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hayden26's Recent CancerCompass Activity

  • Hayden26 has created a new message board discussion

    hello, just wondering if any of you have seen success with Yervoy, and if so how long did it take for it to start working for you? Thanks!

    July 11, 2015 view discussion
    • Hayden26 has replied to a post on the message board

      Hello, I'm not sure you are still on here but I wanted to hear about your experience with OHSU. I'm currently in Eugene but may be switching to a doctor up there.

      July 09, 2015 view post
      • Hayden26 has created a new message board discussion

        Hello, I haven't been on here in a while, but unfortunately my stage 3 melanoma jumped to stage 4 after four years of being NED. I had nodules in both lungs removed and a good prognosis, until we found one more in my medial rectus muscle of my eye. I'm having surgery to remove this entire muscle, which will affect my vision and eye movement. It has not spread to my eye ball or other tissues as far as we can tell. The...

        March 21, 2015 view discussion
        • Hayden26 has created a new message board discussion

          I just wanted to say that today is my LAST self injection of Interferon! It has been a long rough year but it's so worth it! and looking back I would do it all over again. My last scans were clear and i'm looking forward to my future  =)

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          • Hayden26 has replied to a post on the message board

            when I started my interferon treatment my ocologist office offered me a grant from the state I think... that would pay for my treatment...My insurance ended up paying for it in full so I didn't need it. maybe you could ask about something like that? 

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            • Hayden26 is now friends with snodebb
              • Hayden26 has replied to a post on the message board

                Hi, I'm about 6 months into the injections. They are not that bad! The first month was the hardest. If he's scared of the doing the injections maybe you could do them for him? It's really not that bad. You injected into the fat on your tummy or thigh and barely feel it at all. I've continued to work full time at a dental office, I found that getting up and getting moving each morning actually helped with the fatigue....

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                • Hayden26 has replied to a post on the message board

                  Hi Kathy,  I'm also stage 3 with a positive sentinal lymph node. It was found in December and I'm about 8 months into the Interferon treatment. So far so good! I feel good other than being a little tired from the treatment. I was not given the option for a clinical trial, my oncologist wanted me to do the interferon since it's the only thing PROVEN to help lower the risk of recurrence. Good luck and remember yo...

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                  • Hayden26 has replied to a post on the message board

                    Hi! I'm about 8 months into the Interferon treatment. I'm doing the shot myself at home 3 times a week which is way easier than the high dose through the IV. You feel side affects a few hours after the injection. My side effects were not very bad and I found that Ibuprofen taken at the same time as the injection would prevent the chills and fever. I'm very fatigued a lot but getting plenty of energy and drinking wate...

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                    • Hayden26 has replied to a post on the message board

                      my treatments are 3 times a week. I'll look into the penguin caps thank you! my hairs getting thinner by the day =( 

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                      About hayden26

                      Patient
                      Melanoma
                      After Treatment, Alternative Treatments, Cancer Diagnosis, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Diet, Emotional Support, Supplements

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