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djthx's Message Board Messages

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RE: Opdivo and Yervoy

by djthx - May 02, 2019

Hello, I began the combination therapy of Opdivo (nivolumab) and Yervoy (ipilimumab), on a clinical trial basis, in Nov '14, and am still receiving bi-weekly Opdivo infusions.  For me, compared to the 2 years of chemo that I went through, it was/is a piece of cake.  However, every person is different.  And for some, the side effects can be serious.  But for me, I just experienced a little bit of a itching sensation (when I was on both), my appetite was also affected (but not anymore), and I also feel a tiredness.  However, the feeling tired is nothing like the fatigue induced by chemo.  My energy levels are great.  And there are times when I head straight to the gym after treatment. 

I'm going on 7 years since being stage 4 diagnosed and 5 years being on the immunotherapy.  I also share your feelings of gratitud!

Take Good Care!

Edwin

RE: Anyone used Keytruda

by djthx - March 02, 2019

Hi Diana,

What medication is he currently on?  If it's some type of chemo, then I suggest fasting.  Of course this is dependent on his weight.  If u research (this means googling only science-based articles or reports) fasting + cancer or fasting + chemotherapy, you will find how effective fasting is in our battle.  And this is also discussed in Dr. Nasha's book.  

Curcumin turmeric, another one 9f my mainstay supplements, is an antioxidant and anti inflammatory, and has also shown to have anti cancerous properties.  It's also a blood thinner, so if he's on blood thinners, it might not be a good idea.  Furthermore, turmeric has also shown to be synergistic with certain chemos (Google it).

Edwin

RE: Anyone used Keytruda

by djthx - March 01, 2019

By the way, I mistakenly wrote transusions, instead of infusion (biweekly infusions of nivolumab).

RE: Anyone used Keytruda

by djthx - March 01, 2019

Hi Diana,

Did you look over the first link I posted?  It leads to a scientific article reporting on how immunotherapy is enhanced by certain bacterium in your gut.  It's all about your gut health, aka, your microbiome.  This happens to be one of the fronts or terrains that Dr. Nasha Winters mentions in her book.  Fyi, I regularly take the probiotic bifido bacterium, which is one of the strains mentioned in the article.

You can also google Redo Project, which is a site devoted to taking another look at conventional, older medication, that has been shown (at least in theory in some cases) to have anti-cancer properties like tagamet (an acid blocker) and metformin, which I also regularly take.

You should test for and set ideal levels of certain vitamins and minerals.  That's the reason why it's crucial to test for any polymorphisms.  If we find that our bodies aren't able to absorb an ideal amount of certain vitamins or minerals (vit D, zinc, calcium, b-12, folate, etc.), then our battle becomes that much more difficult if not impossible.  It even occurs to me that these polymorphisms may be implicated (thinking long-term) in our having developed cancer in the first place.

Other areas that are important are our state of miind/motivation; we have to be convinced of victory.  Meditation and/or self-hyponis (which is meditation with an agenda) can help us accomplish this.  Exercise is important.  And fasting is one of the items that are on the top of my arsenal list.  Certain supplements are also key.

Take good care,

Edwin

RE: Anyone used Keytruda

by djthx - February 28, 2019

Hi Diana,

It was a 2 year clinical trial.  However, since I continued to respond to treatment, I am receiving bi-weekly transfusions on a compassionate basis.  And FYI, I'm doing great; never felt better.

I'm willing to share all my experience, and can also offer suggestions, but right now I'm at work, so it will have to be done after business hours.

in the meantime, a book that I find to be indispensible is The Metabolic Approach to Cancer by Dr. Nasha Winters.

