cdaley2

cdaley2's Recent CancerCompass Activity

• cdaley2 has replied to a post on the message board

  Hi PhilipJax, thanks for getting back. My oncologist is Dr. Eileen O'Reilly. She's very good, without question, and neither condescends nor ignores my temperment, which is a bit aggressive after way too many years as the only woman on a wall st trading floor, ha! She's not saying "no" to local treatment, she just wants to see if the lung mets stabilize. That's not crazy advice, IMO, I just want to be ready for when ...

  September 05 at 10:42 PM view post

• cdaley2 has replied to a post on the message board

  Just to follow-up on Nano for lung mets situation: I just heard back from Dr. Martin's office - his assistant Melanie called. First to complain about the order of papering. After explaining the situation, she said that 1) Dr. Martin does not do lungs and 2) Dr. Martin does not do mets. He only does Nano "once the mets is resolved", which assumes that the primary is still there I guess. I asked her if he had looked a...

  September 05 at 7:32 PM view post

• cdaley2 has replied to a post on the message board

  RE: Dr. Martin, same here. I sent the whole package, including CDs of scan a couple of weeks ago and have heard nothing. I'm just dotting my i's as I am sure that he is going to refuse me for nano on my lung mets - so I haven't been chasing him. I'm sure it's just late August/Labor Day vacations etc.

  August 31 at 6:22 PM view post

• cdaley2 has replied to a post on the message board

  whipple or distal (if tumor is in the tail) is what everyone hopes for. It's being done more and more on people that 5 years ago would not have been "eligible". Everything you read on neo-adjuvant chemo/radiation is about reducing the size of a tumor or detaching it from an artery so that they can have the surgery. A tough operation to be sure (the distal, not so much) but at a major center that does many a year, it'...

  August 10 at 1:10 PM view post

• cdaley2 has replied to a post on the message board

  Dear Philip,  I have the same vibe about this test. I am on my way there to grill him about it anyway, figuring I might learn something. Will post if there is anything interesting. I wish I were a mouse! Good luck getting your internet back - I would be crazy without it... Best, Chris

  July 12 at 11:23 AM view post

• cdaley2 has replied to a post on the message board

  PhilipJax, here are the answers to your questions, followed by my questions. 1) I am 59 and in excellent physical condition, work out with weights 3 x a week and I can walk a mile in 15 minutes or maybe less. I also spin/cycle when I have time. 2) The name of the agent is KO-947, and here is the link: https://clinicaltrials.gov/ct2/show/NCT03051035 Unfortunately, I would have move to Pheonix for a 2 years so it k...

  July 09 at 12:06 PM view post

• cdaley2 has replied to a post on the message board

  Thank you PhilipJax I agree with most of the points in your response, and I think it just highlights how difficult decisions are when there is so much disparate information. Let me put my situation in context. After the distal, everyone, I mean everyone acted as if I was in the lucky group that really might be cured - perfect margins, relatively young, good health, no lymph involvement, etc. While the scan in Nov sh...

  July 08 at 6:24 PM view post

• cdaley2 has replied to a post on the message board

  Dear PhilipJax, First, thank you very much for all your hard work. I try to keep up through my own research, but sometimes I feel I am digging down the wrong holes, unknowlingly. Your posts are invaluable. I have gone through several of your earlier posts, and noticed that you feel that IRE is superior to SBRT. I am trying to understand the difference in both procedure and results. I am researching my options for 2...

  July 08 at 11:36 AM view post

• cdaley2 has replied to a post on the message board

  Helen,  can you get another opinion. It is true that immunotherapy and vaccines have been unsuccessful to date, the are now combining them with other drugs, sort of like the AIDs "cocktail" approach. It really  depends on  how much risk you guys are taking by putting off the chemo. According to my doctor (Eileen O'Reilly at Sloan) some people with lung mets dont even to on chemo for 2-3 years. FYI, my ...

  July 05 at 12:07 AM view post

• cdaley2 has replied to a post on the message board

  Helen, I had a similar thing happen to me. I had a successful surgery, was Stage IIa, zero lymph nodes, perfect margins. I  just finished chemo when the May scan showed that some unidentified specks in the lung had grown a little. Had a biopsy (sort of a big deal in the lungs) and confirmed there was a small amount of PDAC there.  My oncologist tells me many things - 1) lung mets are much easier to control...

  July 04 at 11:15 PM view post