Loading...

butterfly501's Recent CancerCompass Activity

  • butterfly501 has replied to a post on the message board

    The speakers are some of the top medical professionals in the treatment of thryoid cancer.  Many of them have or currently are authors of the American Thyroid Association professional guidelines for the management of thyroid cancer. Tuttle, Shah, and Shaha are all from MSK.

    January 12 at 5:43 PM view post
    • butterfly501 has replied to a post on the message board

      You only need an order for TSH blood work, no dr. appt needed.  It's very straight forward blood work.  If you want to monitor for thyroid tissue, ask for a Thyroglobulin (Tg) test. Get your PCP/GP to examine the lymph nodes. 

      January 08 at 10:08 AM view post
      • butterfly501 has replied to a post on the message board

        The dosing of levothyroxine can be fickle.  Just keep getting bloodwork and monitoring the level.  Your body will balance it out eventually. You can do a blood test for thyroglobulin (protein secreted by thyroid tissue) to see if you have remaining thyroid tissue. The two lymph nodes should be examined and imaged by ultrasound.  If need be, an FNA should be performed. Your doctor should be very conc...

        January 07 at 6:29 AM view post
        • butterfly501 has replied to a post on the message board

          Your wife can also think about getting an US guided FNA locally, and (if needed) have Clayman's pathologist give a second opinion. Also, beginning page 12 of the professional guidelines is good discussion, flow charts and figures in reference to imaging results that may be helpful, if you haven't already found them. http://online.liebertpub.com/doi/full/10.1089/thy.2015.0020

          January 05 at 12:54 AM view post
          • butterfly501 has replied to a post on the message board

            And you filed the claim and received the denial?

            January 04 at 7:47 AM view post
            • butterfly501 has replied to a post on the message board

              Is Clayman going to do the FNA?  Or does your wife want to get the FNA locally then go to Clayman for surgery, if needed? How far is Florida from your home?  If you're an hour away in a different state, it's a bit different than extensive travel. Does Clayman indicate in his emails to you that he would require to do the FNA? Has your wife personally spoke/emailed with Clayman about her current thyroid st...

              January 04 at 7:44 AM view post
              • butterfly501 has replied to a post on the message board

                Call them and ask when it will be ok to sleep next to a child.  You do not need to be "fully cleared" from radioiodine.  We are exposed to radiation every day. I would say 14 days (to be extra cautious) at 106 mCi would be fine to protect your husband and child from radiation exposure during co-sleeping but only nuclear medicine will have the correct answer. You can cuddle your child at any time, especial...

                December 28 at 3:06 AM view post
                • butterfly501 has replied to a post on the message board

                  I doubt the two are related, especially due to the nature of strep. The fine needled aspirated the thyroid gland, which is not inside the throat/esophagus. If you are not feeling at peace with your FNA results, you should get a second opinion.  It should be no big deal, although with health insurance in USA now, who knows. You need to be comfortable with the diagnosis, and if a second will help, you should see...

                  December 27 at 6:29 AM view post
                  • butterfly501 has replied to a post on the message board

                    This is from the professional guidelines, you can read more at https://www.thyroid.org/professionals/ata-professional-guidelines/ [A13] Benign cytology & RECOMMENDATION 11 If the nodule is benign on cytology, further immediate diagnostic studies or treatment are not required (Strong recommendation, High-quality evidence)

                    December 25 at 9:58 PM view post
                    • butterfly501 has replied to a post on the message board

                      Never heard of anything like it.  Who's the carrier?

                      December 22 at 8:46 PM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About butterfly501

                      Survivor
                      Thyroid Cancer

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.