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dsouzjo1's Recent CancerCompass Activity

  • dsouzjo1 has replied to a post on the message board

    Hello, I order the one for my husband from blue bird-botanicals.com. They are very reputable and you get a discount with your first order. It helps with pain and sleep issues. Good luck!

    May 19 at 9:32 PM view post
    • dsouzjo1 has replied to a post on the message board

      Yes, I have enrolled on smart patients. I will reach out to the pharma company also. Thanks!

      May 19 at 1:19 AM view post
      • dsouzjo1 has replied to a post on the message board

        Hi, Thanks for your reply. Yes, he has addressed the issues with his doctor. The lidocaine cream, coconut oil, udder cream, etc all help a bit but nothing stops the pain except for tylenol. Since it is a very new drug no one know how to treat it 100%.

        May 18 at 10:10 PM view post
        • dsouzjo1 has created a new message board discussion

          Hello, My husband has been on the drug cabometyx for the last 2 months and has had mouth sores but terrible pain in his fingers due to skin peeling and extreme pain in the finger joints. Did anyone have these side effects? How did you deal with it? Thanks!

          May 17 at 10:39 PM view discussion
          • dsouzjo1 has replied to a post on the message board

            Hi, Please tell me where you get the vitamin B17 from. I googled it and it said there is no vitamin B17 just the seeds of fruits such as apricot seeds. Thanks!

            May 17 at 10:16 PM view post
            • dsouzjo1 has replied to a post on the message board

              I would be interested to hearing how you get the hemp oil and does it help? Good Luck! Thanks!

              March 29 at 9:47 PM view post
              • dsouzjo1 has replied to a post on the message board

                Thanks for your response. We were not aware that radiation therapy could work on the liver. I will keep you posted on the genomic testing and the findings. So far no side effects from Cabometyx except for fatigue. He had lots of side effects from Votrient especially extreme diarrhea.

                March 22 at 11:37 PM view post
                • dsouzjo1 has replied to a post on the message board

                  Hello, My husband has stage 4 RCC and had a Radical surgery of the right kidney done in June 2015. MRI done on December 2015 showed small pulmonary nodules, bone scan was normal (Dec 15, 2015), brain MRI (January 6, 2016) showed no infiltration, and MRI abdomen (Jan15, 2016) showed no metastatic disease .On December 2015, he started on panzopanib (votrient 800 mg/day) and because of tolerability (...

                  March 15 at 12:34 AM view post
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                  About dsouzjo1

                  Caregiver
                  Kidney Cancer
                  After Treatment, Alternative Treatments, Cancer Prevention, Biotherapy

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