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bizzerbee's Recent CancerCompass Activity

  • bizzerbee has replied to a post on the message board

    Now that he is done with maintene is he less foggy and tired? I am hoping that it is just chemo/treatment and not his forever norm. He used to love to boulder climb in the gym but hasnt in months since he just has no extra energy to work out. 

    September 20 at 6:44 PM view post
    • bizzerbee has replied to a post on the message board

      Hey, My  husand is also doing really well. We were on summer break during radiation so my husband did not need to work but now the school year has begun and he is back in the classroom full time. He is definitly more fatigued than he used to be and often feels like he has hit a wall. He did one round of maintence chemo and it went really well he had no nausea just some tiredness by day 5/6. We have not had our ...

      September 19 at 1:04 PM view post
      • bizzerbee has replied to a post on the message board

        My husband is also IDH1 mutated but was not co deleted or methylated. Did you already do radiation?

        August 04 at 1:53 PM view post
        • bizzerbee has replied to a post on the message board

          My husband is the one with an AA3 but I have done so much reading in the subject in order to help him and I am amazed by how little is understood about brain cancer in general and then AAs. I am glad your doctors are hopeful! Were you able to have a full resection? My husbands tumor was the size of a golf ball in his right frontal lobe. Despite the size he had no swelling and it did not shift his midline. This says t...

          August 03 at 4:04 PM view post
          • bizzerbee has replied to a post on the message board

            First, congrats on making the ten year mark!!!! That is amazing!! Have you have any reoccurrences during that time? What was your treatment? When you say alien type do you mean IDH1 mutated?

            August 03 at 3:58 PM view post
            • bizzerbee has replied to a post on the message board

              I agree with PP dex can certainly alter ones mood to be more angry and short tempered but at the same time the triggers are real. The disease is real and has its own real emotional impacts. I would speak to your loved one. Try and start an open dialogue about it. I spoke with my husbands NO about his mood swings and the three of us talked about it. It was helpful for both myself and my husband.

              July 16 at 11:07 PM view post
              • bizzerbee has replied to a post on the message board

                Wow amazing that you were able to get pregnant. My husband and I were trying for our second when this all happened. Have you been reoccurrence free this whole time?

                July 10 at 7:10 PM view post
                • bizzerbee has replied to a post on the message board

                  Amazing!!!! So wonderful. I Hope so much this will be my husbands outcome as well. What was your treatment? Did you get any genetic testing on your tumor? I wish you many more years of running!

                  July 09 at 4:13 PM view post
                  • bizzerbee has replied to a post on the message board

                    Hello, I am sorry your son is having such a hard time. My husband was dx in May and he too had some speech delay that made him very self conscious. I would remind your son that the brain is a beautiful thing that is plastic in nature. It has incredibly abilities to heal and regrow lost connections. A speech therapist or occupational therapist can help he just needs to be consistent and work on rebuilding those bra...

                    July 09 at 4:11 PM view post
                    • bizzerbee has created a new message board discussion

                      Dodger, I have been reading through the backlog of posts on this site. So many of your posts have me hope while also being informative. Wondering how you are doing? Bryce

                      June 25 at 3:23 PM view discussion
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