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dsouzjo1's Recent CancerCompass Activity

  • dsouzjo1 has created a new message board discussion

    My husband has started on his 4th line drug Lenvima (lenvatinib 18mg) & Everolimus (afinitor). Has anyone had any luck on these drugs? Thanks!

    October 24 at 9:44 PM view discussion
    • dsouzjo1 has replied to a post on the message board

      Hi, May I ask if the SBRT was successful for you and what areas did you target? My husband has nodules in the lung and lymph node area and the Onc. said it is too big for SBRT? Thanks!

      October 09 at 8:26 PM view post
      • dsouzjo1 has replied to a post on the message board

        Hi Tkht, Thanks for your note. I am sorry for the accident and glad that both of you are ok. I hope that your husband will get good results from the new Cabometyx. Hoping that they will find a cure for everyone with cancer. Thanks!                         

        August 17 at 9:28 PM view post
        • dsouzjo1 has replied to a post on the message board

          Hello, My husband see Dr. Kucuk at St. Joseph's Cancer Center in Atlanta, GA.  My husband had to drop to 40mg of Cabometyx due to sore and painful hands. They are still painful at times with skin peeling. When will the new version of cabo be available?

          August 16 at 8:31 PM view post
          • dsouzjo1 has replied to a post on the message board

            Hi Bob, My husband, Joe, loved the Opdivo also and had no side effects but a progession from it so that's why they are doing the combo with Cabo. Joe also has thinning of hair and change in taste. I hope you have good results on the 11th. Please keep us posted.  Thanks!

            August 01 at 9:33 PM view post
            • dsouzjo1 has replied to a post on the message board

              Hi Bob, My husband, Joe, is currently taking cabometyx 40mg tablets as well as Opdivo infusions every two weeks. He was originally on 60mg of cabometyx but the hands were really bad and painful so we dropped down to 40mg. The hands are still bad on and off with skin peeling and tender to the touch. He uses an compound cream that was especially made for this by a compound pharmacist. On the whole, he is ok but suffer...

              July 31 at 8:48 PM view post
              • dsouzjo1 has replied to a post on the message board

                Hello, I order the one for my husband from blue bird-botanicals.com. They are very reputable and you get a discount with your first order. It helps with pain and sleep issues. Good luck!

                May 19 at 9:32 PM view post
                • dsouzjo1 has replied to a post on the message board

                  Yes, I have enrolled on smart patients. I will reach out to the pharma company also. Thanks!

                  May 19 at 1:19 AM view post
                  • dsouzjo1 has replied to a post on the message board

                    Hi, Thanks for your reply. Yes, he has addressed the issues with his doctor. The lidocaine cream, coconut oil, udder cream, etc all help a bit but nothing stops the pain except for tylenol. Since it is a very new drug no one know how to treat it 100%.

                    May 18 at 10:10 PM view post
                    • dsouzjo1 has created a new message board discussion

                      Hello, My husband has been on the drug cabometyx for the last 2 months and has had mouth sores but terrible pain in his fingers due to skin peeling and extreme pain in the finger joints. Did anyone have these side effects? How did you deal with it? Thanks!

                      May 17 at 10:39 PM view discussion
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                      About dsouzjo1

                      Caregiver
                      Kidney Cancer
                      After Treatment, Alternative Treatments, Cancer Prevention, Biotherapy

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