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cdaley2's Recent CancerCompass Activity

  • cdaley2 has replied to a post on the message board

    Philip Jax, thank you so much for posting this, it is a hot topic right now, which I found out about in my quest to find the right treatment for my lung mets, and also suspected from what I have observed anecdotally. I unfortunately missed the window, but apparently late last year Sloan has moved toward the chemo first regimen, at least in some patients. If only! Also, in my travels I consulted with Dr. Joe Herman (a...

    Thursday at 2:36 PM view post
    • cdaley2 has replied to a post on the message board

      GinaGB, I wrote a private message back to you, did you get? Anyway, just let me know the next time you see her - I am there everyother Tuesday, so even if it's the wrong Tuesday I am only one stop away. If you need to contact her, best is to call the office and ask for Renee, she's the best. Also since you travel, if you need a place to stay in NY I usually have a spare BR in BKLN. I can't believe they , are encourag...

      November 04 at 8:46 PM view post
      • cdaley2 has replied to a post on the message board

        GinaGB, I do not think MSK does nano. Re Dr. Martin - if this involves mets you have to figure out around his gestapo assistant. I sent all my stuff to her - she first called to complain that she didnt like how my download was organized. Then in talking through it with her she dismissed me without asking Dr. Martin because he supposedly doesn't do mets. I have since learned that I would be better off with a lung spe...

        November 03 at 2:05 PM view post
        • cdaley2 has replied to a post on the message board

          I love Dr. Herman! I stalked him down - a v. good friend of mine was friends with somebody, etc. - otherwise it's very hard to speak to anyone at MDA. He was the one person that recommended a cohesive treatment plan for my lung mets - FOLFIRINOX for a couple of months, SBRT or even regular ablation (not sure what that is, maybe RFA?) of remaining tumors, the 2 more months FOLFIRINOX. I just started the chemo, we'll s...

          November 03 at 1:54 PM view post
          • cdaley2 has replied to a post on the message board

            Esrph Would you mind my asking a little about JH? Were you always a patient there or did you ask to see them specifically for this treatment. They seem to be more willing to do sbrt and other things on mets than others. I am at MSKCC and love my oncologist, but sometimes they seem a little overly cautious on anything but chemo. Re JH, I don't want to go through their entire process but rather find the right person w...

            November 03 at 10:34 AM view post
            • cdaley2 has replied to a post on the message board

              I wish I had seen this earlier. I had almost the exact situation - stage IIa, suddenly stage IV just like that. I know how let down you must feel. But here's the thing, what the oncologist told your mother about life expectency is complete and utter bullxxxx! Lung mets - if it even is lung mets - when it appears as the first and only sight - is very often a different sub-type and is slow growing. My onco said I had "...

              October 16 at 7:21 PM view post
              • cdaley2 has replied to a post on the message board

                Hi PhilipJax, thanks for getting back. My oncologist is Dr. Eileen O'Reilly. She's very good, without question, and neither condescends nor ignores my temperment, which is a bit aggressive after way too many years as the only woman on a wall st trading floor, ha! She's not saying "no" to local treatment, she just wants to see if the lung mets stabilize. That's not crazy advice, IMO, I just want to be ready for when ...

                September 05 at 10:42 PM view post
                • cdaley2 has replied to a post on the message board

                  Just to follow-up on Nano for lung mets situation: I just heard back from Dr. Martin's office - his assistant Melanie called. First to complain about the order of papering. After explaining the situation, she said that 1) Dr. Martin does not do lungs and 2) Dr. Martin does not do mets. He only does Nano "once the mets is resolved", which assumes that the primary is still there I guess. I asked her if he had looked a...

                  September 05 at 7:32 PM view post
                  • cdaley2 has replied to a post on the message board

                    RE: Dr. Martin, same here. I sent the whole package, including CDs of scan a couple of weeks ago and have heard nothing. I'm just dotting my i's as I am sure that he is going to refuse me for nano on my lung mets - so I haven't been chasing him. I'm sure it's just late August/Labor Day vacations etc.

                    August 31 at 6:22 PM view post
                    • cdaley2 has replied to a post on the message board

                      whipple or distal (if tumor is in the tail) is what everyone hopes for. It's being done more and more on people that 5 years ago would not have been "eligible". Everything you read on neo-adjuvant chemo/radiation is about reducing the size of a tumor or detaching it from an artery so that they can have the surgery. A tough operation to be sure (the distal, not so much) but at a major center that does many a year, it'...

                      August 10 at 1:10 PM view post
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                      About cdaley2

                      Patient
                      Pancreatic Cancer
                      Alternative Treatments, Cancer Nutrition, Cancer Treatments, Chemotherapy

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