replied to a post on the message board

          Hi Sally My husband was dx March of 2016... adenocarcinoma stage 4 with nets to the liver...swollen lymph node and adrenal gland. Prognosis was grim but he has an amazing attitude as do I... he was also her 2 negative. He had five rounds of oxyplatin, exloda and another I forget...it was discontinued as it was not doing anything and he became blocked. He was scheduled for ten rounds of radiation but that totally s...

          September 20 at 2:23 PM view post
          • Wickedinns has replied to a post on the message board

            Hi...how is Mike doing??? Hope all went well with his scan. I sent you a private message but for some reason they don’t always go through on this site. I have tried contacting them about it but to no avail... I am on another site called Smart Patients. There are a lot of great people on there too who can shed some light on many things... All the best Wanda

            July 03 at 2:00 AM view post
            • Vanisle60

              Vanisle60 I also was curious about what oil you use?

              July 03 at 2:38 AM
          • Wickedinns has replied to a post on the message board

            I am so sorry to hear of your brother’s passing.... cancer of any type is horrendous but EC seems to be very bad because no matter what stage it is a hard fight. We know of people who were not as advanced as my hubby who passed because it came back after surgery. That is why even if it was an option we are not sure he would have it... it is a tough fight... thank you for sharing your story as painful as it must have ...

            July 03 at 1:54 AM view post
            • Wickedinns has replied to a post on the message board

              Hi How are things going ??? Did you find out more about the clinical trial ??? Wanda

              July 03 at 1:39 AM view post
              • Wickedinns has replied to a post on the message board

                My husband stage IV adenocarcinoma..March 2016, Mets to liver, swollen lymph and adrenal gland... after chemo/radiation failed was given months to live...started keytruda (clinical trial) oct 2016....tumour either gone or small small to see, has a shrinking liver lesion that they feel may be scar tissue and everything else gone... he is still very thin but keeps on going. He eats as healthy as possible, takes cannabi...

                June 29 at 12:10 AM view post
                • Wickedinns has replied to a post on the message board

                  My husband has never smoked in his life... he uses marajuana in oil form. He has been taking caps for the past almost two years, is on keytruda (1 1/2 yrs), healthy diet and an amazing attitude. His tumour is either gone or too small to see, one liver lesion gone and the other shrunk to more than half its original size (they think now it may be scar tissue), and his adrenal and lymph nodes are normal...oh and his ste...

                  June 14 at 12:36 PM view post
                  • Wickedinns has replied to a post on the message board

                    Hi Explore options for ingesting it... we were told get it into your body anyway you can. Suppositories was one of the options given to us. If you put the oil into caps you can do it that way. He shouldn’t have the high he gets with swallowing .... hope that helps...

                    June 13 at 11:26 AM view post
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