Loading...

crob1024's Recent CancerCompass Activity

  • crob1024 has replied to a post on the message board

    Hi Keithga:  I do not check into this site too often these days, but when I do I look for posts by people with astrocytomas stage 2 as there is much less info out there for such patients. My husband was diagnosed with Astrocytoma Stage 2 in his right frontal lobe when he was 54 (so similar age to you).  Since it too was diffuse, doctors watched it for 3 years until it started to enhance on MRIs.  He w...

    February 23, 2018 view post
    • crob1024 has replied to a post on the message board

      My husband also had partial complex seizures and tried many different medications before an excellent seizure specialist (in addition to his regular neuro-oncologist) suggested Carbatrol which is an extended release similar to Tegretol, but much better for partial complex.  Why?  because it has 3 different types of beads for the extended release, one of which will get all the way into the intestines and sti...

      view post
      • crob1024 has replied to a post on the message board

        Dear Suz222:  So sorry you are going through this, but take heart that the odds are in your favor to have at least several years following treatment before any possible recurrence.  Not many on this board have grade II.  Your chances of living many years are much better than for a GBM patient. My Husband was diagnosed with an astrocytoma grade II in 1996.  It was watch and wait and take seizure m...

        view post
        • crob1024 has replied to a post on the message board

          Hi:  I don't know the whole reason I still come to this site, as my husband has been gone nearly 4 years, but I do seem to like to try to help those who suffer from low grade astrocytomas since most people on this site are dealing with GBM right from the start.  Anyway, I don't know if your friend has had any seizures, but Doug presented with partial complex seizures and was put on Dilantin, which made him ...

          view post
          • crob1024 has replied to a post on the message board

            My husband also had a grade 2 astrocytoma and had surgery (90% removed) and then radiation like your friend.  The symptoms you mention she has now are likely radiation related.  Often doctors wait on using Temador with the low grade astrocytomas until and if there are signs of regrowth.  My husband did not take temador until six years after surgery and radiation.  All told he survived 12 years fro...

            view post
            • crob1024 has replied to a post on the message board

              Oh, I forgot your other question.  He took medication for seizures right away, which got changed over the years.  The watching and waiting was in terms of surgery. Carol

              view post
              • crob1024 has replied to a post on the message board

                He had his surgery at Memorial Sloan Kettering... Dr. Gutten was the surgeon.  We stayed with the doctors there throughout his journey and felt he got very good care.  His first neurologist at MSK has now retired, I think. His second one was Dr. Givrilovic (sp?).  Best of luck to you. Carol

                view post
                • crob1024 has replied to a post on the message board

                  Paz:  I totally understand your conflicted feelings about leaving a brain tumor untreated while also fearing an operation on your brain.  My husband had a very similar story to yours early on.  He too was diagnosed with a slow growing, low grade (2) astrocytoma (his was in the right frontal lobe).  He too was advised to watch and wait, and he really didn't want to "open up his head" right off. &nb...

                  view post
                  • crob1024 has replied to a post on the message board

                    Hi Suz:  My husband was 54 when he was diagnosed with a Grade 2 Astrocytoma (found due to a partial complex seizure).  He opted to watch and wait until it started to enhance which was 4 years later.  We were told that with low grade astrocytomas the tumor is almost a bit amorphous..hard to get it all as there are almost microscopic tenacles hard to detect.  When they did operate they got 90% of it...

                    view post
                    • crob1024 has replied to a post on the message board

                      My husband had astrocytoma stage II diagnosed at age 54.  He lived 12 years and had six good years after surgery (his surgery wasn't done until four years after diagnosis as it was too diffuse, not large and didn't enhance, and he was told he could watch it closely and take anti seizure medication) He had radiation after surgery and six good years before he started Temador with regrowth. ...

                      view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About crob1024

                      Caregiver
                      Brain Cancer

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.