Loading...

butterfly501's Recent CancerCompass Activity

  • butterfly501 has replied to a post on the message board

    That's what it says on patient portal?  That seems highly unprofessional. A) I'd suggest you seek a second opinion. B) You had uptake.  Get the ablation from a reputable nuclear medicine md and take it from there. I-131 doses are recommended in smaller doses presently, the 30 mCi dose recommendation is nothing out of the ordinary. Tg readings do not require I-131 to be reliable.  Tg levels are view...

    5 hours ago view post
    • butterfly501 has replied to a post on the message board

      Well, I can tell you I have zero regrets of having my thyroid removed.  I don't like being dependent on the levothyroxine, but that's not because of the pill, but because of the reliance on a medical doctor. If only it were OTC and TSH monitoring was at my own discrection.  I really dislike most medical doctors. RAI is absolutley not always needed.  And if it should come to the point it's been recomm...

      Monday at 6:57 AM view post
      • butterfly501 has replied to a post on the message board

        The recommendation is to maintain 6 feet of distance for a day or two.  Not sure that qualifies as not being able to be near others. Make sure not to put the cart before the horse.  I-131 recommendations are being scrutinized more closely and prescribed less frequently, currently.  You may not even need it.

        Sunday at 4:34 AM view post
        • butterfly501 has replied to a post on the message board

          It's not radiation.  It's a pill of radioactive iodine (I-131) referred to as ablation.  It's usually very tolerable; no sickness, no recovery.  It's usually anticlimatic and boring. A well versed surgeon will take only 1/2 the thyroid if the other half looks healthy.  This shouldn't be a choice you have to make but an advisement that the surgeon will make to you that the full thyroid will be tak...

          September 15 at 5:31 AM view post
          • butterfly501 has replied to a post on the message board

            A general surgeon did my thyroidectomy.  He was very experienced and had just returned from volunteer work in south america removing thyroids for children. He did a great job and was very kind.   Experience matters the most over any title/specialty a surgeon holds.

            September 15 at 5:26 AM view post
            • butterfly501 has replied to a post on the message board

              I'm assuming you have thyroid cancer.  You should not need an oncologist for thyroid cancer.

              September 14 at 9:07 PM view post
              • butterfly501 has replied to a post on the message board

                You'll want to see a surgeon next, one experienced in thyroidectomy.  Also, you'll need to get an endocrinologist. Good luck!

                September 14 at 9:06 PM view post
                • butterfly501 has replied to a post on the message board

                  Just to clarify, if you get checked every 6 months, since Dec. of 2017 you've been checked one time since surgery?  As an aside, I-131 ablation (RAI) is less than dramatic and less than a pain in the ass. I've been through it.  My child was 18 months, and I had 2 dogs to care for. Thankfully, my husband could pick up the brief slack for my few treatment days.  RAI does not require "isolation".  ...

                  September 14 at 8:41 AM view post
                  • butterfly501 has replied to a post on the message board

                    Just wondering, which tests show no sign of cancer?

                    September 14 at 8:31 AM view post
                    • butterfly501 has replied to a post on the message board

                      Hang in there, the FNA is the first step in diagnosing thyroid cancer. Lots of people have thryoid nodules and a very small percentage of those are cancerous. Good luck!!

                      September 07 at 5:43 AM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About butterfly501

                      Survivor
                      Thyroid Cancer

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.