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bizzerbee's Recent CancerCompass Activity

  • bizzerbee has replied to a post on the message board

    My husband was diagnosed last may with an Anaplastic Astrocytoma. I can say assurdly that ALL the research shows that a good resection is key to prolonged survival. My husband and I were also very scared at the idea of brain surgery but we were at a good hospital and we knew our surgeon was really good at his job. This confidence in our medical team made it so much easier. My husand was able to have a gross total res...

    April 26 at 7:38 PM view post
    • bizzerbee has replied to a post on the message board

      Have you asked about Avaistin or would that cause the same reaction to other chemicals. It is not chemo persay but it is a drug that is delivered by an IV. It is one of the best drugs out there for treating sysmptoms that are causeing swelling and scaring in the brain. I do not know what kind of issue you have that makes you have convulsions so I do not if this drug would work but I do know that is has helped many ot...

      April 16 at 8:12 PM view post
      • bizzerbee has replied to a post on the message board

        Hello, So, my story is a little different since it is my husband with an AA3 and not myself. However, we were in the midst of trying to have our second child when this all came to be in May of last year. We did bank some sperm and we did try IUIs which all failed. We saved a little sperm for emergency IVF which, we as well can not afford. I did A LOT of research and it seems that most men and women do not become ste...

        April 16 at 8:07 PM view post
        • bizzerbee has replied to a post on the message board

          Hello, You are in a really tough spot. Your son is old enough that he is most likely going to do whatever he wishes.. which is his right. However, if you want to have open conversations with him there is plenty of research that shows that Radiation and chemo extends pateints overal survival by almost double. I get that he may worry about side effects. I am sure imagining radiation and chemo it seems so scary and awu...

          March 21 at 7:57 PM view post
          • bizzerbee has replied to a post on the message board

            Thank you for responding. May I ask if you were able to conceive naturally or did you do IVF? I wish I could find some stats on his odds of being infertle. It would be so hard to find the money for IvF and if we knew we had a good chance he will be fertile again then waiting would be easier. It sucks that there is so little information on the subject.

            February 10 at 1:39 AM view post
            • bizzerbee has replied to a post on the message board

              Hey BT mama, My heart hurts for you. My husband has an AA3 and I am struggling to accept his fate. He is such an amazing human being and his presence in the world has a far greater impact than mine. I too wish it were me and not him. If it was my son it would absalutely break my heart. Be strong mama and know that it is also in your right to let the facade down every once in a while. It is good for your other childr...

              February 08 at 4:53 PM view post
              • bizzerbee has created a new message board discussion

                Hello, I have a question and I cannot find solid information online. Was hoping maybe I could at least get personal stories here.  My husband was diagnosed with AA3 in May. He had a gross total resection and is about to start cycle 7 of maintence. We were only able to bank a small about of sperm prior to treatment. We have tried 6 rounds of iui and each has failed. We are now faced with the decision to save ou...

                February 08 at 2:57 PM view discussion
                • bizzerbee has replied to a post on the message board

                  5 years is a big deal! That is so great that you are doing so well. When my husband was diagnosed it really knocked me sideways. He is young, was 31 at diagnosis. We have a little boy. Somedays when I read others sucesses I begin to have hope for our future. Other times I am still filled with such worry and sadness. Brain cancer seems so different from other cancers. So much uncertainty from month to month. Anyway, ...

                  November 15 at 1:41 PM view post
                  • bizzerbee has replied to a post on the message board

                    There are a bunch of Glioblastoma groups on facebook. I would join and ask on there as well. I just know I have seen people posting about being on disability and SS with the same and lesser diagnosis as you. Because this type of cancer is considered "incurable" and remission is not a term the doctors use I do not see why you would need active tumor growth to be approved. Seriously, I really think you need to push the...

                    November 14 at 1:56 PM view post
                    • bizzerbee has replied to a post on the message board

                      If I was you I would locate a cancer support group in your area. One like Gildas Club. They tend to have people that are trained in helping with these types of situations. I am totally suprised you were denied. I know other who have AA3s which has a slightly better prognosis and they are automatically granted social security. Find someone to help you. You should not be struggling to make ends meet and not getting sca...

                      November 13 at 3:47 PM view post
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