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echarlick91's Recent CancerCompass Activity

  • echarlick91 has replied to a post on the message board

    Yes! We got a grant for his chemo back in January and met his OOPM so now our plan just renewed, so we need to do that again.  We did already bank his sperm back in January before he started chemo/radiation and we got a discount throught the livestrong foundation which made it very reasonable.  The hard part for me is the "let stuff go for now and just take each day as it comes" but i know that will help...

    July 14 at 5:07 PM view post
    • echarlick91 has replied to a post on the message board

      My boyfriend did Radiation and Chemo about a month after surgery as well.  He was very tired from the radiation and chemo but i think it was the best decision for him to do it.  He did that combination for 6 weeks though. 

      July 14 at 5:05 PM view post
      • echarlick91 has replied to a post on the message board

        Yes!  They removed ALL the tumor and as much around it as they could, the surgeon was very aggresive with it.

        July 14 at 5:03 PM view post
        • echarlick91 has replied to a post on the message board

          Hi Diazfam, Thank you for the reply!  He has ideas about chemo that it's a scam and is slowly killing him and it's just a way for the health industry to make money.  He is supposed to do maintenance chemo 5 days a month for the rest of the life which we have already talked to his doctor about that.  A lot of stories i've read are people take the maintanence chemo for 6 months to a year, which the doct...

          July 12 at 2:55 PM view post
          • echarlick91 has created a new message board discussion

            My boyfriend was diagnosed in December 2016, with surgery and 6 weeks radiation/chemo.  Followed by maintenence chemo (which he kind of takes when he wants), he's very stubborn and thinks the chemo is a scam.... He took his maintenance chem april for three of the five days, may 4 of the 5 days, didn't take it June at all, and now we will see if he does in July. He has two boys that live with ...

            July 11 at 7:14 PM view discussion
            • echarlick91 has replied to a post on the message board

              Hi John! Have you been working throughout that maintance chemo? My boyfriend was diagnosed in December 2016, with surgery and 6 weeks radiation/chemo.  Followed by maintenence chemo (which he kind of takes when he wants), he's very stubborn and thinks the chemo is a scam....  He has two boys that live with us most of the time and he still hasn't returned to his job....  He was just approved for disabi...

              July 11 at 7:06 PM view post
              • echarlick91 has replied to a post on the message board

                Good luck to you and your husband...  it's hard and scary every day.  THe days there are no treatments and you have weeks or a month off of everything are so nice, they feel like you are normal.    Josh has his CT scan on Wednesday and we get to discuss the results on Friday.... we are so anxious!   Hang in there!

                April 27 at 3:06 PM view post
                • echarlick91 has replied to a post on the message board

                  Hi Dodger, Was it your choice to only do the 6 months of chemo?  Josh's doctor basically drilled it in to us that he should do this for the rest of his life and that it prevents the cancer from coming back which we understand that part.  What made you decide to be off all treatment?  diet change? just didn't want to deal with the chemo anymore?  just wondering?

                  April 27 at 3:05 PM view post
                  • echarlick91 has created a new message board discussion

                    Good morning!!! I'm writing today to ask others what their treatment was like?  My boyfriend finished his chemo and radiation about 3 weeks ago.  We have a follow up with his Oncologist tomorrow and an MRI in a few weeks.  The recommended treatment going forward is a Maintenance chemo drug for 5 days a month and the rest of the month off.  The dosage they will start him on is 320 MG a day, he w...

                    April 13 at 3:25 PM view discussion
                    • echarlick91 has created a new message board discussion

                      My Boyfriend has been very stubborn with the whole chemotherapy treatment from the get go, but hasn't even tried anything else or looked into other options full heartedly.   From the start of Chemo we have had issues, he's on a 160 MG pill that he is supposed to take every night.  Well when we started this whole process of radiation and chemo he didn't start taking his chemo pills until 4 or 5 days aft...

                      February 28 at 4:28 PM view discussion
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                      About echarlick91

                      Caregiver
                      Brain Cancer
                      Cancer Diagnosis, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Diet, Lifestyle, Radiation, Support

                      December 8th, my boyfriend was rushed to the hospital because he had a seizure at work, which was later found to be a brain tumor on his left frontal lobe.

                      December 9th, the Surgeon Dr. Holland performed an aggressive surgery to remove the tumor that was about the size of a golf ball. And we were thankfully home a few short days later, actually on my Birthday December 11th.

                      The doctors were so optimistic about everything and that they got all the tumor we didn't think anything else of it. Even though we needed the tumor had to be tested. We went back in to get his staples removed and found out we would be referred to an oncologist, to talk to us about radiation and chemotherapy. We found out he had a grade 3 anaplastic Astrosytomia brain tumor the day before christmas eve.... And I've been a mess since. I keep reading survival stories to stay positive.

                      I never thought that we would be dealing with this. He also has two boys that live with us ages 6 and 8, we explained to them the treatment and why he will be doing this. Being the caretaker, i get overwhelmed, tired, stressed and don't know how we are going to make it financially. Then i read these stories and it really helps lower my stress. Because if he can make it, fight this and live a long healthy life, then money doesn't even matter!

                      January 3rd, we get a call from the pharmacy that we have been approved for a 4,000 dollar grant to help pay for radiation!!!

                      We have our follow up on January 9th, 2017 and radiation will probably start that following Monday the 16th.

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