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gobarb26's Recent CancerCompass Activity

  • gobarb26 has replied to a post on the message board

    I am taking things like Vit. D, Acyclovir, Neurontin, things for helping me sleep and for my depression disorder.

    March 12 at 5:44 PM view post
    • gobarb26 has replied to a post on the message board

      All the best to you!

      March 12 at 5:01 PM view post
      • gobarb26 has replied to a post on the message board

        Hi.  So glad that you had good results with the Rev.  Hopefully, you will get good news from your BM biopsy.  I understand your scare completly!  It is not fun to have to wait for results...If however the results are not what you hope to hear, at least you can do another SCT.  At least that will buy you more time!  Praying for you!   ??  Keep us informed! Barb

        February 14 at 5:47 PM view post
        • gobarb26 has created a new message board discussion

          Hi all.  I haven't been on these boards for about a year or so. I decided to re-join because I had a scare in December.  I went to my Oncologist at Moffitt Cancer Center for my 2 month bloodwork and Zometa treatment.  My urine test showed that there was a spike in 2 of 3 MM markers.  He said that the test is almost always on pointe and it seemed that the MM was back.  I have been in remission...

          February 06 at 4:08 AM view discussion
          • gobarb26 has changed their profile photo
            February 06 at 3:48 AM
            • gobarb26 has replied to a post on the message board

              I was born into a Jewish family and was very active in my youth group and Sunday school while I was in high school. However, I always felt empty...I didn't believe in God!  I searched for many years, comparing religions and decided that I just couldn't find anything to help me believe that God was there.  I have been a spiritual person and I thought if there was a God, it must be nature.  Well, go back...

              June 21, 2013 view post
              • gobarb26 has replied to a post on the message board

                Funny you should mention about your eyes.  I too have noticed that.  My Doc wasn't sure if it was connected to the Rev., but I just got new glasses this summer and a few months later, they were not very effective.  I am about to make an appt. with the Opthomologist to have them checked again. I was on RVD therapy at the onset of my MM in Jan. 2011.  I had 2 stem cell transplants in July and Oct. 2...

                January 04, 2013 view post
                • gobarb26 has replied to a post on the message board

                  Hi Hop.  I went on a 10 night cruise and came down with a cold, the last day. The day after we got back, I had to be at Moffitt for my 12 mth. bone marrow biopsy and bone scan.  My bloodwork came back with elevated liver enzymes.  I was taken off the Rev. until I return on Jan. 7.  I am still in remission and they think the elevated enzymes were a result of my cold.  I have noticed some chang...

                  January 04, 2013 view post
                  • gobarb26 has replied to a post on the message board

                    What a bummer that you are still in the hospital.  You will be in my prayers.  Hopefully, your Christmas will be better than your Thanksgiving! Barb

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                    • gobarb26 has replied to a post on the message board

                      I am so sorry to hear that you are in the hospital again.  I just hate when that happens!  Hope you are feeling better and can go home very soon!

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                      About gobarb26

                      Patient
                      Multiple Myeloma
                      Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support, Insurance, Lifestyle, Side Effects, Spiritual Support, Cancer Nutrition

                      Hi. My name is Barbara and I was just diagnosed with Multiple Myeloma a week ago. I have been fundraising for the Leukemia & Lymphoma Society for 10 years through Team in Training. I never would have thought that I would be on the receiving end of the society! I am 61 years old and I work as a massage therapist. I have been having terrible pains for 7 months. About 3 months ago, I was diagnosed with Costochondritis and Fibromyalgia. Luckily, I went to a pain management dr. who said she wanted to do more tests to rule out anything more dangerous. After 2 more months, my medical doctor sent me to a Hematologist/Oncologist and he did a bone marrow biopsy and FINALLY gave me the cancer diagnosis. I am still getting tests to find out the stage and kidney function, but he said 80% of my bone marrow is affected. This doesn't sound good to me. He wants to treat this aggressively and I am starting chemo next Tues. So far, I have not talked with any one who has had this type of cancer so I am glad to find this support group. Hopefully, I will be able to connect with others who are going through this and who have gone into remission. Thank you all for your time. I will be back frequently, I am sure.

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