cdaley2

cdaley2's Recent CancerCompass Activity

• cdaley2 has replied to a post on the message board

  Dear Philip,  I have the same vibe about this test. I am on my way there to grill him about it anyway, figuring I might learn something. Will post if there is anything interesting. I wish I were a mouse! Good luck getting your internet back - I would be crazy without it... Best, Chris

  July 12 at 11:23 AM view post

• cdaley2 has replied to a post on the message board

  PhilipJax, here are the answers to your questions, followed by my questions. 1) I am 59 and in excellent physical condition, work out with weights 3 x a week and I can walk a mile in 15 minutes or maybe less. I also spin/cycle when I have time. 2) The name of the agent is KO-947, and here is the link: https://clinicaltrials.gov/ct2/show/NCT03051035 Unfortunately, I would have move to Pheonix for a 2 years so it k...

  July 09 at 12:06 PM view post

• cdaley2 has replied to a post on the message board

  Thank you PhilipJax I agree with most of the points in your response, and I think it just highlights how difficult decisions are when there is so much disparate information. Let me put my situation in context. After the distal, everyone, I mean everyone acted as if I was in the lucky group that really might be cured - perfect margins, relatively young, good health, no lymph involvement, etc. While the scan in Nov sh...

  July 08 at 6:24 PM view post

• cdaley2 has replied to a post on the message board

  Dear PhilipJax, First, thank you very much for all your hard work. I try to keep up through my own research, but sometimes I feel I am digging down the wrong holes, unknowlingly. Your posts are invaluable. I have gone through several of your earlier posts, and noticed that you feel that IRE is superior to SBRT. I am trying to understand the difference in both procedure and results. I am researching my options for 2...

  July 08 at 11:36 AM view post

• cdaley2 has replied to a post on the message board

  Helen,  can you get another opinion. It is true that immunotherapy and vaccines have been unsuccessful to date, the are now combining them with other drugs, sort of like the AIDs "cocktail" approach. It really  depends on  how much risk you guys are taking by putting off the chemo. According to my doctor (Eileen O'Reilly at Sloan) some people with lung mets dont even to on chemo for 2-3 years. FYI, my ...

  July 05 at 12:07 AM view post

• cdaley2 has replied to a post on the message board

  Helen, I had a similar thing happen to me. I had a successful surgery, was Stage IIa, zero lymph nodes, perfect margins. I  just finished chemo when the May scan showed that some unidentified specks in the lung had grown a little. Had a biopsy (sort of a big deal in the lungs) and confirmed there was a small amount of PDAC there.  My oncologist tells me many things - 1) lung mets are much easier to control...

  July 04 at 11:15 PM view post

• cdaley2 has replied to a post on the message board

  Stepuna, my conversation with PanCan was interesting although I'm not sure that helpful. Basically I was trying to find out 1) how does one decide on an immunotherapy trial when doing one seems to preclude you from other trials in the future 2) why would someone do a study in only one city and 3) how will Precision Promise work, and will that open up studies to my doctor that are being performed somewhere else. Most ...

  June 23 at 12:56 PM view post

• cdaley2 has replied to a post on the message board

  Thanks Stepuna, I just heard back from the person at NANT she said: This study will be enrolling subjects at the Chan Soon-Shiong Institutes for Medicine Immuno-Oncology Center in El Segundo, CA.  Now I'm trying to find out how long one would have to be in CA to do the trial, etc. There is a really good trial in Phoenix, but you are getting IVs and such for something every 3rd day and this could go on for a...

  June 22 at 8:31 PM view post

• cdaley2 has replied to a post on the message board

  Stepuna, where did you find the information that this trial was only given in California. It looks interesting and in reading the the description it said it wasnt yet recruiting and didnt give location. Thanks, Chris

  June 22 at 7:25 PM view post

• cdaley2 has replied to a post on the message board

  Philip - this a an extremely important document, thank you so much for sending it along. It is shocking how much information some doctors hold back (or don't know). Chris

  April 21 at 2:23 PM view post