Also, it is very important (crucial) to test for any polymorphisms.

https://www.youtube.com/watch?v=bVV2RFEiqN4&t=33s

Take good care,

Edwin

RE: Anyone used Keytruda

by djthx - February 28, 2019

Hello,

I've been on Nivolumab (Opdivo) - another PD-1 inhibitor, for 4 and 1/2 years now.  I was dx stage 4 gastroesophageal, and currently, there is ned.  I suggest you look at (and continue to research) this article:

https://www.uchicagomedicine.org/forefront/cancer-articles/2

All the best,

Edwin

Hello,

I recall, after being diagnosed (Oct '12 - Stage 4 GE junction) - and all throughout the entire testing/staging process - endlessly and fruitlessly searching for any sort of hope and support.  So now here I am, alive and kicking - 6 years later, hoping to be able to offer someone the support I was not able to find.  I feel so fortunate and blessed in having - thus far - defied the statistics.  I'm also very grateful to God and the universe for having not just extended my life, but also my quality of life.  And so I'm willing to share all my experiences and knowledge with all.
I'm 53 years old, married with two kids (they're actually now adults), and consider myself to be actively battling c.  When I was diagnosed, my son was a high school and my daughter in junior high.  One of my prayers was to see my kids graduate from college.  My son graduated last year, and my daughter is in her 1st year in college.
  
Everything that I've tried or can recommend is scientifically-researched.  There is so much info on the internet.  And though some might be well meant, there's definitely a lot of baloney out there as well.  It is our responsibility to do the research, and filter out the nonsense.  Our lives literally depend on it.
If you are overweight or if you don't have any issues in maintaining your weight, then I would consider fasting.  Fasting has been used for health related reasons for over 2 thousand years.  If you google (or youtube) fasting + cancer, you will find many articles based on how fasting or calorie restriction, while on chemo, has a synergistic effect in combating malignant cells.  Furthermore, it also indicates that it helps reduce the side effects of chemo.  These articles indicate both a synergistic and a symptom-relieving benefits of fasting during chemo treatment.   I do intermittent fasting.   And had I been aware of this research-based fact, I would have done so while on chemo.
I consider myself to be actively battling c, and will continue to do so for the rest of my life.  We're in the battle of our lives; one with many fronts.  There is a must read book "The Metabolic Approach To Cancer" by Dr. Nasha Winters, who refers to these to fronts as terrains.  We must be convinced of victory.  This is vital.  Meditation, and in particular, self-hypnosis (which is mediation with an agenda) was key in helping me regain control of my right state of mind.  There undoubledly is a mind-body connection.  I meditate to help reduce stress, and to affirm that I am strong; that I am healthy.  Also, it's important to affirm and communicate to every cell in my body that I am and will remain "open for business".  This can only be accomplished on a subconscious state. 
In addition to intermittent fasting and meditation, I also exercise (I've lost about 50 pounds).  

http://www.drmirkin.com/morehealth/how-exercise-helps-to-tre

There is an excellent website that takes a look at common medications that have been shown to have anti-cancer properties.  
My #1 recommendation is LDN: 
I also take high dose Vitamin C.  It's the best anti oxidant available.  And we need to battle those free radicals, i.e., oxidative stress.
I realize that I've thrown a lot at you, but I can't hold anything back.  Every day I battle; every day I research.  And whenever I can, I share.
Take good care,
Edwin

RE: Curcumin

by djthx - March 09, 2018

On Mar 09, 2018 7:12 PM djthx wrote:

Hello,

Sorry for not responding earlier; I've been very busy, and have so much e-mail that's been piling up.  Thanks for your well wishes. 

I did have 2 years of chemo.  They first gave me about 9 cycles of Folfox (5FU, oxaliplatin, and leucovorin).  I responded to treatment, and my tumor burden was stable.  However, the oxaliplatin had to be discontinued because of the extensive neuropathy that the drug was causing me.

I continued with 5FU and leucovorin for about 4 months, until it became evident that it was no longer working.  So then I began receiving 5FU, leucovorin, and docetaxel.  I was on this regimen for about 10 months, until that stopped working.

Since November 2014, I've been on a combination clinical trial consisting of Ipilimumab and Nivolumab.  I received them concurrently for 4 cycles, and since then I've been receiving nivolumab every 2 weeks.  It was a 2 year trial, but my oncologist obtained authorization to allow me to continue since I continue to respond.  My scans (every 3 weeks) indicate a couple of lymph node involvement.  But they have remained pretty much stable.

I am grateful to God; I am grateful to the universe; I am grateful to the chemo, the immunotherapy drugs, and to my supplements.  I was also taking coriolus PSP mushroom (turkey tail) for a few years.  Aside from that, I take Vit D3, high dose Vit C (sodium ascorbate), magnesium glycinate, among others.  I'm also on metformin, which has been shown to have direct, anti-cancer properties.  I am convinced that our bodies have the ability to heal, if we give our immunse system the proper support. 

