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bobspez's Recent CancerCompass Activity

  • bobspez has replied to a post on the message board

    Marley 8, first I'd like to say that many people who have posted here have joined the private facebook group called CMML FRIENDS That group has much more traffic and posts than this forum does, so it's worthwhile joining to get a larger number of responses. I also have CMML and am 71 and have been on watch and wait since Sept., 2016.  CMML presents very differently for different patients. As far as the docto...

    February 14 at 11:20 PM view post
    • bobspez has replied to a post on the message board

      Ed, it sounds like you are doing well. From what I have read liver GHVD is frequent after transplant. It sounds like yours is mild at present. Hope the ursodiol works to get your numbers down.

      January 29 at 9:51 PM view post
      • bobspez has replied to a post on the message board

        Congratulations Ed. That's great news. Thanks for posting.

        November 07 at 4:13 PM view post
        • bobspez has replied to a post on the message board

          If you are on Facebook there is a private group called CMML FRIENDS that has over a hundred members (poeple who are diagnosed with CMML or their care givers). Some of the people who used to post here are in that group now. There's usually numerous member posts every day.

          September 19 at 8:26 PM view post
          • bobspez has replied to a post on the message board

            I was in a similar position several years ago. In 2013 my monocytes were above normal and in 2014 were above 1.0. Both my urologist and my cardiologist said it was nothing to be concerned with because my other blood counts were all normal. My GP was advising me to see a hematologist for possible leukemia but I didn't until 2016 when I was hospitalized with afib and pleural effusions. At that time my bone marrow biops...

            July 05 at 6:01 PM view post
            • bobspez has replied to a post on the message board

              I believe Vidaza can be given in IV form, either with keping the line in the hand or arm for several days, or with a permanent port or pic line that is inserted under anesthesia. I don't have personal experience with it. I did receive 8 weekly infusions of another chemo and just let them insert a line each time. When I was in hospital, they changed my IV line about once a week.

              May 02 at 7:16 PM view post
              • bobspez has replied to a post on the message board

                Best of luck Ed and Captnike on your continued recovery. Thanks for sharing your stories.

                March 27 at 1:03 AM view post
                • bobspez has replied to a post on the message board

                  Thanks Connie, You as well. Bob

                  March 12 at 10:31 PM view post
                  • bobspez has replied to a post on the message board

                    I started to watch it but as soon as I heard the words "in the future" I turned it off. The immunotherapy stuff I have seen before, as well as the targeted gene therapies. I had a biologic type of chemo (Rituxan) that eliminated my lymphoma in about 8 weeks, but then the cmml popped up.  I do my very best to live in the present and not think about the future until it gets here.

                    March 12 at 6:16 PM view post
                    • bobspez has replied to a post on the message board

                      As far as I know, dandelion root has killed cmml cells in the lab, but no trial has yet reported any results with human subjects. The Canadian trials were supposed to start in 2016, but I haven't seen any published results, or even know whe or if the trial actually started.

                      March 08 at 5:25 PM view post
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