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butterfly501's Recent CancerCompass Activity

  • butterfly501 has replied to a post on the message board

    Only a very small percentage of thyroid nodules (<5%) are thyroid cancers. And most people have thyroid nodules.

    Saturday at 8:00 AM view post
    • butterfly501 has replied to a post on the message board

      Yes, most likely you will.  The vast majority does. Be well.

      Saturday at 7:57 AM view post
      • butterfly501 has replied to a post on the message board

        Who said you can be dead in 2 - 3 years from thyroid cancer? That's highly unlikely. 

        Saturday at 7:57 AM view post
        • butterfly501 has replied to a post on the message board

          Her doctors should at least let her TSH rise levels recommended by the ATA professional guidelines: ¦ RECOMMENDATION 59 (A) For high-risk thyroid cancer patients, initial TSH suppression to below 0.1 mU/L is recommended. Retrospective and prospective studies have demonstrated that TSH suppression to below 0.1 mU/L may improve outcomes in high-risk thyroid cancer patients (275,749), though no such evi...

          Saturday at 7:54 AM view post
          • butterfly501 has replied to a post on the message board

            why would her levothyroxine be INCREASED when her TSH is well below detectable parameters. She needs a dose DECREASE asap, no wonder she feels like she does. That's inhumane.

            Saturday at 7:42 AM view post
            • butterfly501 has replied to a post on the message board

              It's rare, but it does happen.  A very small percentage (~2%-3%) of thyroid cancers are like this. Papillary is usually pretty standard treatment and very, very survivable.  Sure, there's questions to ask, but remain optimistic because thyroid cancer, esp. papillary is usually one that can be cured.  The only thing that comes with it is lifetime monitoring for recurrence, but that's non-invasive bet...

              Saturday at 7:38 AM view post
              • butterfly501 has replied to a post on the message board

                If you are or become resistant to I-131, genetic testing can be useful.  I would think they would want a current tissue sample, at that time, IF that ever became a reality. Definitely things you should speak to your surgeon about.

                Saturday at 6:00 AM view post
                • butterfly501 has replied to a post on the message board

                  How was it determined there was spread to a lymph node?

                  Saturday at 5:57 AM view post
                  • butterfly501 has replied to a post on the message board

                    *suppressing her TSH even further

                    July 19 at 4:46 AM view post
                    • butterfly501 has replied to a post on the message board

                      .5 is super suppressed.  Upping her dose and suppressing her dose even further most likely is not going to help.  It sounds like she's having symptoms of a dose too high. She may want to speak with her doctor about getting her dose decreased and allowing her TSH to raise closer to 1.   I know they like to keep people with recurrence super suppressed; in the undetectable range, but not everyone c...

                      July 19 at 4:45 AM view post
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                      About butterfly501

                      Survivor
                      Thyroid Cancer

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