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butler's Recent CancerCompass Activity

  • butler has replied to a post on the message board

    Just another finishline to cross!   Congratulations to you both! Sara in MA...near the Cape

    April 10 at 4:00 PM view post
    • butler has replied to a post on the message board

      What I didn't know until recently was that theXylimeltswere available and actually stick/adhere anywhere moist on the gumline, roof of mouth etc.  No choking hazard and work wonders. Sara in MA

      April 10 at 3:55 PM view post
      • butler has replied to a post on the message board

        Diana, Thank you for sharing your Dr. and resources with me.  I have forwarded the info to my sister in Vero. Sara in MA

        April 10 at 3:51 PM view post
        • butler has replied to a post on the message board

          Harbour, Trust your instincts and look for a new team if your insurance allows it.  I'm not certain of your condition, but it sounds like your Dr.s are giving you conflicting advise.  A second opinion never hurts, but bad decisions do. Good luck Sara in Massachusettes, USA

          April 10 at 3:49 PM view post
          • butler has replied to a post on the message board

            Hi Harbour, May I ask where you live?  If people on this board are willing, maybe we could share where we're from as future resources may be available in your areas that others may not yet be aware of.  Sorry so cryptic, brain fog is bad today, Sara in MA

            April 06 at 2:10 PM view post
            • butler has replied to a post on the message board

              Hi Diana, Would you be so kind as to ell me your doc in Fl name?  My sister lives in Vero and needs dilation (not from radiation) but would appreciate any recommendations.  She has PsA, I've had BOT cancer 2016, and think I may be headed for a recurrence and live in MA.  I can't find a good dental team that knows anything about h & n isses regarding tooth destruction Thanks, Sara

              April 06 at 1:48 PM view post
              • butler has replied to a post on the message board

                Tufts and Medicare only cover HBOT for wound care and radiation is only considered once diagnosed with osteonecrosis is confirmed and not treated well with total extraction and jaw replacement(during)

                March 21 at 6:03 PM view post
                • butler has replied to a post on the message board

                  Hi Susan, Unfortunatly HBOT is not usually approved by insurance and yes I appealed as did my Dr.s.  I hope you are well, Best, Sara

                  March 19 at 5:07 AM view post
                  • butler has created a new message board discussion

                    Hi All, If breast reconstruction is covered by insurance after cancer, why wouldn't teeth restoration after radiation also fall under medically neccessary?  So frustrating. My toungue sucking tic that I recently developed is giving me the "hot mouth" that I remember as a pre-cursor to the toungue (BOT) diagnosis. Anyone else?   My dentists/endo won't extract my back molar due to the fear of osteone...

                    March 16 at 6:17 PM view discussion
                    • butler has replied to a post on the message board

                      Have them check her ammonia levels...HE could be the culprit

                      March 01 at 5:52 PM view post
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