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abuscaglia's Message Board Messages

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Hi Jen,

Sorry about your husbands diagnosis as well. Where is your husbands Tumor located that they were able to do a biopsy?

Fortunately, all the side effects from radiation dissapeared a few months later.  My first MRI post radiation showed no changes but they did wait a certain amount of time to do it because they wanted to wait until the brain was not swollen anymore.

I have not been on avastin.  I do have to admit one of the hardest things was getting off the steroids. My body was not happy.  A few months ago I decided to stop taking all the medication I was taking (steroids,acid reflux med,sleeping pills, anti depression med, etc..)  Now I only take my 5 Chemo pills and the nausea pills during chemo and I feel so much better and I'm not recommending anyone to do this it's just what worked for me.  I now take a daily "spiritual" med that I've found to be more effective.

God bless you and your husband on his next MRI.

Angie B

Hi Gala and everyone,

I'm 38 years old and was diagnosed with DIPG May 2016. Because of the location it was inoperable. I was treated with a combination of radiation and chemo and I continue with chemotherapy (Temodar) for a total of 18 cycles. The tumor reduced a tiny bit and has since remained stable.

Since adult DIPG is so rare I was really glad to find these messages.  I'm very interested in hearing how the doctors are treating your relapse and I will have you in my prayers for your quick recovery.

Angie B

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About abuscaglia

Patient
Brain Cancer
Spiritual Support

I was diagnosed with Adult DIPG in May 2016. I was treated with a radiation and Chemo combo and Continue on chemo for a total of 18 cycles after radiation. Tumor has remained stable with a very small reduction but I believe in my complete healing.

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