There is a website that I highly recommend, where it focuses on studying common medication, which has anti-cancer properties.  It is an excellent reference source:  www.redo-project.org "" target="_blank" rel="nofollow">http://www.redo-project.org " target="_blank" rel="nofollow">www.redo-project.org /

I meditate, exercise (I've lost about 45 pounds), and do intermittent fasting (google/youtube fasting+cancer).  Also please youtube high dose vitamin C by Suzanne Humphries and also Thomas Levy the unified theory of all disease.  I also highly suggest you look at: 

https://www.lowdosenaltrexone.org/ldn_and_cancer.htm "" target="_blank" rel="nofollow">https://www.lowdosenaltrexone.org/ldn_and_cancer.htm " target="_blank" rel="nofollow">https://www.lowdosenaltrexone.org/ldn_and_cancer.htm

Please encourage your dad to take supplements; they are vital.  Also, his subconcious needs to be convinced of his being healthy.  Every cell in his body needs to affirm that he is and will remain open for business!

Wishing you and your dad all the best,

Edwin

(meant to state that I get CT Scans every 3 months)

RE: Curcumin

by djthx - March 09, 2018

Hello,

Sorry for not responding earlier; I've been very busy, and have so much e-mail that's been piling up.  Thanks for your well wishes. 

I did have 2 years of chemo.  They first gave me about 9 cycles of Folfox (5FU, oxaliplatin, and leucovorin).  I responded to treatment, and my tumor burden was stable.  However, the oxaliplatin had to be discontinued because of the extensive neuropathy that the drug was causing me.

I continued with 5FU and leucovorin for about 4 months, until it became evident that it was no longer working.  So then I began receiving 5FU, leucovorin, and docetaxel.  I was on this regimen for about 10 months, until that stopped working.

Since November 2014, I've been on a combination clinical trial consisting of Ipilimumab and Nivolumab.  I received them concurrently for 4 cycles, and since then I've been receiving nivolumab every 2 weeks.  It was a 2 year trial, but my oncologist obtained authorization to allow me to continue since I continue to respond.  My scans (every 3 weeks) indicate a couple of lymph node involvement.  But they have remained pretty much stable.

I am grateful to God; I am grateful to the universe; I am grateful to the chemo, the immunotherapy drugs, and to my supplements.  I was also taking coriolus PSP mushroom (turkey tail) for a few years.  Aside from that, I take Vit D3, high dose Vit C (sodium ascorbate), magnesium glycinate, among others.  I'm also on metformin, which has been shown to have direct, anti-cancer properties.  I am convinced that our bodies have the ability to heal, if we give our immunse system the proper support. 

There is a website that I highly recommend, where it focuses on studying common medication, which has anti-cancer properties.  It is an excellent reference source:  www.redo-project.org /

I meditate, exercise (I've lost about 45 pounds), and do intermittent fasting (google/youtube fasting+cancer).  Also please youtube high dose vitamin C by Suzanne Humphries and also Thomas Levy the unified theory of all disease.  I also highly suggest you look at: 

https://www.lowdosenaltrexone.org/ldn_and_cancer.htm

Please encourage your dad to take supplements; they are vital.  Also, his subconcious needs to be convinced of his being healthy.  Every cell in his body needs to affirm that he is and will remain open for business!

Wishing you and your dad all the best,

Edwin

RE: Curcumin

by djthx - February 13, 2018

Hello,

One of my mainstay supplements that I've been taking, non-stop - for over 5 years, has been Turmeric Curcumin with BioPerine.  I'm currently taking 1000mg 2x per day.  It is an anti-inflammatory, anti-oxidant, and a number of labarotory studies on cancer cells have shown that it does have  anticancer effects.  I'm still around, and doing great after being stage 4 diagnosed in Oct '12, without ever having surgery.  I've also experimented with and am taking other supplements (all based on my own personal, scientifically-based research).  Not everything works for everyone (at least that's what I've always heard), but I would have to say that it (amongst other things)) has worked for me.

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About djthx

Patient
Esophageal Cancer, Stomach Cancer

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