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Wickedinns's Recent CancerCompass Activity

  • Wickedinns has replied to a post on the message board

    Hi...how is Mike doing??? Hope all went well with his scan. I sent you a private message but for some reason they don’t always go through on this site. I have tried contacting them about it but to no avail... I am on another site called Smart Patients. There are a lot of great people on there too who can shed some light on many things... All the best Wanda

    July 03 at 2:00 AM view post
    • Vanisle60

      Vanisle60 I also was curious about what oil you use?

      July 03 at 2:38 AM
  • Wickedinns has replied to a post on the message board

    I am so sorry to hear of your brother’s passing.... cancer of any type is horrendous but EC seems to be very bad because no matter what stage it is a hard fight. We know of people who were not as advanced as my hubby who passed because it came back after surgery. That is why even if it was an option we are not sure he would have it... it is a tough fight... thank you for sharing your story as painful as it must have ...

    July 03 at 1:54 AM view post
    • Wickedinns has replied to a post on the message board

      Hi How are things going ??? Did you find out more about the clinical trial ??? Wanda

      July 03 at 1:39 AM view post
      • Wickedinns has replied to a post on the message board

        My husband stage IV adenocarcinoma..March 2016, Mets to liver, swollen lymph and adrenal gland... after chemo/radiation failed was given months to live...started keytruda (clinical trial) oct 2016....tumour either gone or small small to see, has a shrinking liver lesion that they feel may be scar tissue and everything else gone... he is still very thin but keeps on going. He eats as healthy as possible, takes cannabi...

        June 29 at 12:10 AM view post
        • Wickedinns has replied to a post on the message board

          My husband has never smoked in his life... he uses marajuana in oil form. He has been taking caps for the past almost two years, is on keytruda (1 1/2 yrs), healthy diet and an amazing attitude. His tumour is either gone or too small to see, one liver lesion gone and the other shrunk to more than half its original size (they think now it may be scar tissue), and his adrenal and lymph nodes are normal...oh and his ste...

          June 14 at 12:36 PM view post
          • Wickedinns has replied to a post on the message board

            Hi Explore options for ingesting it... we were told get it into your body anyway you can. Suppositories was one of the options given to us. If you put the oil into caps you can do it that way. He shouldn’t have the high he gets with swallowing .... hope that helps...

            June 13 at 11:26 AM view post
            • Wickedinns has replied to a post on the message board

              Hi Aditya There is no cost to us for the clinical trial.. as a matter of fact the drug company gives us a few dollars per visit. It is for two years and then should he need after the trial ends, another year for free. So until trial is over, we won’t know the cost. He hasn’t had any side effects really except a bad bout of diarrhea several months ago. I truly believe everything is working together...pembro, canna...

              June 06 at 2:33 PM view post
              • Wickedinns has replied to a post on the message board

                No worries about the questions...that is what these sites are for...to help each other through a very tough journey !!! My hubby couldn’t have the ramucirumab because of his stent ... so that’s when he got into the clinical trial for pembrolizumab Oct 2016 with first treatment November 2016. He is still in the trial and doing well...still skinny like I said but still living. He walks as much as he can and does odd j...

                May 30 at 8:30 PM view post
                • Wickedinns has replied to a post on the message board

                  Hi My husband was dx March 2016 with adenocarcinoma, Mets to the liver, swollen adrenal gland, swollen lymph node and a possible spot on lung. He did the palliative chemo regime which failed and had six rounds of ten radiation which had to be stopped because he totally blocked and could not swallow his own saliva. He is also HER 2 negative. He ended up with a stent which was scary because it limited the chemos he ...

                  May 29 at 5:27 PM view post
                  • Wickedinns has replied to a post on the message board

                    Hi Steve Not sure if you are directing this to me.... I really haven’t looked into proton therapy or carbon ion therapy. We will probably look into other options down the road should the keytruda cause issues... we have been busy settling back into our home as we have been away for treatment for the winter but now the weather is better we fly back and forth every three weeks... tiring but a must. We also just cele...

                    May 23 at 10:58 AM view post
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