Loading...

bizzerbee's Recent CancerCompass Activity

  • bizzerbee has replied to a post on the message board

    The only thing you can really do is be candid with your parents. I would sit down with them and first see how their are coping and what stage in grief they are at. Then depending on that I would be frank and say that the past has bothered you and life always makes us think there is time to figure things out but this event has shown you that is not really true and now you are feeling immense sadness that your children...

    September 23 at 7:58 PM view post
    • bizzerbee has replied to a post on the message board

      Hello, My husband was diagnosed last May. He had a golf ball sized grade 3 AA. He had a gross total resection and just finished his 12 cycle of chemo.  The beginning of this diagnosis is really rough but it does get easier. The reason they do a one month rest period is for the brain to settle after surgery. radiation is intense on the brain and it would be understand to h it and further damage his brain cells. ...

      July 17 at 9:16 PM view post
      • bizzerbee has replied to a post on the message board

        My husband was diagnosed last may with an Anaplastic Astrocytoma. I can say assurdly that ALL the research shows that a good resection is key to prolonged survival. My husband and I were also very scared at the idea of brain surgery but we were at a good hospital and we knew our surgeon was really good at his job. This confidence in our medical team made it so much easier. My husand was able to have a gross total res...

        April 26 at 7:38 PM view post
        • bizzerbee has replied to a post on the message board

          Have you asked about Avaistin or would that cause the same reaction to other chemicals. It is not chemo persay but it is a drug that is delivered by an IV. It is one of the best drugs out there for treating sysmptoms that are causeing swelling and scaring in the brain. I do not know what kind of issue you have that makes you have convulsions so I do not if this drug would work but I do know that is has helped many ot...

          April 16 at 8:12 PM view post
          • bizzerbee has replied to a post on the message board

            Hello, So, my story is a little different since it is my husband with an AA3 and not myself. However, we were in the midst of trying to have our second child when this all came to be in May of last year. We did bank some sperm and we did try IUIs which all failed. We saved a little sperm for emergency IVF which, we as well can not afford. I did A LOT of research and it seems that most men and women do not become ste...

            April 16 at 8:07 PM view post
            • bizzerbee has replied to a post on the message board

              Hello, You are in a really tough spot. Your son is old enough that he is most likely going to do whatever he wishes.. which is his right. However, if you want to have open conversations with him there is plenty of research that shows that Radiation and chemo extends pateints overal survival by almost double. I get that he may worry about side effects. I am sure imagining radiation and chemo it seems so scary and awu...

              March 21 at 7:57 PM view post
              • bizzerbee has replied to a post on the message board

                Thank you for responding. May I ask if you were able to conceive naturally or did you do IVF? I wish I could find some stats on his odds of being infertle. It would be so hard to find the money for IvF and if we knew we had a good chance he will be fertile again then waiting would be easier. It sucks that there is so little information on the subject.

                February 10 at 1:39 AM view post
                • bizzerbee has replied to a post on the message board

                  Hey BT mama, My heart hurts for you. My husband has an AA3 and I am struggling to accept his fate. He is such an amazing human being and his presence in the world has a far greater impact than mine. I too wish it were me and not him. If it was my son it would absalutely break my heart. Be strong mama and know that it is also in your right to let the facade down every once in a while. It is good for your other childr...

                  February 08 at 4:53 PM view post
                  • bizzerbee has created a new message board discussion

                    Hello, I have a question and I cannot find solid information online. Was hoping maybe I could at least get personal stories here.  My husband was diagnosed with AA3 in May. He had a gross total resection and is about to start cycle 7 of maintence. We were only able to bank a small about of sperm prior to treatment. We have tried 6 rounds of iui and each has failed. We are now faced with the decision to save ou...

                    February 08 at 2:57 PM view discussion
                    • bizzerbee has replied to a post on the message board

                      5 years is a big deal! That is so great that you are doing so well. When my husband was diagnosed it really knocked me sideways. He is young, was 31 at diagnosis. We have a little boy. Somedays when I read others sucesses I begin to have hope for our future. Other times I am still filled with such worry and sadness. Brain cancer seems so different from other cancers. So much uncertainty from month to month. Anyway, ...

                      November 15, 2018 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About bizzerbee

                      bizzerbee has not shared any information about themselves. Send them a message to tell them you'd like to find out more about them or add them as a friend.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.