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butterfly501's Recent CancerCompass Activity

  • butterfly501 has replied to a post on the message board

    Hope your surgery went well!

    Yesterday at 10:50 AM view post
    • butterfly501 has replied to a post on the message board

      Are you a thyroid cancer researcher? Or you're a thyroid cancer caregiver?

      Tuesday at 7:25 AM view post
      • butterfly501 has replied to a post on the message board

        You should have nothing to fear.  I had RAI with thyrogen and it was very unremarkable.  The anticipation before the treatment was the only difficult part of the treatment for me.  Take the time to rest, treat it like a vacation and enjoy some quiet days and nights. 

        June 18 at 11:22 PM view post
        • butterfly501 has replied to a post on the message board

          Sorry to read of your struggles.  From what I've read, poorly differentiated thyroid cancer is rarely curable.  Hopefulliy, someday, "big pharma" will be able to cure these aggressive forms of thyroid cancer, TKIs seem to be the newest, approved treatment trying to resolve RAI refractory thyroid cancer. Good luck with your natural medicine; I hope you find the right treatment balance that works for you.

          June 13 at 9:50 PM view post
          • butterfly501 has replied to a post on the message board

            Why are you back here, responding to a post that is almost 2 years old. ODD! It's a genomic test. If you don't understand what that means, you should ask your MEDICAL doctor. Your response is not nice and is rude. I care that people like you come here to belittle genomic testing while having apparent little understanding of why it exists in the first place. Medical technology is trying to reduce the number of thyr...

            June 02 at 7:45 AM view post
            • butterfly501 has replied to a post on the message board

              You should get your  TSH measured every 4 - 6 weeks after dose changes until you're established on your dose. Your dose is too low, giving symptoms of a high TSH. Your TSH should be no higher than 2.00. I don't doubt you you feel off and distant.  Your TSH is way too high even for a person with a thyroid. Make sure you get your TSH tested every 4 - 6 weeks until you are well-established on the oral thyro...

              May 24 at 7:38 AM view post
              • butterfly501 has replied to a post on the message board

                You can inquire about genomic testing; that may be helpful.  A popular one is Afirma Veracyte.

                May 23 at 11:03 PM view post
                • butterfly501 has replied to a post on the message board

                  How do they know it spread to the lymph nodes? If it did, no you do not have lymphoma, it would be metatastic papillary thyroid cancer.

                  May 16 at 6:48 PM view post
                  • butterfly501 has replied to a post on the message board

                    Best bet is to call your PCP. I've never heard of kidney pain as a side-effect of I-131 or thyroid hormone withdrawl.

                    May 11 at 6:22 AM view post
                    • butterfly501 has replied to a post on the message board

                      Mayo Clinc.

                      May 01 at 10:32 PM view post
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                      About butterfly501

                      Survivor
                      Thyroid Cancer

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