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butterfly501's Recent CancerCompass Activity

  • butterfly501 has replied to a post on the message board

    Have they discussed FNA (biopsy)? Neoplams can be benign and benign thyroid nodules are very common occurences.  I don't think the surgical staging of the thyroid nodule means much towards benign or malignant, but you should ask the doctor. Biopsy (FNA) is the first line of defense when diagnosing thyroid cancer. Good luck!

    October 19 at 6:33 PM view post
    • butterfly501 has replied to a post on the message board

      If the level truly is thyroglobulin (Tg) then you have a massive amount of thyroid tissue left.  Did you have I-131 ablation (RAI)? Your Tg should be undetectable or extremely low level, unless you are managing known mets.   Increasing your levothyroxine would decrease your TSH and (perhaps) decrease your Tg but regardless of TSH level, your Tg should not be more than 1.0, unless you have extenuating circ...

      October 19 at 3:37 AM view post
      • butterfly501 has replied to a post on the message board

        What, exactly, are your results? What was the recommendation after the inconclusive FNA?  Genomic testing? Surgery? etc.... I've never read accounts of thyroid bleeding in relation to thyroid cancer.  If follicular cells were found from the FNA, then an inconclusive result is not out of the ordinary.  Follicular cells are notorious for being difficult to determine between benign and malignant by FNA....

        October 17 at 3:12 AM view post
        • butterfly501 has replied to a post on the message board

          Perhaps you should simply provide the information and not require a private message for a person to obtain it. If it comes directly from the National Institue of Health via pubmed, then it is  empirical, peer-reviewed research.  It shouldn't be anything to be so private about. Sharing information is the object of this message board, not only for the current member but those that arrive later.

          September 29 at 7:06 AM view post
          • butterfly501 has replied to a post on the message board

            They should at least measure your Tg first and do an ultrasound; sounds a bit over the top to me. Try not to worry.  Maybe inquire on Tg and ultrasound. Good luck!

            September 17 at 1:45 AM view post
            • butterfly501 has replied to a post on the message board

              I started taking levothyroxine (by mylan) the day after surgery in 2009, I never really had any problems adjusting to it.  I am doing well, thank you!

              September 17 at 1:42 AM view post
              • butterfly501 has replied to a post on the message board

                Never experienced your first isssue. If you feel symptoms of hypothyroid you need your dose upped; that's the only fix. Your doctor can submit an order to any lab for TSH bloodwork; your TSH should be no higher than 2.00 over the long term and your doctor may want to suppress your TSH even lower, especially during the first year. Good luck!

                September 17 at 1:38 AM view post
                • butterfly501 has replied to a post on the message board

                  What was your dose?

                  September 12 at 10:42 PM view post
                  • butterfly501 has replied to a post on the message board

                    My surgeon approached it the same way and ending up taking the whole thyroid, but he would have done a partial if he could have. Sounds like you're in good hands!

                    September 12 at 10:41 PM view post
                    • butterfly501 has replied to a post on the message board

                      Sometimes they can run pathology while you're on the table; but with follicular, that can be more difficult and is not always possible.  You need to decide if you will be comfortable having 2 surgeries if the results end up malignant.  With half a thyroid you may still need oral thyroid hormone to maintain correct levels.  It's kind of a crap shoot either way. Good luck!

                      September 09 at 11:39 PM view post
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                      About butterfly501

                      Survivor
                      Thyroid Cancer

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