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bl2860's Recent CancerCompass Activity

  • bl2860 has created a new message board discussion

    My dear husband Michael was diagnosed of GBM4 on 06/04/2016. he has had a very high blood presure (over 160 and 110) and severe headache with vomiting on that day, so we took him to the hospital where he was later on diagnosed. his cancer cells has spreaded from his right side lobe to the left, causing 3 new satellite lesions just 5 months after surgery. luckily his condition has started to become stable since last D...

    May 17 at 1:11 PM view discussion
    • bl2860 has replied to a post on the message board

      Hi rward, great to know your wife is doing so well now. after some bad MRI results, we sent my husband's tumour for a gene test, unfortunately his tumour was tested to be unmethylated, his oncologist was considering changing his meds, then miracle appeared. l also don't know why after several bad scans, temodar seems to start working now. l can only think it was from GOD's blessing. our oncologist wanted my husband t...

      April 25 at 12:32 PM view post
      • bl2860 has replied to a post on the message board

        Hi Jim, May l know which brand of curcumin you are taking? thanks

        March 22 at 3:33 PM view post
        • bl2860 has created a new message board discussion

          l have posted before about my husband Michael's condition;  he had had 3 bad mris after surgery, his cancer cells has spreaded from the right lobe to the left, causing 3 new satellite lesions just in 6 months. l have prayed to God everyday and God has shown me the miracle.thanks to God Michael is starting to have good mris. he has had two good mris so far, one in December showing one lesion has become smaller, t...

          March 22 at 11:43 AM view discussion
          • bl2860 has replied to a post on the message board

            Thanks Catherine for the info. my husband was diagnosed in April 2016,  He had surgery and most of the tumor was removed from his right temporal lobe too. he is due to start his 8th cycle of temozolomide next week. he is doing well but his MIRs never showed good results.his first MRI which was done 3months after the surgery already showed a possible recurrence, 1 month later a second MRI showed 2 satel...

            March 02 at 11:05 AM view post
            • bl2860 has created a new message board discussion

              Hi everyone, l'v been struggling on whether l should try adding curcumin to my husband's treatment for his recurrent GBM. l know it's good but my husband is allergy to Bactrim which contains sulfamethoxazole, which causes Stevens-Johnson syndrome to him. (Stevens Johnson syndrome is a rare, serious disorder.of skin and mucous membranes ) Any idea if my husband can take curcumin? Any&nbs...

              February 01 at 12:27 PM view discussion
              • bl2860 has replied to a post on the message board

                Hi Ozgirl, thanks for your reply.sorry l haven't been here for long time, with a new born at home, l hardly have time to surf on the Internet now. Don't worry about the question mark, actually l didn't even notice there are question marks at the end:) Did your doctor help you to contact Roche or did you contact Roche personally? l was told last year a doctor was failed trying to help one of his patient to get free...

                January 31 at 10:25 AM view post
                • bl2860 has replied to a post on the message board

                  Hi Ozgirl,  thank you for your reply. did you only need to pay the first 5 dose?l was told there was a roche patient scheme(?) which can offer patients with free dose of Avastin after patients had paid for few doses, not sure if you have heard of it.

                  January 04 at 11:02 AM view post
                  • bl2860 has replied to a post on the message board

                    Hi Ozgirl,  thank you for your reply. did you only need to pay the first 5 dose?l was told there was a roche patient scheme(?) which can offer patients with free dose of Avastin after patients had paid for few doses, not sure if you have heard of it.

                    December 13 at 2:40 AM view post
                    • bl2860 has created a new message board discussion

                      Hi all, lm new here, this is my first post. we are in Australia. theres no much treatment options for GBM4 as in US, so lm hoping l can find some answers or suggestions here. My husband (38 yo) was diagnosed on 6/4/2016, he had surgery the following morning because his tumor was already 7*5*6. the surgery was very successful with no side effect left at all. he was then treated with radiology together with temozolom...

                      December 01 at 7:27 AM view discussion
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