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butterfly501's Recent CancerCompass Activity

  • butterfly501 has replied to a post on the message board

    also, did it note the Bethesda category?

    Yesterday at 12:31 AM view post
    • butterfly501 has replied to a post on the message board

      What was the gross description?

      Yesterday at 12:20 AM view post
      • butterfly501 has replied to a post on the message board

        You're 37, the most it can be is stage II.  Who told you you have papillary thyroid cancer and how did they determine it has spread to the lymph nodes?

        Yesterday at 10:46 PM view post
        • butterfly501 has replied to a post on the message board

          If you were off your thyroid hormone instead of using thyrogen, then yes, it makes sense you're tired 3 weeks post. Your body is still trying to adjust for not having T3/T4 for weeks. I don't know anything about phantom tongue blisters though. Feel better!

          Friday at 10:08 PM view post
          • butterfly501 has replied to a post on the message board

            You can get the results directly from the lab, they'll just need a signed release. Then you don't have to wait for the doctor.

            Friday at 3:33 AM view post
            • butterfly501 has replied to a post on the message board

              or Quest Diagnostics, that's another lab with tons of locations.

              Thursday at 9:13 PM view post
              • butterfly501 has replied to a post on the message board

                Get an order and take it to labcorp, you can access your results via the patient portal. They have a ton of locations. Sounds like your doctors are giving you a big runaround for something quite simple.

                Thursday at 8:56 PM view post
                • butterfly501 has replied to a post on the message board

                  Why so long? They should be able to rule out hashi's with thyroid antibodies lab test by blood draw.  At the very least, TSH results have a few hour turn-around; same day results are quite possible with an a.m. blood draw. If you have it, and a high TSH, they'll put you on oral thyroid hormone. I've never read of a specific hashi's diet. I hope you get some results much sooner than May 9th. If you got blood wo...

                  Thursday at 7:32 AM view post
                  • butterfly501 has replied to a post on the message board

                    If your daughter is 61 you must be ~80?  You sure have a lot of energy to devote to your daughter's health matters at your own advanced age.  Not to mention; computer saavy. Kudos to you!

                    April 24 at 11:01 PM view post
                    • butterfly501 has replied to a post on the message board

                      If you want peace of mind, you should speak with your doctor.  You're not getting an RAIU because they think you have thyroid cancer, you're getting an RAIU to determine if you have a hot or cold thyroid nodule. Yep, I was pregnant and I KNEW I was pregnant and I KNEW I was pregnant with a boy, but what I sure didn't know while I was pregnant was that the lump I found on my neck would end up being thyroid cance...

                      April 23 at 12:07 AM view post
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                      About butterfly501

                      Survivor
                      Thyroid Cancer

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