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boisid's Recent CancerCompass Activity

  • boisid has replied to a post on the message board

    Pretty much the same with my hemotologist- he's most concerned with keeping the platelet level below 600,000. Best regards Barry

    June 14 at 9:13 PM view post
    • boisid has replied to a post on the message board

      Hi All, Yes, Cindy is correct. My ET was first observed when I was 40 or 41. At the time it didn't even have a name! It was simply described as a Myleoproliferative disorder. At the time my count was 1-1.2 million. It was watched for many years and generally was in the range of 800,000 to 1 million. I had zero symptoms. Finally went to a top hemotologist/oncologist in my area (central NJ), and as I was then 61 or s...

      June 14 at 2:55 PM view post
      • boisid has replied to a post on the message board

        Hello Elena, First and foremost, do not panic. Essential Thrombocytosis is pretty easily manageable, and considering your daughter's youth, she likely will be monitored without being medicated. In order to be able to recommend a doctor/specialist, it would be helpful to know where you live, i.e. city and state. Best regards Barry

        August 22 at 5:11 PM view post
        • boisid has replied to a post on the message board

          Hello Home, I am certainly not a doctor, but it is difficult to believe that a anti-acne drug, even one as strong as Acutane, can cause leukemia or myelofibrosis. Regarding the latter, here are typical symptoms (from a Mayo Clinic article: Myelofibrosis usually develops slowly. In its very early stages, many people don't experience signs or symptoms. As disruption of normal blood cell production increases, signs a...

          March 08, 2017 view post
          • boisid has replied to a post on the message board

            That's great news Allen! Best regards Barry

            November 10, 2016 view post
            • boisid has replied to a post on the message board

              Hi Karen, Are you sure that's the nname of the drug you use. Do you mean Anagrelide ? Best regards Barry

              July 02, 2015 view post
              • boisid has replied to a post on the message board

                While I understand your concern, it would not be appropriate to give you medical advice as I am not a doctor. What I wrote before is my experience and learning. Keep conferring with her hemotologist, and best of luck and health. Bestr regards Barry

                July 01, 2015 view post
                • boisid has replied to a post on the message board

                  Hello Rshah, You are correct. Hydroxyurea, aka hydrea, does indeed suppress platelet production, but also white and red blood cells. While 3.6 is somewhat low, the doctors look at hemoglobin level as just as, if not more, important. As long as her doctor is monitoring the situation, Mom should be OK. Best regards Barry

                  July 01, 2015 view post
                  • boisid has replied to a post on the message board

                    Hello. There is an entire thread on the subject of ET, and you will get much information there. Some of it is also nonsense, but it is a good place to start.Here is a link: http://www.cancercompass.com/message-board/message/all,4093,0.htm I am in the same situation as you, although my ET was first noticed about 27 years years ago before it even had an "official" name. It was simply described as a myleoproliferative...

                    April 06, 2015 view post
                    • boisid has replied to a post on the message board

                      Hi Melodee, I have had high platelet readings since they have been measuring it! It was first noticed when I was 41 years old (I'm now 68), and no name was given to it other than the very generic "myeloproliferative disorder.". My platelet levels always hovered around 1 million and as high as 1.2 million. Finally, about 6 or 7 years ago, I was given the diagnosis of essential thrombocytosis, or ET.  My hemotol...

                      December 22, 2014 view post
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