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butler's Recent CancerCompass Activity

  • butler has replied to a post on the message board

    gabapentin helps with the pain and cramping.  Stretching, massage and accupresur/acupuncture has also helped some

    July 19 at 5:19 AM view post
    • butler has replied to a post on the message board

      Has he tried Gabapentin?  Most likely due to radiation causing nerve damage and ongoing scar tissue/lack of circulation

      July 19 at 12:49 AM view post
      • butler has replied to a post on the message board

        After many tries, I found that XyliMelts (OraCoat)are by far the most effective treatment for nighttime dry mouth.  The are OTC CVS and come in Mint or Mint-free good if the tongue is sensitive.  They adhere anywere inside the mouth, palet, gum line and stay overnight giving constant moisture and relief.  Please go et them asap- They pose no choking hazard and are soothing and comfortable

        June 29 at 1:04 PM view post
        • butler has replied to a post on the message board

          Just another finishline to cross!   Congratulations to you both! Sara in MA...near the Cape

          April 10 at 4:00 PM view post
          • butler has replied to a post on the message board

            What I didn't know until recently was that theXylimeltswere available and actually stick/adhere anywhere moist on the gumline, roof of mouth etc.  No choking hazard and work wonders. Sara in MA

            April 10 at 3:55 PM view post
            • butler has replied to a post on the message board

              Diana, Thank you for sharing your Dr. and resources with me.  I have forwarded the info to my sister in Vero. Sara in MA

              April 10 at 3:51 PM view post
              • butler has replied to a post on the message board

                Harbour, Trust your instincts and look for a new team if your insurance allows it.  I'm not certain of your condition, but it sounds like your Dr.s are giving you conflicting advise.  A second opinion never hurts, but bad decisions do. Good luck Sara in Massachusettes, USA

                April 10 at 3:49 PM view post
                • butler has replied to a post on the message board

                  Hi Harbour, May I ask where you live?  If people on this board are willing, maybe we could share where we're from as future resources may be available in your areas that others may not yet be aware of.  Sorry so cryptic, brain fog is bad today, Sara in MA

                  April 06 at 2:10 PM view post
                  • butler has replied to a post on the message board

                    Hi Diana, Would you be so kind as to ell me your doc in Fl name?  My sister lives in Vero and needs dilation (not from radiation) but would appreciate any recommendations.  She has PsA, I've had BOT cancer 2016, and think I may be headed for a recurrence and live in MA.  I can't find a good dental team that knows anything about h & n isses regarding tooth destruction Thanks, Sara

                    April 06 at 1:48 PM view post
                    • butler has replied to a post on the message board

                      Tufts and Medicare only cover HBOT for wound care and radiation is only considered once diagnosed with osteonecrosis is confirmed and not treated well with total extraction and jaw replacement(during)

                      March 21 at 6:03 PM view post
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