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apenrod's Recent CancerCompass Activity

  • apenrod has replied to a post on the message board

    http://btcocktails.blogspot.com/ and https://virtualtrials.com/pdf2017/treatment_options_gbm_2017.pdf I found these to be the most helpful in looking at what to put my mom on and helped to figure out the dosages. Hope this is helpful to you.

    September 17, 2018 view post
    • apenrod has created a new message board discussion

      Has anyone tried the new treatments using the adenovirus (DNX-2401) and pembrolizumab or anything similar? How were the side effects?  Any information would be great. Thanks.

      August 29, 2018 view discussion
      • apenrod has replied to a post on the message board

        We are doing a modified version of a cocktail approach based on his ideas and what is going on in clinical trials. There is a good site called the Musella foundation that has up to date stuff from Ben on there to know more about it. Also he is alive and has conversed with my aunt about some different questions. He takes a while to answer but if he can he will write back. He has gotten older and does have issues from ...

        March 04, 2018 view post
        • apenrod has replied to a post on the message board

          Yes he was a great starting point for me to research from. I was really glad he took the time to do that. I have seen across the board people using the mushroom extract so I hope it helps you guys also.

          January 30, 2018 view post
          • apenrod has replied to a post on the message board

            Hi Binh, I have read that paper by Ben Williams and his book. Unfortunately his cancer was very receptive to treatments and is very different than my mothers tumor so i'm trying to weed out things that he now feels aren't helpful.   Our oncologist is very strict to the standard of care and doesn't advocate use of any other treatments. On supplements he just wanted us to make sure we watched antioxidants.&n...

            January 30, 2018 view post
            • apenrod has replied to a post on the message board

              Thanks so much and I'm sorry to hear about your mom also. That list is great. We are using many of the same supplements in our cocktail approach. Its great to see what others are doing to see if we can get closer to beating this crappy cancer.  :)

              January 30, 2018 view post
              • apenrod has replied to a post on the message board

                That is great that he hasn't had any side effects. Everything i'm reading in clinical studies are showing taking chloroquine only during radiation/chemo, i'm trying to figure out if its best to take daily or just in that period of time.  Was it mainly the cocktail thread you found this out at?  Those are all very similar supplements that we are using also. Have you looked into PSK (a mushroom extract used i...

                January 30, 2018 view post
                • apenrod has replied to a post on the message board

                  Kirsty, I'm so sorry to hear you are going through this with your son. Have you guys noticed any significant side effects from the meds?  Also are you using a CBD oil with THC or just he plain hemp oil?  I will look into that thread more. Thank you!

                  January 29, 2018 view post
                  • apenrod has created a new message board discussion

                    Hi, My name is Ashley. My mom was diagnosed with a stage 4 glioblastoma (unmethylated) on December 10th, 2017.  She is only 54. She had headaches for two weeks that worsened causing us to take her into the ED. She went into surgery the next day for a 4cm mass in her left parietal lobe. This disease as everyone know rocks your world I feel we are in an alter reality now.  I've been researching non stop what...

                    January 27, 2018 view discussion
                    • apenrod has replied to a post on the message board

                      Did you find out anymore on the use of supplements during radiation? I'm coming up with confliciting data back and forth. My mom was diagnosed on December 6th and started radiation and chemo one week ago. I want to give her the best chance at survival but I also don't want to hinder the radiation. thanks, Ashley

                      January 19, 2018 view post
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                      About apenrod

                      Caregiver, Researcher
                      Brain Cancer
                      Alternative Treatments, Cancer Diagnosis, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Naturopathic Medicine, Radiation, Supplements

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