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butterfly501's Recent CancerCompass Activity

  • butterfly501 has replied to a post on the message board

    Sounds like you need a biopsy to see what it may be. Good luck!

    Thursday at 3:23 AM view post
    • butterfly501 has replied to a post on the message board

      Did you have I-131 ablation? Or just an RAI uptake imaging? An over 1 cm mass left behind after a TT 3 months ago sounds concerning. You may want to contact the surgeon and ask why something like that would not have been removed.

      Wednesday at 9:54 PM view post
      • butterfly501 has replied to a post on the message board

        In my personal experience, if my Tg ever starts to rise from the .1 it is currently, I will be taking measures to find the source. I would not wait around for it to rise to over 2. If it starts to go on the rise after years of remaining at .1, there's a problem. My personal "threshold for concern" is any increase in my Tg. People who have not had I-131 should also have undetectable or very low detectable Tg within t...

        March 20 at 9:52 PM view post
        • butterfly501 has replied to a post on the message board

          Hi Brenda, Just to shed some light on Tg values (with or without RAI); there are no "normal" values. The "ideal" is undetectable but some people never have undetectable Tg, so then the "ideal" becomes stable Tg. Some people with mets (especially in the lungs) are managing Tg in the 500s with the hopes of stability in that measure.  No evidence of thyroid tissue would be ideal but, for many, stable Tg levels o...

          March 20 at 5:36 AM view post
          • butterfly501 has replied to a post on the message board

            And if you think my interpretation of what you're saying is "if Tg levels are fine, then you can watch and wait"  you're incorrect. As I have written too many times now, pre-op Tg is MEANINGLESS!  Even is "jason" had his Tg monitored, it would NOT matter. "He" still has a thyroid. That renders Tg measures MEANINGLESS! Tg does not mean a thing in pap/fol thyroid cancer until you've had treatment. If you ...

            March 19 at 11:44 AM view post
            • butterfly501 has replied to a post on the message board

              Tg levels are MEANINGLESS if the person still has a thyroid! This: "My guess is that you are reading this as "if Tg levels are fine, then you can watch and wait" is not ANYTHING I've EVER written or suggested. Don't EVEN try to suggest I did.

              March 19 at 11:38 AM view post
              • butterfly501 has replied to a post on the message board

                Okay. "This study aimed to determine if preoperative TG correlates with stage or metastatic burden." At the very least, I can see where you found this quote: "Presurgical TG is of limited utility in today’s value based healthcare environment." " Methods: A retrospective review of consecutive patients undergoing thyroidectomy with preoperative TG" There is nothing about using Tg measures for active surveilla...

                March 19 at 11:09 AM view post
                • butterfly501 has replied to a post on the message board

                  And NO, it's not surprising that "Jason" is not having his Tg tracked. Tg would be meaningless information. No, MD would use that for a measure of thyroid cancer diagnosis. And no MD would use it as a measure of untreated thyroid cancer growth.

                  March 19 at 10:19 AM view post
                  • butterfly501 has replied to a post on the message board

                    Alright, well, my post is "under review" so here we go. Your research is not research, it's simply an article about Tg. It's not used in any capacity at MSK in their programs for Dx or active surveillance. Additionally, the Tg test has one primary purpose; https://labtestsonline.org/understanding/analytes/thyroglobulin/tab/test/#how I think it would be very unfortunate if a person thought they could skip thyroid...

                    March 19 at 9:00 AM view post
                    • butterfly501 has replied to a post on the message board

                      Well, that's not really a study about the utility of measuring TG as a tumor marker in a person with a thyroid. It's merely a writing about thyroglobulin. It's not surprising that it's not being tracked in the "case" at hand. He still has his thyroid. Tg measures are useless. It's unclear to me where your quote "Presurgical TG is of limited utility in today’s value based healthcare environment" comes from. A...

                      March 19 at 8:55 AM view post
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                      About butterfly501

                      Survivor
                      Thyroid Cancer

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